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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About joerockstar

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    1. joerockstar added a post in a topic Question About Doctor's Recommendations   

      Thank you Skylark and Mushroom! We're both positively ecstatic at how she's progressing on the diet, it's almost miraculous. She's lost 4 lbs this week already, has had NO stomach distention at all, and hasn't had any stomach acid despite not taking her Aciphex for the last few days. Her energy levels continue to climb, our kids are amazed to have their mom back, and I have the pleasure of getting back the happy, outgoing, energetic woman I fell in love with so many years ago! Fighting back tears of joy as I type this....

      I just called and told her to pick out one of those sexy outfits that she hasn't fit into in a while 'cause I'm taking her OUT on the town tonight to celebrate (gluten free of course, lol)!

      Thank you all for creating and contributing to this wonderful resource, I'm sure it has saved people's lives both figuratively and physically!
      • 1
    2. joerockstar added a post in a topic Question About Doctor's Recommendations   

      Thank you for the replies Skylark and PattyK!

      To add insult to injury, we looked at the form the gastroenterologist filled out for her tests. This genius DID NOT EVEN CHECK THE BOX TO LOOK FOR CELIAC DISEASE! He checked boxes for diarrhea and IBS, which was what he (mis)diagnosed her with 5 years ago. He even left unchecked abdominal pain and distention, which were her 2 biggest symptoms! Guess his ego won't allow him to be wrong in his original diagnosis.

      Wife just returned from new gastroenterologist. What a difference! The guy told her he wouldn't DREAM of telling her to eat gluten again since the diet has helped her so much. They're doing only an endoscopy next week to check for damage, if there's none, stay gluten free and enjoy your life! No meds, no need for colonoscopy since she had one less than 5 years ago, nothing! Gives me faith that there ARE some good ones out there!
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    3. joerockstar added a topic in Celiac Disease - Doctors   

      Question About Doctor's Recommendations
      Hello folks! This is my first post here after my wife and I came to the conclusion that she has either celiac disease or non-celiac gluten intolerance.

      Quick history - my wife has been suffering from various stomach/intestinal problems for over a decade. She's had colonscopies, endoscopies, CAT scans, etc. She's had every diagnosis from hypothyroidism (ruled out), colities (no evidence of irritation in the colon), to the good ol' catch-all IBS. After reading until our eyes fell out, we stumbled upon information about celiac disease. The more we read, the more we realized that this just might be the answer we've been seeking for so many years.

      Last Thursday, she started on a gluten-free diet. By the VERY NEXT DAY, she had a TON more energy, her vision seemed less blurry than it had been, and her overall sense of well-being was greatly enhanced. We're thrilled as you can imagine! She used to have to take a nap after work every day, no longer required. She'd been taking Aciphex for stomach acid - not necessary any longer.

      To be on the safe side, my wife scheduled an appointment with a gastroenterologist. This was the same guy who gave her the IBS diagnosis so I was skeptical from the start. Earlier this week, her family doctor performed the celiac blood test, which came back negative.

      I'd like the forum's opinion on what he is recommending:

      1. He dismissed the blood test completely and wouldn't schedule another one.
      2. He said "A gluten-free diet is not the best thing for you." and wants her to go BACK ON GLUTEN.
      3. Immediately wanted to schedule the full RotoRooter treatment, endoscopy, colonoscopy, etc.
      4. Gave her free samples of the latest and greatest fix-everything-but-take-for-the-rest-of-your-life stomach meds (prescription of course)

      His statement about gluten-free diet not being the best goes against EVERYTHING I have read, including the fact that people who stay on the diet typically live 7 years longer than the average person! I also read that there are NO treatments for celiac or gluten intolerance beside eating a gluten-free diet, so why is he recommending meds?

      I'm skeptical as stated, but my wife wants to make sure there's nothing else seriously wrong. I have convinced her to seek a second opinion thankfully, but was curious what you guys thought about his suggestions. The thought of her going back to gluten after the radical changes she's experienced just breaks my heart. Thanks in advance!
      • 15 replies

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