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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About hockeymomofceliacchild

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  • Birthday 11/09/1973

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  1. DH and negative blood panel - how to progress?

    My son was diagnosed at 7 with celiac and at the time I was assured it was just eczema by my doctor and dermatologist. My brother has DH so I was certain that was the case and I pushed for more answers. His blood work was off the charts high and they immediately did a scope to prove for certain there was damage to the small intestines, meaning celiac. I have heard that people have negative blood work and still have celiac. Is there anyway you could convince your doctor to do the scope. Or in my brothers case his doctor simply did a tissue sample of his rash and confirmed that way. My son had his rash on backside, back of neck, elbows, arms etc.. My brother told me it would not go away for at least a year but some wonderful person on this forum informed me of the relationship of iodine/sodium and how it reacts to the gluten and comes out as a rash. (Sorry my medical lingo and proof is limited) I mentioned it to my brother who had a very high sodium intake at the time and thought it was interesting that my sons rash cleared much, much faster than his had, so possible truth in the information.  My my son never had stomach issues but damage to intestines was still present. We only know if he has had trace amounts of gluten by his rash reappearing slightly then we try to figure out where and when we messed up. Other than that he is a very healthy 11 year old now who has colour in his cheeks and meat on his bones now.  I strongly suggest if you aren't getting answers to just do the elimination of gluten diet and remove all iodine and see if it clears up. Reintroduce if you need confirmation and see if rash returns. Sometimes we just need to take our health into our own hands but hopefully your doctor is on board with a tissue culture or scope.  I truly hope you get answers fast so you can start healing up it is very frustrating not knowing what the problem is. Take a look at your surroundings too. It's bizarre sometimes what people can be allergic too. environmental allergies can affect you this way too. I don't have celiac but years ago I discovered I was allergic to geraniums after breaking out in a head to toe rash that drove me mental. In my case however it was simple to diagnose because I worked in a greenhouse. Good luck to you! 
  2. Gluten Free Store In Owensound Canada

    THE GLUTEN FREE HOUSE - Our entire store is GLUTEN FREE! FOR ALLERGY DIETS AND HEALTHY LIVING Phone: 519-470-4040 899 10th Street West, Owen Sound, ON
  3. My friend e-mailed me this today. I have to check it out myself but thought I would pass the info on for anyone interested. Any feed back from people who have been here or ordered on-line from here would be greatly appreciated.
  4. To answer your questions briefly (I'm no expert just learning too but seem to becoming an expert thanks to this group ) Yes, Celiac Disease is genetic. If he has had this many problems from birth and you yourself have just been diagnosed then he needs to be tested asap. Do NOT take him off gluten until after his blood work and scope. The plus side to celiac is that when diagnosed, the simple step of eliminating gluten the body then repairs the damage to the small intestines. If you take him off gluten too soon before diagnosis he can get a false result. We had a fairwell to gluten week for my son before his scope because I was very sure he had it. I asked him what foods he would miss the most and we ate that the week before his test. Then of course we found gluten-free versions of the same (still havent found pogo's yet though ) It is normal to feel the way you do, take it one day at a time if he does have it. As you say it is actualy a relief knowing what the problem is and the symptoms disappear quite quickly when you learn what does and doesnt have gluten in it. ( I joined the canadian celiac assosiation and recieved a small pocket dictionary on all ingredients and weather ingredients were gluten-free or not~It stays in my purse and I refer to it often while shopping) This forum is wonderful, everyone is so helpful and knowledgable, my son was diagnosed this February so still fairly new but his rash is gone ( he has DH- dermitosis herpetiformus... I think I spelled that right. lol) o.k so maybe this wasnt too brief but there is still lots of info and I'm sure you will get it when you have more questions. Good luck with your diet and congratulations on getting the answers you needed for yourself now you can start on the road to feeling better
  5. Gluten Free Hotdogs?

    \ Really? we have been avoiding anything that says "spices" and "modified cornstarch" because I thought those potentially could have gluten. This is so confusing. lol Trying to remember everything and learn all I need. On any ingredients list do they now have to list any "hidden" glutens? O.k just dug out my Pocket dictionary and yes it does say modified cornstarch is fine but check modified starch. lol My boy will be happy with this...silly me, it is hard remembering everything. lol Thanks once again everyone.
  6. Johnson And Johnson Baby Wash?

    hmm..I've never actually considered gluten in body wash products before. my son has DH and we use johnsons shamppos all the time. He doesnt have any rash from it. Not saying it is gluten-free but that is our experience.
  7. Gluten Free Hotdogs?

    lol Well my son never ate the bun before we found out he had celiac so he doesn't care too much. We actually slice 1/2 the weiner three times up the length and roast them over the they cook they shrink up and they look like a squid. We call them Squidward hotdogs and the kids love them. lol
  8. Gluten Free Hotdogs?

    LOL Gotta love this forum! I just did a google search to come up with more info on gluten free hotdogs and immediately got directed to this website. Just read an old post from last year and I hope to find some of those gluten-free hot dogs at costco, lets hope they sell them this year Thanks again everyone
  9. Gluten Free Hotdogs?

    Thanks I'll look for them, a lot of the hot dogs here have wheat and the rest say "may contain wheat" or spices or modified cornstarch so I'm a little unsure. I will have to do some more research on some other brands and contact them to find out more. Thanks everyone else, unfortunetely I havent' heard of any of those brands here in ont.
  10. BBQ season is here and I've been very busy at work lately (we own a garden centre) so sometimes it is nice just to come home and put some hotdogs/hamburgers on the BBQ but which brands are Gluten Free? It would really save me some time if anyone in Ontario knows already which brand(s) I can buy in my local grocery store...Maple leaf, Snyders, Jumbo juicy's? any of these or others that you know of? Thanks in advance
  11. Im not sure if this is assosiated with celiac but I can certainly sympathize with your daughter, I was a bedwetter till...well lets just say I had my period and STILL wet the bed. Don't let them tell you to wait another year it is really hard on a little girl. Im my case I was always told I was lazy, too deep a sleeper, drinking too much before bed etc.. when they finally took it seriously and I was mortified by it completely the doctor actually examined me and realized my bladder was the size of and infants! He prescribed some medication that encourages the bladder to grow (sorry I don't know what it is called-but I have seen it advertised in magazines) and voila never had a problem since... I'm not saying that is her problem but have them check the size of her bladder itself. I don't have celiac (or at least I had a negative blood result after my brother and son were diagnosed) I was actually going to talk to my doctor tomorrow about my own little one who is having a hard time with potty training and I was wondering at what point can they tell if her bladder is or isn't developing. She goes to the potty and two minutes later can pee her pants...thinking she may have the same problem as mommy did. Good luck with this and hopefully for your DD sake you find answers soon, if it makes her feel better let her know when I was that age there was no such thing as underjammies! lol I learned how to wash bedding and pj's by myself at a very young age. lol
  12. Any Celiac(s) From Canada

    My brother took me to the whole foods in Hamilton and I was in Some of the items I buy locally were a couple bucks cheaper (and when it is my son's school snacks that helps a lot) they had a sale and I stocked up! lol wish we had one here.
  13. Hate Letter To Gluten

    Savysue and kareng I wish there was a "like" button similar to what facebook has lol
  14. Can't Believe I Glutened My Son :(

    OMG her friends actually force her sometimes!? Kids are mean..hmmm...gonna have to talk to my son on that one. It is hard to teach them at that age the effects of gluten my son doesnt get the concept that damage is being done on the inside too. He figures he just gets itchy and he says "I don't care" I'm trying to teach him but he sometimes gets sensitive about talking about gluten all the time. I can definetely relate to the taking 3x longer shopping....I HATE shopping and this is NOT easy for me but I keep reminding myself it is less easy for him. lol Thanks everyone for your posts, I figured I wasn't the only one to gap it but needed a little reasurrance.
  15. As a busy mom of three and working full time I have been doing my best with this new diet. I've been getting frustrated that my husband is not taking more of a stand and helping more. However, after a very busy day at work, setting up a display at our local Maple syrup festival, rushing to pick up the kids and get them to the festival to ride the rides I figured Heck we'll just grab something to eat at the carnival....DUHHHHHH!!!! I can't believe it, I have been so careful with everything he eats and I order a family size fry and onion rings and say "here ya go kids,eat before you go on anymore rides" Me not paying attention he grabs an onion ring and I hear my husband yell "drop it, don't put that in your mouth!" lol oh dear, thankfully hubby was paying attention but I still had stupidly let him eat CC'd fries too. I didn't let him have anymore once I clued in. But another parent appoligized profusely for letting him eat some more fries later...what could I say, I had done the same thing. Thankfully he doesn't get sick or d from it but I'd best get the ichy cream out again.... No advice needed except "pay more attention" lol but has anyone else gapped it like this and rolled into old habits with out even thinking?