This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
Does anyone know if there is a connection between Celiac and osteo/nerve issues? Are Celiacs prone to osteopathic or nervous tissue degenerative diseases?
My history - diagnosed with Celiac about 3 yrs. ago - gluten free ever since. Since then, internal carotid dissections and aneurysms thought to be caused by Fibromuscular Displaysia, Tension Migraines.
Recently - waking up from sound sleep with burning pain - left side only - from neck/chest/shoulder down to fingers. Pain feels like it's deep in the bone. Occurs a couple times per week with varying severity. It does not seem to matter what I'm doing - sleeping, driving, just sitting there... After the pain (and sometimes along with it) comes numbness, sometimes tingling.
I ask because I just came from the hospital for such pain. I thought I had suffered a heart attack. I didn't. My doctors are bewildered and so am I. I have a follow up with my primary next week and I'd like to offer some ideas as to what they might want to check for.
Here's what helps me with "C" :
MiraLax - 17g twice daily as needed
Senna tablets - 1 tab twice daily as needed. *I would start with one or the other, just once a day.* My "C" is chronic, hence the larger doses...
Also, probiotics like Culturelle seem to help. As others have mentioned, try avoiding soy, dairy & sugar. Good luck to you!
I can relate to the 'C' issues because I've been dealing with it for years - before and after being diagnosed with Celiac & going gluten free.
Here's my "fix"...
MiraLax twice daily, Culturelle probiotic every morning, 1 Senna tablet every night. This combination has made a huge difference, I'm happy to say!
Just recently I started a very low dose of Citrucel fiber (only 2 teaspoons once a day) to help bulk things up. So far, so good.
Other things that help me...
Quitting dairy & soy, blanching my veggies - raw ones are too tough on my GI system, taking a brisk walk every day.
Question: have you had blood tests done to rule out any vitamin deficiencies or thyroid issues? Might be something to consider.
Regarding the anxiety - how long have you been gluten free? People can go through a period of withdrawal (from gluten), which could possibly be a cause of anxiety. I have that issue too... for me - exercise helps & avoiding soy & sugar & processed foods helps. Of course, I'm on a medication for it also - it's been an ongoing issue.
I was told, by both my doctor and the radiology tech, that pelvic ultrasounds can show different things on different days - I know, it sounds ridiculous, right?
The reason my latest ultrasound showed nothing was because there was too much stool in the way - sorry for TMI I know I have/had an ovarian cyst because they saw it on a scan 10 months ago. Like I said, I had your EXACT symptoms.
At my last doctor visit, they said a repeat ultrasound would be necessary if the symptoms continued. It all lasted about 8 days, then just vanished! Weird stuff!
Just an FYI - for the extreme gas, I got down on the floor and did stretching and massaging of my abdomen. It helped to release some of the pressure. Prior to that, I could barely stand upright!
I also tried to do lots of walking (outside, alone that also helped to relax me somewhat.
Thanks Irish Heart! I'm glad your tinnitus & headaches have lightened up!
The neurosurgeon was uninterested in my symptoms... he recommended a neurologist and possibly an ENT. For either one, I need a referral from my primary - which maybe I can get on Monday. I don't know... maybe it is related to the weird lump on my skull. Ugh!
I thought that maybe a vitamin or mineral deficiency could be a contributing factor - something with an easy fix!
I'm having some strange things going on... Since Feb. 10th I've had a headache that comes & goes - but it came on like a freight train - sudden & really severe & with blurred vision. It was the worst ever! It lasted 5 full days! Since then, the headaches have been daily & intermittent.
I've been irritated by hearing my heartbeat - loud & pounding - in my right ear. I believe it's called "pulsatile tinnitus". It's worse at night while I'm lying down. Movement does not
seem to matter..
I've not ingested gluten - as far as I know. I'm dairy free, soy free. I had an MRI - normal except for a calcified mass on my scalp/skull which the neurosurgeon is going to remove. I go to physical therapy for neck and shoulder tension.
I'm stumped about the ear thing ( the headaches too, as I'm not prone to them). Has anyone here experienced anything like this? I have an appoinent with my regular doctor on Monday - just wondering if anyone has any insight as to what tests I might request.
My GI put me on MiraLax and 1 Senna tablet twice a day - great combo for me, works very well. MiraLax is gluten free, as is generic Walgreens brand Senna. GI also said the fact that I take Culturelle probiotic will help - I have to agree. I've been pretty much 'regular' ever since being on it.
Don't forget the water - lots of it!
As for extra fiber... that approach is a no go (pun intended) for me. For whatever reason, too much roughage only binds me up.