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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About hnybny91

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    hnybny91's Activity

    1. hnybny91 added a post in a topic Gluten Free...just Because   

      Ok, so my MIL asked me AGAIN today if I was sticking to this "diet" and why her neighbor down the road can't eat gluten either but will occasionally have a bowl of pasta when they go out and just say that she has to be good for awhile now - like it was some high fat dessert or something *rolls eyes*
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    2. hnybny91 added a post in a topic Losing Friends Because Of My Food Restrictions   

      I am sorry about your losing a friend. That said, why do you turn down social invites? Either just don't eat (eat beforehand so you aren't hungry) or bring your own safe food. Don't isolate yourself because you will lose a lot more friends than this one if you do BTW......{{{{{{{{{HUGS}}}}}}}}}
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    3. hnybny91 added a post in a topic Gluten Free...just Because   

      Mu MIL said to me at Easter, "Oh! You are still doing that?" in reference to my not eating gluten. I said, "Yeah, it is either not eat gluten or die so I choose gluten free forever!"
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    4. hnybny91 added a post in a topic Easter Dinner Sure Is Easier Than Thanksgiving And Christmas!   

      Can someone please explain the above statement in bold to me? I can't have casein either and now I can't have WINE because of it???
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    5. hnybny91 added a post in a topic Truncated Ingredients Lists   

      I just bought a big bag of Lay's salt and vinegar the other week and it did not say wheat on the ingredients list.
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    6. hnybny91 added a post in a topic Gluten Free...just Because   

      I had someone tell me a few weeks ago that they have Celiac Disease too. They also claimed that they can not eat casein (just like me.) Just earlier that evening this person had been eating cheese stick and she regularly eats things like cookies and even regular pizza. Um, you do NOT have celiac disease unless you are one of those that has no symptoms and just choose to ignore it. She is always talking about the health benefits of this and the health benefits of that so you would think if she really couldn't eat gluten she wouldn't, you know?
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    7. hnybny91 added a post in a topic Testing Done, Is It Normal To Be Mad And So Many Questions   

      I was very angry when I put all the peices together too. I have never had a "formal" diagnosis but I don't need one. You do become less angry over time but it takes awhile. Just try to focus on the positive that you finally have some answers and you can look at the doctors that doubted you and say, "IN YOUR FACE!!!"

      Oh, and I ran a low grade fever every day for a year! It went away (like the other 100 symptoms did...ha ha) after I was gluten free a couple of days.
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    8. hnybny91 added a post in a topic Confirmation   

      My Dd went gluten free about a month after I did because she has had sever stomach pain since she developed a severe bacterial infection from a ruptured apendix when she was 13 (she is 18 now.) Well the other day she ordered lettuce wraps from PF Changs. She had never eaten there in her pre-gluten free days so she just assumed that the only lettuce wrap they offered were the gluten free ones so she just ordered "lettuce wraps" instead of "gluten free lettuce wraps". She actually had to call in sick the next day she felt so bad so she got her "confirmation" too
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    9. hnybny91 added a post in a topic Goddd I Need Some Help!   

      When I first went gluten free I didn't care what I put in my mouth as long as it was gluten free. Figuring out that I was not able to eat gluten at least made me stop GAINING weight but it was not until I cut out all of the gluten free substitutions and eventually ALL grains that helped me to start LOSING weight. I follow more of what they call a "Paleo" diet now and the weighth is steadily coming off.
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    10. hnybny91 added a post in a topic Igg Results High To Gluten, Gliadin, Wheat But Not To Corn?   

      I did the food sensitivity testing which was the IGg testing. It tested something like 180 foods and spices and I also came back positive for almost all fish/seafood, egg whites and both bakers and brewers yeast (which means I can't even eat gluten free bread)
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    11. hnybny91 added a post in a topic I   

      UGH....Is April "Be a bad friend" month ot what? This is one of many "friends who don't get it" threads I have read in the last few days. We just have to be careful what we put into our mouths people! It is not like we have a communicable disease or are drama queens/kings for gosh sakes!
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    12. hnybny91 added a post in a topic Annoying Friends!   

      I just don't get why people are like this about those of us that can not eat gluten. You would never be so rude to someone with a peanut allergy. I know celiacs is not an allergy but just because we do not experience or troat closing up does not mean it is not a real health concern.

      If I were you the next time they started belittling your dietary concerns I would firmly tell them that this way of eating is SAVING YOUR LIFE and they they needed to shut up about it. But, I can be abrasive about things like that...LOL
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    13. hnybny91 added a post in a topic Finally Diagnosised With Celiac's   

      I was very angry when I figured out what was wrong with me. After reading a site on celiac disease I had practically every symptom and was very angry that not one doctor I had seen over the last four years had put the pieces together. I went gluten free on my own and was feeling like a normal person again after only one week. It took me months not to feel angry every day over it. Congrats on finally having a diagnosis and welcome to the boards
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    14. hnybny91 added a post in a topic Shin And Thigh Bone Pain   

      My very first symptom four years before diagnosis was hip pain. By the end every muscle and bone in my body hurt. It all went away after going gluten (and eventually casein) free.
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    15. hnybny91 added a post in a topic Cap'n Crunch: Potential Enemy?   

      Oats do not contain the same protein that make us sick but most oats are cross contaminated so unless you find a dedicated manufacturer then it is best to stay away from them. I myself react to all oats so that isn't even an option for me.
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