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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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  1. Has anyone else had trouble getting long term care insurance? I've got health insurance through my employer, but long term care insurance is optional, and we have to supply evidence of good health to qualify. I had been thinking for a long time that I should have long term care insurance - I'm 51 and single - but I recently applied and was turned down! I have no medical history of any health problems other than Celiac (I suppose my medical records indicate anemia and mild osteopenia as well. I do take anti-depressants, and have for years.) I don't think I have any other risk factors. I actually thought I was in pretty good shape and on the way to recovering from any Celiac-related issues I have. Sheesh. Do insurers just see Celiac as a "life-long chronic condition" (which I guess it is) and give it a thumbs down? Ironically, I think I take better care of myself than most people. I can appeal the decision. I'm wondering now if, (assuming an appeal is successful),when and if I'm in need of long term care, the insurance company will deny my coverage based on a "pre-existing" condition. I suppose anything I end up needing care for could somehow be related to Celiac, and therefore denied. I'm worried!
  2. Kathy, I'm sorry that you're feeling sick and depressed , and unfortunately I have no advice for you - just wanted you to know you're not alone. I've been gluten-free for about a month and a half, and just recently (the last couple weeks) started having stomach pain, which I never experienced before diagnosis. I'm quite sure I haven't ingested gluten - I've been very careful about food, meds, and even lotions and shampoos,etc. I was wondering if maybe since I'm eating more fresh fruit,vegetables, and meat, my stomach is rebelling. It wants its comfort foods back- breads and cereals!! Can a person be "addicted" to gluten, and go through some kind of withdrawal? Weird. I'm interested to hear what others have to say. Keep us posted on how you're doing and what your doctor finds out. Emma What is a "5" on your antibody test?
  3. Thanks for all the info, everyone. This is a great board! -Emma
  4. Thank you so much for your responses. The info is very helpful - I will look for the supplements you suggested, Kaiti - and it's good to know I'm not alone. Mel, to answer your question, I just consider myself very lucky to have been referred to an astute gastroenerologist. When my GP ( who I like very much, but who is kind of clueless about Celiac) saw that my routine blood test showed an iron deficiciency, she referred me for a colonoscopy to rule out cancer. My understanding is that when a post-menopausal woman or a man is iron deficient, the most likely cause is colon cancer or some other bleeding in the GI tract, so a colonoscopy is routinely the next step. I don't really know why the gastroenterologist suspected Celiac - I suppose the iron problem was a clue-, but I do recall him asking me a couple questions during the colonoscopy about my ancestry (I'm Irish-Scottish), which struck me as odd at the time (now makes sense). He scheduled me for an upper GI endoscopy (which I don't think my GP would have done) and when he looked at my small intestine, he felt reasonably sure that Celiac was the problem - apparently my intestine had a tell-tale "mosaic" appearance. The biopsy confirmed it - my villi are flat. I have no idea how long I've been sick. Apparently long enough to become anemic and osteoporotic, which doesn't happen overnight! I never really felt sick, but now I'm wondering if I just got used to feeling tired and depressed, and accepted it as normal. I'm hoping to be a new person on a gluten-free diet! I'm just thankful that I've got something that's manageable, and that I don't have to be on medication for the rest of my life. Thanks again and best wishes to you both- Emma
  5. I was diagnosed about 3 weeks ago totally unexpectedly. I went in for my annual physical with a new doctor in January, and had some routine blood tests.To my shock, we found that I was seriously anemic as well as vitamin D deficent, and a DEXA scan showed me to be osteoporotic in some locations(I'm 51). As a result I was referred for a colonoscopy to check for internal bleeding or cancer. Nothing was found, thank goodness, but luckily the Gastroenterologist investigated further- I had an upper endoscopy and an intestinal biopsy, which confirmed Celiac disease. I had been a little tired but never really had any gastrointestinal symptoms - at least nothing that would have prompted me to see a doctor . I wonder now if the depression I've suffered with most of my adult life could be related. I have also always been pale and thin, and have always had dark circles around my eyes. Celiac symptoms? I don't know. At first I felt that the gluten free diet was giving me more energy, but today I am very down. In addition to a gluten-free diet (which I have pretty much figured out on my own from this website and many others),my doctor prescribed an iron supplement, and suggested an OTC calcium plus d supplement. Other than that, not much other advice. I feel a bit lost. Any additional supplements I should be taking or trying? I do seem to be constipated, maybe due to the iron and calcium. I;ve been drinking tons of water and eating tons of prunes, and that hasn't helped AT ALL. I'm wondering too, how I will know if I'm unintentionally ingesting gluten since I don't have any definitive reaction when I do? I'm also wondering how long it will take for my intestine to heal (and how will iron and calcium supplements help in the meantime if I'm not absorbing anything?) My doctor said nothing about followup - when should I plan to go back to see if the supplements are working, and to see if my villi are coming back? I'm a little scared, not knowing how long I've had this and how much damage has been done. I hope that a gluten-free diet works, but what if it doesn't? Sorry for babbling on so long, but I feel a little better having done so. Any help or suggestions would be more than welcome.