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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About koolsharkz

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    1. koolsharkz added a post in a topic Self Diagnosed Denial   

      First of all, congratulations! It's great that you are feeling so much better

      I'm the same exact way, the second I discontinue eating gluten things get so much better, gastrointestinally and neurologically. But I still wonder if my brain is tricking me sometimes. Do I feel better not eating gluten because I expect to feel better? I don't know, but it bothers me all the time. I've been trying to reframe it a bit in my mind... instead of looking at it as a medical problem (although I acknowledge that it most certainly is one), I look at it as something my body just doesn't like. Just like I hate the taste of capers, my body hates the "taste" of gluten. And since I don't eat food I don't like, it would be unfair to force my body to eat the foods it doesn't like... so I have to focus on finding foods we both like! Thinking of it like that helped me feel a lot better about the impossibility of any diagnosis (because it would be impossible for any blood test to tell me what my body really likes, right?). Maybe it could help you too

      Best of luck, I hope you continue to feel wonderful!
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    2. koolsharkz added a post in a topic Considering Getting A Copper IUD   

      I have a copper IUD, and I love it! I've had it for 3 months, and my cramps did return again at the beginning, but they've disappeared. It's possible that it'll make your cramping worse, but a lot of people find that after the first few months it levels off to where you were at before. It affects everyone differently, so the only way to know for sure is to try it... if the cramps are awful, you can easily get it removed, which was a great reassurance for me! As someone who doesn't tolerate hormones, the copper IUD is so so so fabulous, and I highly recommend it
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    3. koolsharkz added a post in a topic Getting Started! Couple Questions...   

      Hello! I might be able to help out with a few of your questions

      As far as meals go, I highly recommend quinoa dishes... lots of protein and fiber! It can be used in just about any dish that calls for rice (which is a great option too). Have you tried any gluten-free pasta? Those make a very easy meal, when accompanied by sauce and vegetables!

      Baking gluten-free is pretty complicated, but it can also be so fun! The thing is that there are a ton of different flours, and they all have different tastes and textures. It might be a good idea to find a recipe to start with (I like this one:, and get the flours you need for that. That way you can start to slowly get a feel for what you like and don't like. When you're getting flours, it's important to get ones that are certified gluten-free, since all others are likely to contain a small amount of gluten. Bob's Red Mill offers a bunch that are certified gluten-free!

      Good luck with the transition
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    4. koolsharkz added a post in a topic Anxiety Relief From Going Gluten Free?   

      I agree, this is all incredibly comforting to read! I went gluten-free for a month, and toward the end noticed a decrease in my depression for the first time in quite a while... it was so exciting! Now I'm glutening myself again so that I can be tested, and within a week, depression is back in full-force. Sometimes I'm in a good mood, then I eat a piece of bread, and an hour later I'm crying for no apparent reason. I'm looking forward to the tests being done so that I can fell better permanently!
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    5. koolsharkz added a post in a topic Elisa Test Experiences?   

      Thank you so much for the information, that's very helpful!
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    6. koolsharkz added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms   

      Elisa Test Experiences?
      I'm seeing an allergist next week, and am planning to request an ELISA allergy test. My question is, do you need to have all of the foods that you expect to react to in your system? I've been eating gluten again, but still avoiding dairy. Should I put dairy back in until the test?

      I hope this isn't a totally unnecessary question, but I don't know how long before the test I'd need to reintroduce the food... it seems like it might work differently from the celiac panel that requires heavy, heavy amounts of gluten.

      Thank you for your help!

      • 2 replies
    7. koolsharkz added a post in a topic Can We Talk About Poop For A Minute?   

      Are we talkin' the "I never go, ever" constipation or the "I go sometimes but it takes 30 minutes and is more a form of cardio workout than excretion"? It shouldn't be easier to run three miles than it is to poop, right?!

      Foo. I'm with all of you... I went off gluten for a month and I actually became regular for the first time in my whole life, after a whole lifetime of constipation! It was so great! I'm on day four of the gluten challenge, and now it's back to sad pooping.

      Though it's really lousy that so many have issues with constipation, I'm glad that I'm not the only one- I was told not to consider gluten intolerance a likely issue because I would have diarrhea instead if that were the case. PSSH.

      I force pooptalk on my friends all the time, but they just don't quite get the joy of even one normal pooping experience... I'm so glad this place exists.
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    8. koolsharkz added a post in a topic How Much Gluten Should I Be Eating Before Testing?   

      Thank you both for your help!
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    9. koolsharkz added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms   

      How Much Gluten Should I Be Eating Before Testing?
      Hello! After years of stomach problems, I decided to try and solve them by changing my diet. I lessened my gluten intake for a while, avoiding those foods because I felt lousy after eating them. About three or four weeks ago, I decided to go gluten-free (more or less... I didn't use exclusively certified gluten-free products, so I must have gotten some). I felt a lot better, but the problems weren't completely solved. Another super neat thing that happened was I felt significantly less depressed than I have in a long time... years, even! Now I'm finally seeking testing for gluten intolerance (so that I can prove to my college that the food they provide is damaging). I started eating gluteny products about four days ago, and feel a little bit worse but it's not awful yet.

      My question is, to have an increased chance of an accurate blood test result (which I understand is sort of unlikely anyway), how much gluten do I need to be eating? I've been eating about one serving a day of wheat crackers. Which is not much. How much gluten should I be eating, and is it likely that I need to continue eating it for 3 months? My diet has been low on gluten (but not devoid of it) for a few months.

      Another question I suppose... If I were gluten intolerant in some way, should I expect to feel dramatically worse after reintroducing gluten? Because I don't, at least not most of the time. It's just a slightly lousier feeling. Less energy, more gas, more discomfort, you know... all the fun things!! Sometimes I think that going gluten-free was just a placebo for me... I expected to get better, and so I did. And now that it's back, I expected to feel a little worse, and I do. I know you all know how it is, sick of guessing and waiting and feeling lousy, and just wanting a solid answer... that's where I'm at.

      Thank you all so much for your help, reading all of these posts from people who are just as confused as I am is incredibly helpful for keeping hope alive

      • 4 replies

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