This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
I've eaten gluten free food on several airlines without any major problems, but I think it really depends on which airline you're using. A few times I've been served meals where certain portions were labeled gluten free, but other, pre-packaged items such as crackers that were clearly NOT gluten free were included (I'm looking at you, United Airlines!). I always bring extra food anyway, in case of delays, cancellations, mistakes with the meal, etc. I don't mind eating most things cold - I bring stuff like tacos, sandwiches, sliced sausages, fruit, raw vegetables, nuts - but if you want hot food, you could get a good thermos and fill it with a meal that isn't too liquidy and it should be find at security. I've found that my stuff often gets flagged for an additional search because food items are hard to identify for the screeners, but I've never had anything confiscated once they see what it is.
Not sure if they have bullion, but we buy Pacific Natural Foods broths/stocks a lot. I believe most, if not all, of their stocks/broths are gluten free, and they're also free range/organic. Whole Foods carries them, and I occasionally see them at regular grocery stores. I'm sure you can order it online, too.
I haven't tried it, but McDonald's has had gluten free buns for years in the Scandinavian countries, where celiac is especially prevalent. So they may have good practices established over there that they're trying out here now. Not going to rush out to try it, but i wouldn't mind eating a Big Mac once in awhile if they can do it safely.
I was in the LA area for Thanksgiving, and I ate twice at True Food Kitchen in Newport with no problems - and I'm pretty sensitive. Food was very good, too - a little pricey, but I definitely felt safe there.
I've been to France a few times since being diagnosed and I didn't have any issues. I was only in the Paris area, and, while it wasn't widely known, no one gave me a hard time for my requests, or doubted that celiac existed. Biggest problem I found was them not really understanding what was/was not gluten free, but I was with French colleagues and I had my celiac restaurant cards, so it wasn't a big issue. In general, I would say it's easier to avoid gluten over there than it is here.
But anyway - there's a couple of 100% gluten free places in Paris now - a couple of bakeries and at least 1 restaurant. I haven't gone to the restaurant yet, but i visited one of the bakeries - Helmut Newcake - and it was really good. They also had a decent selection of packaged gluten free goods.
Huh - that's not the response we've gotten from Penzey's before. First, we were told at the actual store that they don't use gluten at all. Then my husband called to confirm, and they told him that they DO use gluten in a couple of their products, and he was also told that everything is processed on shared equipment. I still think their stuff is pretty safe, but interesting to get such different responses.
Just a note on Green's - they used to make 3 kinds which were all from gluten free grains (blond, amber and dark - I think from buckwheat, sorghum and rice). Apparently, they're still making these types, but they've also started making beers from 'de-glutinized' barley. I don't know whether these beers are being sold in the U.S. yet or if they're just in Europe - but thought I would throw it out there that people having a reaction to Green's may want to confirm that they're drinking the ones made from non-gluten grains rather than the ones that contain the de-glutinized barley. Was disappointed to see that they're doing this, but so it goes.
The only 100% gluten-free brewery I've heard of in the U.S. is Harvester in Portland, OR - they do use certified gluten-free oats, though, so some may have a problem with that. Supposedly, a 100% gluten-free brewery will be opening sometime in the next year in Madison, WI, too.
Harvester is completely gluten free (they've been certified, I think) and by far the tastiest gluten free beer option. I visited there when I was in Portland last year. They use certified gluten free oats in some of the beers, so that's something to be aware of for people who have oat issues. Unfortunately, they're pretty new, so their beer is only available in Oregon and sometimes in Washington - they offer shipping to many states, too, but that gets pricey.
Of the widely available gluten free beers, New Planet and Green's are the best. The one from Alchemist is really good, too - but I've only seen it in the northeast. Reminded me a lot of Blue Moon.
I've taken food with me a bunch of times to Europe (including Germany) and I've never had problems - I've brought in fruit, sausages, lara bars, nuts, dried fruit, etc. I think there's always a chance something could be confiscated if you get checked at customs, but I don't think it's likely.
A no grain diet doesn't have to be low carb - can you eat things like potaotes, sweet potatoes, squash, pumpkin, bananas, plantains? Baked potatoes and sweet pototatoes are pretty good cold, as are pancakes made of shredded potatoes or sweet potatoes. Can you eat honey? That could be a good energy source, especially mixed with some almond butter.
You should check out some of the paleo sites, like Mark's Daily Apple - there's a lot of people on their forums that do endurance events on a grain-free diet.
I did the Whole30 diet for a couple of months. It eliminates all added sugars, all grain products, all processed oils, dairy, legumes and alcohol. Basically, you just eat fruits, vegetables, meat, fish, eggs and nuts for a month. They've got a stricter version that also eliminates nuts and eggs, and nightshades. I just started the re-introduction phase by adding corn over the weekend - they have you add something back for 1-2 days, see how you feel, and then try the next thing for 1-2 days. I felt pretty good on the diet - good sleep, fewer problems with seasonal allergies, etc. I think a lot of it was lowering my sugar, yeast and alcohol intake, and eliminating cross contamination from 'gluten free' processed foods, as I'm pretty sensitive.
They've got a website and book - I didn't bother to read the book; the website has pretty much all the info you need, as well as a good forum.
Risoterria is AWESOME. I've been to New York twice since diagnosis and have made a point to eat there both times. Almost everything is gluten free, the Risotto is great, they've got a huge selection of gluten free beers, and they've got great baked goods. They even make a gluten free 'twinkie' that tastes much better than the real thing! If I lived in the area, I'd be there all the time.
I would add that it's a tiny, tiny restaurant, so it's best to go at an off-peak time or to be prepared to wait outside, as they don't have much of a waiting area. But it's totally worth it!
Vienna is an amazing place - but I can imagine it's really difficult for a celiac there. I'm sorry the food issues are getting you down!
I don't know how good your German is or how long you'll be in Vienna, but the Austrian celiac site has an upcoming meetup in Vienna scheluled in a few weeks. I pasted the details for you below.
Mittwoch, 19. Juni 2013, 18 Uhr
Wien 8, Florianigasse 3
weitere Details zur Veranstaltung