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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About JonnyD

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    1. JonnyD added a post in a topic Eosinophilic Esophagitis   

      Posting a follow-up on this.  I haven't been on the site for a while.
      I recently went dairy free (in addition to gluten free for celiac) and had an almost immediate positive response in my EoE symptoms.  My doctor gave me a recent study on EoE and the two leading allergens by far were identified as wheat and dairy.  I'd been suspicious of other allegens (rice) but don't think I was on the right track as my approach was not a deliberate elimination diet.  It was probably more correlation than causation as the butter/cheese were probably the real problems when I had rice.  I also initially consumed a lot of dairy products when I initially went gluten free which could explain my sudden increase in EoE issues.  For now, I'll be staying dairy free and gluten free until early december when I get scoped. 
      For those looking for tips on EoE, I'd suggest starting with eliminating wheat and dairy first.  Of course, you can have multiple allergens but these two categories seem to account for a large majority of the cases. 
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    2. JonnyD added a post in a topic When To Wean Of Antidepressants   

      I was diagnosed celiac almost 2 years ago now. I recently started generic zoloft (sertraline) at the 50mg level. It's been a couple months and I plan to give it at least a year before deciding to keep it or go off.

      I'd caution you about making too many changes at once. When you do that, you don't know what's causing the effect. Is a bad day from a glutening or a result going off the antidepressant? I'd suggest getting a handle on the gluten free lifestyle first. It took me a good year to be fully comfortable on it.
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    3. JonnyD added a post in a topic High Eosinophils   

      Not sure where you live but Cincinati Children's has a specialty clinic set up for Eosinophilic Disorders and I think they're one of the few that offers this. You can find out more with a quick internet search. My experience has been that GI and Allergy doctors tend to know some info about eosinophilic disorders but not a complete picture. At least I haven't found one yet although I'm not actively searching either. It's a relatively new field and might be worth seeing an expert in this new field. And I share your frustrations on what to feed your daughter. Good luck!
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    4. JonnyD added a post in a topic High Eosinophils   

      Sorry, I don't have the eosinophil count. I need to request a copy of my records because I've had that question before. Sorry. I saw images from my scope though and it was textbook EE.

      I didn't have any noticable symptoms of EE other than occasional food getting caught in my esophagus (dysphagia). I started with the skin test too and only had celery show up (not part of my regular diet anyway) as the only allergen. I don't know if a skin allergy and EE are the same. I hesitate to give advice and can only say that rice is what I determined after keeping a very detailed food journal for 6 months plus reading on the side. I have no way of knowing if that's the only allergy but eliminating it from my diet has certainly helped. Others with EE have problems with peas, milk, etc... I'd have to be very diligent for a couple weeks and then get scoped to know for sure. I don't know if that's worth the info I get at this time.
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    5. JonnyD added a post in a topic High Eosinophils   

      I've been diagnosed with Celiac and EE too. From what I read, it's more common in boys than girls. In a first attempt to solve the EE, I tried swallowing Flovent for 12 weeks and had some success with it but the symptoms came back almost immediately after stopping the med. But, I'd rather not take a med if I don't have to.

      EE is essentially an allergy so I opted to try to find the trigger. I kept a food journal for most of the year so far to determine the trigger for my EE. I was somewhat stumbled onto the trigger - Rice! I read excerpts of several books on food allergies to help come to this conclusion, along with the food journal.

      Having celiac and avoiding rice is a real pain but I haven't had any problems since I stopped eating rice and products with rice in them.
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    6. JonnyD added a post in a topic Pediatric Gi In Cleveland   

      Judy Splawski is really good. We used to take my oldest daughter to her and were always happy. She's very nice too.

      I too stay away from the Cleveland Clinic.


      Disclaimer: Not sure if it matters but my oldest did not have celiac but we saw Dr Splawski for other GI issues.
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    7. JonnyD added a post in a topic Very Hard To Lose Fat   

      I'd suggest counting calories and/or reducing what you are eating. I've been pretty active for a long time and only recently started dropping weight but it's correlated with fewer calories. Be real careful of portion size and how much you are eating in the process. Even if you are eating the 'right stuff', you won't start dropping if you're consuming too much of it. Try a food journal to keep track, it helps. Good luck.

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    8. JonnyD added a post in a topic Kind Of New To This   

      I was diagnosed at about the same time and have been gluten free since. I was also diagnosed with Eosinophilic Esophagitis. From what I understand, multiple auto-immune disorders are common. I recently started a food journal to try to figure things out with my diet. It's a bit of a pain but worth it. I found it best to keep a pretty simple diet in the meantime.

      Good luck!
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    9. JonnyD added a post in a topic Help! Biopsy? Should I Do It?   

      Completely your call. If it were me, I'd stay on gluten for now and have the biopsy. Knowledge is power. Plus, positive bloodwork with a positive biopsy make the diet easier to stick to.
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    10. JonnyD added a post in a topic Is Your House Completely gluten-free? If Only One Of You Has Celiac?   

      We have a shared house. Our house is full of gluten products. Most dinners are gluten free. We have shared cookware (with some dedicated gluten-free ones too) and it hasn't been a problem. I must react to a higher level of CC. But, I do wash my hands all the time and my wife is good when gluten-free preparing meals. A total gluten-free house just wouldn't work for us right now. For the most part, I'm just really careful when it comes to eating at home.
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    11. JonnyD added a post in a topic Symptoms Changing?   

      I was diagnosed with Celiac as well as Eosinophlic Esophagitis (EE). I've been gluten free for almost a year now. But, I've often experienced the throat clogging from the EE. For EE, your esophagus reacts to an allergen in your diet and flares up for 12 days. I've recently started a food journal to see if I can narrow down what's bothering me. If you do ever get a scope and biopsies (the only way to get a 'true' diagnosis), EE's something to have them check for.
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    12. JonnyD added a post in a topic Steps For A True Elimination Diet   

      Thanks for all the input. I'm formulating a diet right now and am hopeful that I can identify my other food issues.
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    13. JonnyD added a topic in Celiac Disease - Coping With   

      Steps For A True Elimination Diet
      Hi, All,

      I hope you can help. I've been gluten free for almost a year but still suffer from an allergy to something(or multiple things?) in my diet. I'm going to have to do an elimination diet soon and am hoping for some advice. Just so you know, I've been allergy tested but those results all came back negative. A strict elimination diet is the only way to determine what's still bothering me.

      But, apparently, an elimination diet means different things to different people and there's a lot of conflicting infomation out there.

      For any who have had success with an elimination diet, can you describe the safe foods you started with and the process you went through to re-introduce/challenge foods?


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    14. JonnyD added a post in a topic Eosinophilic Esophagitis   

      Thanks. I'm going to have to do the Elimination diet. My food allery tests also came back negative across the board but I've been still having problems.

      How did you undertake the elimination diet for your daughter? What foods did you start with and how did you re-introduce other foods? I've seen conflicting information on how to follow this.


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    15. JonnyD added a post in a topic Newly Diagnosed   

      I was diagnosed celiac via bloodtest. During my scope, I found out that I also have Eosinophilic Esophagitis (EE), which is another auto-immune disorder affecting the esophagus. I've read a lot about it and even tried medication with some marginal success. My throat is often 'tingly' after I eat and I've occasionally gotten food caught in it when it's really inflamed. I think I recently stumbled onto the allergy that triggers my EE to get bad - Rice! I've been gluten free for about 11 months now but my throat was really bothered since most of my replacement foods were rice-based. I quit rice a few days ago and have had improving symptoms ever since. I'm hoping this is the culprit since I don't want to have to do a full elimination diet to identify any other potential triggers.

      I'm only mentioning this as a possibility since you specifically mention the throat as a problem.

      You could start keeping a food diary and see if your throat is more bothersome when you eat certain foods.

      Good luck!
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