snowbug replied to snowbug's topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)Thank you so much for your reply. We're in Geneva, Switzerland....we actually contacted the hotel about our situation before we came here and they said it would be no problem. When we arrived that morning they seemed to know us by name and brought a basket of "gluten free" pastries to our table. I was like a kid in a candy store: gluten free Swiss chocolate croissants, who wouldn't eat them? I'm pretty sure looking back that maybe only the croissants were gluten-free and that the bread in the basket was regular. No one seems to know what we are talking about when we ask for gluten-free food. Last night I had to send back an entree and they replaced it with fish wrapped in pastry. Today my stomach has calmed down, but I feel kind of flu-like...without the flu. As for the biopsy, I don't think I can have one now I've been eating gluten-free for almost six months. There is NO WAY I would ever try a gluten challenge at this point.
snowbug posted a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)I'm hoping people with experience can help me. I'm new to all of this. Background: I've been gluten-free for five months for treatment of Chronic Fatigue/ Fibromyalgia. Despite not having positive blood tests, my physician encouraged me to try being gluten free as I have a high ANA and very low ferritin. For the past three months I've been feeling better than I have in years. Current Situation: I'm on vacation in Europe with my husband. Traveling has been challenging. The other day I ate nearly a full basket of bread and pastries that the hotel told me was gluten free (after days with no bread products, I went a little crazy). I'm starting to think that perhaps it was just normal bread. Since that breakfast, I've been feeling awful. Worse than I did before starting the gluten-free diet. Day 1 - diarrhea and cramps all day Day 2 - fatigue and scary-bad acid reflux Day 3 - body aches all over, headache, fatigue...can't move from the hotel room. Is this what being 'glutened' feels like? Could it have been the bread? How long will I feel this way? Is there anything I can do to feel better? We have only two days left and I haven't left the hotel. Please help!