This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
I can believe this story because my gastroenterologist didn't have a clue about Celiac disease and really discovered it by accident. In follow up conversations I new more then he did. This seems to be the norm. Medical schools do not give much credence to many of the autoimmune diseases that seem to be so common like Celiac disease: 1 person out of 133 sounds like an epidemic to me.
In addition to this forum there are a lot of support groups you can contact in your area depending on where you live. Google support groups on your computer for your location and then try several of the meetings. I have found that they were extremely helpful to me and I continue to go. Plus I met a lot of new and interesting people and made a few new friends. I have not found any downside to going to Celiac support meetings.
My gastroenterologist finally figured out what was wrong with me however it was by accident. I was only diagnosed in November of 2009 but I have discovered that most doctors don't have a clue about Celiac disease. As Wolicki said most Celiac's have figured out for themselves. Then we had it confirmed by a "medical professional". Have you been tested for any type of peanut allergy?
As I am sure you have noticed nothing in the gluten free world is inexpensive. I buy alot of my nuts, almonds, walnuts, pistachios at Aldi's which seems to have the best prices. Sorry but I am not familiar with what's available in Canada.
Keep in mind that Celiac Disease is an inherited autoimmune disease. If other people in your family have an symptoms similar to what your husband had before he was diagnosed then they should be tested. The problem with the testing is that unless the doctor actually looks inside the small intestine, endoscopy, the other tests are not conclusive proof that one has Celiac Disease. I had numerous blood tests and the only test that found and confirmed Celiac Disease was the endoscopy down the throat into the small intestine.
Your biggest problem is not just be careful of what you eat but with cross contamination when you go to social events, restaurants, and family/friend"s houses. It takes some getting used but most of the people on this forum, including me diagnosed in November 2009, have found ways to prevent from getting sick through contamination. Easy no. Doable yes. Just be patient and stay tuned to this forum.
Thanks for the response Jerseyangel and your friends psawyer and kareng. Not to ignore psawyer (4,000+ posts is also a lot) but kareng has over 3,000 posts in little over a year which is also amazing. What's your story?
I am a financial writer, speaker, and author and it seems like one of the few men on this forum. I also teach financial topics in various colleges and universities near where I currently live in Southern Indiana. Previous careers included US Treasury Dept., tax accountant, insurance sales manager, stockbroker. Just about anything financially related. Love to read. Walk a lot. Volunteer, when I have time, at the local hospital. Nice to meet everyone.
If a Celiac continues to eat gluten, the gluten will do permenant damage to the small intestine which in turn could lead to cancer. Everyone is different but I can't see how the abdominal pain is going to get any better not considering the damage that is being done. You really need to think about this.
In my first year of being gluten free I felt like hell. Tired, nausea the usual stuff. I got rid of the tired feeling by exercising more, taking supplements, and especially vitamin b-12, shots or drops. Once my gut and I adjusted to each other things have improved immensely. Check with your doctor and see what can be down. These things may not work for everyone but you won't know until you try.
I currently live in Indiana but does it really matter where we live? There is a tremendous amount of support and information on this forum as you will see if you just ask. Your new lifestyle, not diet, is a difficult thing to adjust to but not impossible. Once you get past the foods that you can't eat, and you will, you will experience new, healthier, and better foods. Just give yourself time and stay involved in this forum. Also, you may want to look for a Celiac support group in your area. Google it on your computer and/or ask for some direction on this forum. Lots of people here to help so don't be shy.
I fight with nausea just about every day also. The only thing that has been helping me is "crystalized ginger" which I buy at the local health food store. Medical marijuana is supposedly the best thing for nausea but I have never tried it. You really should talk with your doctor and insist they listen to you. Be diplomatic but aggressive with your doctor. Most of them don't have a real clue on what we go through.