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shericeliac2010 added a topic in Celiac Disease - Related Disorders & ResearchFeet Problems/neuropathy/amputationsBoth me and my husband were recently diagnosed Celiac and have both been gluten free for about a month now. My husband developed neuropathy in his feet about 20 years ago. He was a landscaper and on his feet 10-12 hours a day and had chronic burning in his feet. In 2000, he developed an ulcer on his big toe and 2nd toe which would not heal. In 2008, when infection set in and doctors recommended amputation of both toes. Recently, he developed an ulcer on his big toe and 2nd toe on his other foot and it looks like possible amputation of those 2 toes as well. At least he has a sense of humor and refers to himself as Keith "8-toes" and even said he may have to change his name to "6-toes". And he can walk just fine without the missing toes and is not terribly upset and having the other toes removed. He has had several test for diabetes and glucose tolerance test, all test are negative for diabetes.
My question is this: Have any celiacs had similar issues with their feet(i have read that neuropathy can be a side affect of celiac)?? Could the ulcers on his feet be a side effect of years of undiagnosed celiac?? Could celiac have contributed to his feet ulcers developing or not healing??
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shericeliac2010 added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)Need Answers!Hi All,
I've been gluten-free since Feb.13 of this year. I've 'had' a variety of illnesses until then, everything from IBS(irritable bowel syndrome), OBS(overactive bladder syndrome),CFS(chronic fatigue syndrome),acid reflux (to the point of very little enamel being left on most of my front teeth, headaches(severe)for over 30 yrs., fibromyalgia(most painful), swollen ankles. Nothing except being gluten-free has taken all of this away..with the exception of CFS and headaches. The headaches I am hoping will subside overtime being gluten-free and most days I can handle them as I've grow accustomed to them-mind you I do take up to 6-9 excedrin's a day. Up until almost two weeks ago, I was pretty much symptom free of anything except the headaches-I lay here typing with fairly severe chronic fatigue. I wake as was in the past yawning, sluggish, usually within 5 mins. of waking I'm finding myself back in bed. Not able to get myself out of the door for work. I just remembered something, I do have shoulder aching., something I had from time to time with the fibro.(more severe then though), most days I have it now.. down in the joints. Anyway, I could ramble on forever as I am sure most of us could, ...I am looking for anyone with similar stories, mostly successful ones I would like as my husband has noted I am irritable now as before I guess I was not? lol..dont know. I do know I am having a hard time staying positive, before going gluten-free I could see the 'light' so to speak but now........idk, maybe I'm expecting too much too soon out of my body. I am having to nap throughout the day in order to function as well as 'push' myself into doing most things on most days-something that had stopped completly until 2 weeks back. Also, I cannot seem to fall asleep until 2-3ish most nights despite laying head on pillows, eyes fluttering in want of sleep and seemingly feeling head-exhaustion. IF I try to push through the day and not nap I am absolutely NO good for doing anything, I must nap in order to function!... !HELP! I am aware it can take a yr. to 2 for healing and that gluten-free IS for life!
PS...side-note, my mother has gone gluten-free as well and swelling (severe fluid retention) she had in her ankles has completely subsided. She says she has energy she has not had in decades, she is 67. As a newborn she was sensitive to everything except 'soy'...she almost died as an infant as a result of these sensitivities.
PSS..TY honey for insisting I 'blog-in'!! *kiss*
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shericeliac2010 added a topic in Celiac Disease - Friends and Loved Ones of CeliacsLove To My Husband ( A Fellow Celiac)
To this my love....we've come a long, long way together, our love continues to flourish....from our 'kindred spirits' to our 'celiac spirits' we will be. I love u!
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