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anewlife

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About anewlife

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  1. My son and I have both been diagnosed with h-pylori and have been prescribed Pylera . I cannot find any information as to whether or not it has gluten in it. It is a new drug so I believe it may be gluten free but not on a gluten free drug list. Has anyone had any experience with this drug? Many thanks!
  2. Thanks! How do I contact a member?
  3. Our family is planning a trip to Maui and I was wondering if anyone had any recommendations for safe gluten-free dining. We will be in the Kihei area but are always willing to travel for good food! Also, does anyone know if the shave ice syrup is safe? I am dying for shave ice and can't find an ingredient list anywhere! Mahalo!
  4. I struggle with migraine headaches and try to manage them with advil, ice and rest. I also use tylenol for minor headaches. I have been noticing that I have more stomach issues when I use these meds so I called tylenol and while they told me that most of their products are gluten free, the list of ingredients they had and the list I had on my box were different. They did not have pregelatinized starch on their ingredient list and could not tell me if it came from a wheat source. They said they would call me back and I have not heard from them as of today. Then, the owner of a gluten free market in our city told me that she was notified that Advil was no longer gluten-free, though their website still says it is. I am continuing to look into this but meanwhile, any suggestions of gluten-free pain meds? Should I look into compounding ibuprofen? I think that Alleve is ok...but I am nervous. Thanks
  5. I struggle with migraine headaches and try to manage them with advil, ice and rest. I also use tylenol for minor headaches. I have been noticing that I have more stomach issues when I use these meds so I called tylenol and while they told me that most of their products are gluten free, the list of ingredients they had and the list I had on my box were different. They did not have pregelatinized starch on their ingredient list and could not tell me if it came from a wheat source. They said they would call me back and I have not heard from them as of today. Then, the owner of a gluten free market in our city told me that she was notified that Advil was no longer gluten-free, though their website still says it is. I am continuing to look into this but meanwhile, any suggestions of gluten-free pain meds? Should I look into compounding ibuprofen? I think that Alleve is ok...but I am nervous. Thanks!
  6. I'm sorry you are not feeling well. Is it gluten? Hope you feel better soon. I am slowly healing. Feel a bit better today. It is so nice to have others to talk to who understand!
  7. Yes that is true! I would just like someone who is experienced to follow me with this disease. My Rheumatologist doesn't know much about Celiac. She said it was just a hunch!
  8. I was making dinner for my parents and made stew with egg noodles. Not planning to eat any of it myself I didn't use gluten free product. What a mistake! The flour filled the air and I know I breathed it in. And then to top it off, I "tasted" a noodle to see if it was done. AARGH! After I swallowed it, panic slowly came over me. "Throw it up" my family cried. But alas I was stuck. The first night I seemed ok, just some bloating. But now two days later I still feel like I have the flu, headache, fatique, bloating, foggy brain, even a recurrence of interstatial cystitis. Does anyone know of anything that might help me recover from this poisoning or how long I can expect it to last? I have learned that I cannot cook with gluten, even if it is not for me!
  9. Thanks so much! I didn't know what to expect and this has been alittle frightening. I just realized I posted this in the wrong section! Should I repost? I would love to hear other's experiences. Thanks again?
  10. I am trying to find a good GI in the Sacramento area although I would go to the Bay area or Stanford if needed. I saw a GI doctor recently who wanted me to go on a gluten challenge for a definite diagnosis of Celiac. I had gone off gluten myself and was diagnosed by blood tests and symptoms by my rheumatologist. I don't think a gluten challenge is wise after all I have read and would like to find a doctor experienced with Celiac disease and Gluten intolerance. Any advice?
  11. I have pelvic pain and it was diagnosed as Interstitial cystitis - inflammation in the bladder. It is related to several autoimmune diseases including celiac disease. I was diagnosed by an Urologist but my gynecologist first did an ultrasound of the pelvic region to rule out other issues. Hope you can get to the bottom of it. I know it can be so uncomfortable! I like using a heating pad when it is most uncomfortable. Take care
  12. I was making dinner for my parents and made stew with egg noodles. Not planning to eat any of it myself I didn't use gluten free product. What a mistake! The flour filled the air and I know I breathed it in. And then to top it off, I "tasted" a noodle to see if it was done. AARGH! After I swallowed it, panic slowly came over me. "Throw it up" my family cried. But alas I was stuck. The first night I seemed ok, just some bloating. But now two days later I still feel like I have the flu, headache, fatique, bloating, foggy brain, even a recurrence of interstatial cystitis. Does anyone know of anything that might help me recover from this poisoning or how long I can expect it to last? I have learned that I cannot cook with gluten, even if it is not for me!
  13. I originally went gluten free on the recommendation of a rheumotologist who thought that I had gluten sensitivity. I did not test positive in any of the blood tests done a couple years ago but had a positive finding in anticliadin antibody a long time ago. Based on my symptoms, abdominal pain, fatique, weight loss, osteoporosis, vit d deficiency, bloating, constipation, joint pain..... she recommended a gluten free dairy free soy diet. I began the diet but then was advised to have the endoscopy done so that I would know for certain if it was Celiac. So I ate gluten for a week or so and had the test done. It was negative in appearance and biopsy for Celiac. However, I continued on the diet and did find some improvement in energy, my vit d improved, my periods started again (had not had one for 9 months) but I am still having alot of abdominal pain. So I went to a GI doc to see if I had something in addition to gluten sensitivity and he is questioning the diagnosis. Long story, I am sorry. What do you think?
  14. I have been on a gluten free diet now for almost four months. I had a endoscopy which was negative for celiac disease but there was some question about its veracity since I had not been eating gluten prior to the test. The GI doc wants to do a "gluten challenge" and recommends that I eat 2 saltine crackers a day for three weeks. Then he will repeat the endoscopy. I am concerned because I have read that you need to eat about four pieces of bread a day for at least a month to get an accurate testing. Does anyone know how much gluten should be eaten and for how long? Thanks so much for the advice.
  15. Has anyone tried the new chex cereals? I am GR, DF and soy free so am limited to the Honeynut version. It is delicious but I did notice some tummy aches in the days following eating it for breakfast and midnight snack. I am still trying to figure out why i am continuing to have pain so it may be an ingredient in the cereal but was just wondering about other's experiences. Thanks!