This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
It sounds like restless leg which can be caused by a low iron. I was having really bad restless leg and my iron was extremely low but once my iron started coming up it got better. My doctor is the one who said it can but not always can be because of a low iron.
I don't know the answer to your question but I have something that sounds exactly like that. I have a patchy area on one knuckle that gets really itchy, red and I can feel little bumps. The area gets dry and cracks which really hurts. Everytime this appears on my knuckle I have some sort of area on the opposite hand on my pinky finger on the outer side. It looks blistery and really itches. I am going see a dermatologist soon but I am worried I want have this when I go. Mine comes and goes, so I have wondered if it is DH or not. Would be interested in hearing what you find out.
Before I went gluten free I was sleeping so much and so exhausted that I really thought I was dying. I had other symptoms such as joint pain, migraines, bloating, gas, severe brain fog and abdominal pain. I had no idea they were all connected and was all because of FOOD!!! I have two small children and felt like the worst mother and wife but knew I was truly doing the best I could.
After being diagnosed and starting the gluten free diet I started feeling better within a couple of weeks. Hang in there it will get better and don't be so hard on yourself. There is a learning curve but it gets easier.
I know how frustrated you are feeling because I was just wanting someone to tell me definitely I did or did not have celiacs. Unfortunately it isn't always that easy because soooo many doctors are ignorant ont the signs and symptoms of celiacs, the proper test to run and how it is treated. I had a gastro doc tell me there was not way I could have celiacs because I didn't have diarrhea everyday. I had initially found out I had a problem with gluten by my primary doctor who really didn't have a clue about how it is treated. She told me I would be able to start eating gluten again in six months(go figure). Anyway I did a ton of research on my own went to a GI doc (prior to this I did the genetic testing because I wanted to know if I even had the gene, which I do I have a double DQ8) who was suppose to be a little up on celiacs but obviously he wasn't. After me informing him of everything I knew and that he didn't he wanted to refer me to a specialists who specializes in celiac. Since it was only a three hour drive my husband and I went afraid we were going to be told information that we knew was wrong but was pleasantly surprised. She was extremely informative and helpful and was going to write a letter to the doc that referred me and tell him a few things. She actually knew him because at one point years ago she taught him in medical school.
You know your body better than anyone and don't give up on finding the correct diagnosis. I would recommend changing doctors especially considering you have "blunted villi" which I was under the impression was from celiacs. The gluten free diet isn't easy in the beginning but it does get much easier. I haven't read anywhere that it's harmful if you don't have celiacs. As for being more expensive I disagree, it has made me eat healthier and eliminating eating out so much. I started feeling better within a couple of weeks so I didn't have any desires to ever eat gluten again.
This forum is awesome so keep looking for support to get through the tough and frustrating times.
Hi, my B12 was in the low 200's too, I was having the same symptoms memory loss, brain fog, off balance, clumsy and my doctor has me taking B12 sublingual. Also they need to check your Vit D level, iron, ferritin and thyroid panel. My vit D, iron, and ferritin were almost non existent. I have learned so much more from this board than I did from the doctor that found out I had a problem with gluten. Some doctors may be able to diagnose celiacs but they have no idea about treatment and the in's and out's of the disease.
I know it is so frustrating all of the ambiguity you get from the doctors but be your own advocate, keep researching and asking questions.
I am a mom to two beautiful daughters both adopted internationally. I live in the south and love animals (5 dogs). I am a CRNA-certified registered nurse anesthetist (anesthesia). I love to read, spend time with my childeren and husband, and go to the beach.
Hi, I know it is so frustrating when you just want to know which one. I was recently diagnosed as having a problem with gluten and told by my doctor to go gluten free, she ran a celiac panel and sent me to a nutritionist. The blood test was negative but by the time I found out, I had been gluten free over a month and feeling so much better. Since I had been gluten free having an EGD w/ biopsy was useless and I didn't want to start eating gluten again to have the test. I went ahead and did the genetic testing with Enterolab which came back a double DQ8 gene. Mine could be just gluten sensitivity but I wanted to know first if there was even a possibility genetically to have Celiacs. I have seen a specialist who treats over 600 celiac/gluten sensitive pts. a year and she said she feels like it is Celiacs but officially diagnosing it as such really can't be done without positive blood test/positive biopsy. It really doesn't matter in the end to me which one it is now because as I understand it both have consequences if you eat gluten. I will say I was like you in the beginning, I wanted to know because if it wasn't celiacs then worrying about CC wouldn't be as bad. The doctor did tell me once you are gluten free and you are "glutened" your symptoms can be more severe.
Good Luck and I hope you find your answers soon!
Hi, I was just diagnosed before Thanksgiving. My doctor recommended probiotics and digestive enzymes as part of the process. I know alot of people tend to have secondary problems such as a problem with dairy, which is what I have. Hang in there and I hope you get to feeling better soon!