This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
I am dealing with neuropathy (I guess that's what it is) in my hands and arms. It is sometimes really painful. I used to think it was caused by accidental "glutening" but I am getting it more frequently. Does anyone else have this problem? Is this celiac-related or ... not? Just wondering about other celiacs' opinions/experiences on this.
Apologies if someone has posted this already. This article makes me so mad. It's on yahoo news and I'm just wondering what you all think about it. I have celiac disease so I'm not really who they are talking about here, but it still makes me mad.The last thing I need is people second guessing my need to be gluten free! Grrrr!
LOL at all of these, I can totally relate. I've been vegetarian for over 20 years and vegan for 10+ so I'm totally used to people asking completely idiotic questions and making dumb remarks about what I can/can't eat. Maybe that was practice for being diagnosed with celiac because I get even more people who are clueless. And I hate when people say "I could never do that." As if we have a choice. (Well, I guess we could choose to eat whatever we want and then just suffer...?)
A waitress once brought me the gluten free menu I asked for, and then told me that they take gluten-free very seriously and then she brought me a BEER instead of the cider I ordered. I spit it out once I tasted it (I had a feeling it was beer but she inisted it wasn't so I took a sip). Then later she said, Yes it was a beer, she brought me the wrong drink, and then she asked me if she should call an ambulance. ???
I have been a vegan for more than 10 years, and a vegetarian for more than 20 years. I was diagnosed with celiac a couple years ago, so that meant I had to give up most meat substitutes (like veggie dogs) as most of them are made from gluten. That leaves tofu, which I keep hearing is really not good to eat a lot of. :/
I never missed meat until I had to stop eating gluten. But I'm not going to go back to eating meat. That's just my personal choice.
Thank you everyone for your responses. My doc that did the endo had me in a year after the endo and did a blood test and said it looks like I'm still getting glutened and that I need to make sure that I don't eat ANY gluten -- even stuff that says "made in a facility that processes wheat" blah blah blah. So I have been more careful since then. I am finding out that I am REALLY sensitive to it. I get panic attacks/diarrhea/depression along with several other symptoms whenever I get glutened. It's quite a nightmare as I'm sure you are all well aware! Anyway, I never heard from him again after that. Maybe I should go back and get another blood test.
I haven't had vitamin deficiencies checked in the past year but the last time, I was told it's all good. I saw a psych the other day who prescribed 10mgs of Prozac but I really don't want to take it. The thought of my symptoms worsening before they get better, or side effects, or what have you, just not something I want to deal with right now.
Does anyone know if celiac damage is linked to serotonin imbalance? I have heard that serotonin is produced in our intestines and I'm wondering if everything is supposed to get ironed out after eliminating gluten or does the lingering intestinal damage mess with serotonin levels? Am I making sense? My endo showed a lot of damage apparently.
I have been gluten free for a couple years but I'm very depressed. I'm really not thrilled about the prospect of taking antidepressants (because of side effects, etc.)
Anyone here still suffering from depression despite being gluten free? What meds work/didn't work for you? Thanks in advance.
I don't have any B deficiencies, which is probably pretty amazing considering vegan diet/celiac. The best I have ever felt was right before i had kids, maybe they are just sapping my energy, haha! Seriously though, I wasn't eating very much food at that time, mostly salads and smoothies, so it may have been because I was (accidentally) not eating much gluten. But then again, I'm not eating ANY gluten now, so you would think that would help me out!
Hi Bee, I just wanted to say that I know how you feel, we've all been there. This is a great forum. I have been depressed about having celiac too. When I go somewhere I often bring my own food. I do think it makes people feel weird, but I would rather risk offending someone than chance getting sick by eating their food.
I also still go to dinner with friends and if I know in advance I won't be able to eat anything at the restaurant we're going to, I eat before I go, and I just order a drink. It's awkward but I explain to people that I'm very sensitive to even a breadcrumb and I PRETEND that I don't mind just ordering a drink and eating beforehand, so that puts them more at ease.
Yes, inside I'm pissed off that I have to haul my own stupid food with me everywhere or eat BEFORE going to dinner, but that's just the way it is and I'm trying to be more accepting of it. :/
My only other advice to you is ... listen to IrishHeart's advice. She's awesome.
And there are a lot of other great people on this forum who have helped me too.
Hang in there.
OK I have a couple of questions. (Background: I was diagnosed with celiac a couple years ago, and have been on a strict gluten-free diet ever since.)
1. Is corn masa gluten free? I bought a bag of it from Albertsons and made tamale pie. I was sick as a dog the next day. Was it the corn masa? I thought it was just made out of corn??
2. My next question is gross so stop reading if you're easily grossed out. Whenever I get accidentally glutened or catch whatever stomach bug is going around, I don't just get sick a couple times and then I'm fine. I'm sick ALL DAY. I have to lie in bed the whole day, stay near a bathroom, and wait for my body to vomit and/or otherwise expel every last drop of liquid in my stomach/intestines, including stomach acid. Is this normal??? It's very distressing/inconvenient. I don't know what to do to treat this. Immodium? Or just suffer and wait it out like I've been doing?
3. I'm 38, and in the last five years I look/feel like I've aged way more than five years. I look older than my friends who are the same age as me. I also am struggling to lose the 20 lbs I gained from my last pregnancy (which was four years ago). I exercise and eat (mostly) healthy; I'm not sitting around all day eating potato chips. I look in the mirror and I barely recognize my own face: I have eye bags, jowls, and wrinkles. What is going on? Am I deficient in certain nutrients or what? My doctor has humored me and ordered several blood tests but found nothing wrong (hormones, zinc, anemia, etc.) I am vegan as well as gluten-free so I'm starting to wonder if I should be taking some kind of supplements anyway. I do have a juicer and I make green juice which does help a little, but I recently read about sea buckthorn berry, biotin supplements and reservatrol as the new "fountain of youth" type products. Is this stuff a waste of money, or should I try these? Anyone tried any of these or have any advice for me? I'm depressed about my appearance lately.
Thanks in advance and sorry if I sound vain or petty.
I read that Bulleye bbq sauce is gluten free, but I notice it says it has modified food starch? I thought modified food starch was questionable? We're going camping and my husband wants to bring this bottle of Bulleye sweet and tangy, is it OK for me to eat this stuff? Thanks in advance!
I don't know if this is a related disorder (isn't everything related to celiac? ha ha) but I was wondering if anyone knows of a good TMJ forum/message board. By good, I mean like this one -- where people are posting all the time, and not like the TMJ boards that I've seen that nobody has posted on since 2003. I'm being driven nuts by TMJ issues lately...
Thanks in advance.
I agree about certain things not needing "awareness" at this point. Really who the hell isn't aware of breast cancer? That's not to say it's not serious -- I have had several members of my family that had breast cancer. But it's the unknown ones that need awareness! If I had been aware of celiac disease (or bladder prolapse!) I would not have suffered as long as I did.
Good luck with your family, Adelaide. I have had family members say I'm a hypochondriac even after I was diagnosed! And I know which side of the family too, but it has done no good whatsoever to tell them to get tested. They are stubborn and in denial. I gave information and they can do with it what they will. They're adults and can make their own decisions. Whether I like it or not, LOL!