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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store.


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About WinterSong

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  • Gender Female
  • Interests Theatre, cooking, singing, dance, yoga, fitness, gluten free baking, eating chocolate
  1. Well, that is just wheat. Their bars/squares might be wheat free, as well, but the culprit there is barley. Also I just got this reply: For legal reasons the information that has been provided is the only information we are authorized to provide you with. To reiterate, our products are not certified as being gluten free. FDA requires products to be tested to confirm that gluten level is below 20ppm. Currently, Ghirardelli products have not been tested to this requirement and therefore,we do not make any gluten free claims for our products. Sincerely, Ghirardelli Consumer Services
  2. Hey guys, I emailed Ghirardelli to ask about their updated allergen information because I had heard that people stopped recommending most of their products. I was specifically asking about their chocolate chips because my understanding is that they are free of gluten and not made on the same lines as that one bar/square that contains barley. This is what I received back: "Thank you for contacting Ghirardelli Chocolate Company. We appreciate your interest in finding out about the ingredients in our products and your interest in a gluten free product. At this time we do not offer any "gluten free" products, but appreciate your interest in seeing whether Ghirardelli offers one. Our products are not certified as being gluten free. FDA requires products to be tested to confirm that gluten level is below 20ppm. Currently, Ghirardelli products have not been tested to this requirement and therefore, we do not make any gluten free claims for our products. Please reference the ingredient information, on our packaging for any Ghirardelli product that you are interested in, to determine if it is suitable for you. Please know you are a valued consumer and we do appreciate your interest in our products. Sincerely, Consumer Affairs Response Team" I asked them to please clarify - are your products testing over 20ppm? Or you don't test them at all? I also asked about the lines that the chocolate chips are made on because the ingredients do not indicated any problems. The customer service rep sent me the exact same message back with one of the lines underlined. I emailed again, and they don't seem to want to disclose any more information. Has anyone else had any luck talking with them lately? Insights on the chocolate chips?
  3. From Mom (she doesn't have a computer at the moment, so thank you for being patient as I post for her): Gemini,Do you take the chewable product as recommended. It appears to only have 300mg of calcium per day? That seems to be to little for someone with osteoporosis? I also saw a product they sell that is extra strength but not chewable which has more calcium per serving ?
  4. From the mom: Dear Gemini, thank you for your response. I have been to a bone specialist and he said I was loosing bone due to medication I was on. 2 years later with out the medication, following a strict diet, weight training and walking and taking supplements I lost more bone than with out the big push to stop the loss of bone. I would be happy to just stop loosing bone but in search of the answer. I thank you for sharing your solutions with me. I have been on plant based Calicum raw and organic but I will do tea search on HCHC. Also I have read that it is important to get k2 from Natto instead of synthetic K2 because of absorption. I have also read you need 100grams of K2 for each 1000 vitamin D you take. I don t know if this is true but I was directed to info in a book called vitamin k and the Calicum paradox. I wish you much luck in preserving your bones and hope I find a solution over the next 2 years.
  5. And yes, she is very strictly gluten free
  6. From my mom- Gemini thank you for your response. I seem to be in a similar situation except I broke a rib while leaning a weight bench. Even though I have been eating right And taking food based supplements I had a large loss of bone in my right hip. I am trying to come up with a new plan that will stop my bone loss. I am taking 200 k2, 1500 vitamin d and 1200 Calicum. Do you have a recommendation for any other kind of vitamins or brands? The doctors I have encountered here only want to bully me into prescription drugs and I don't feel comfortable with that. I am going to add 6 prunes to my diet to see if that will help and of course continue to exercise daily. Thank you for your help
  7. Thank you all for the comments. A note from my mom (the one who I am helping with research): I was diagnosed with osteoporosis 4 years ago. I was told my only option was to take one of the pharmaceutical drugs. I tried for 6 months and realized I could not do it after much research. I have been gluten free for 5 years and worked even harder at my diet, exercised 5 days a week and took whole food supplements. I just found out I have gotten much worse and my new doctors only option for me is pharmaceutical options again. I suffer from sever jaw pain already and fear I will be the small percentage that will suffer with that side effect. I have read several opinions that for someone like me HRT is an option. My general doctor is clueless in HRT as is my OBGYN. That is why I was asking what kind of doctor will prescribe the HRT and an idea of the dosage. I broke a rib and s foot with on one week and realize I must do something. I thought the source of my osteoporosis was medication I was forced to take for my jaw but I stopped that medication 2 years ago and then saw the big drop in bone density. I am 57 and think the cause is hormonal. Or my life long struggle with a gluten intolerance. I appreciate everyone's responses but I am in a serious situation and forced to educate my doctors. I was just looking for info to bring with me and I am also looking for someone in my area who can help me.
  8. Thank you all for the posts! manasota- how much is yourlow dose of HRT and which type of doctor perscribed the medication? I would love to know any extra info you find out
  9. A family member of mine is fairly young (mid 50s) and was diagnosed with osteoporosis most likely cause by a lifetime of undiagnosed Celiac. The medication her doctors have her on only prevents further damage, it doesn't rebuild bone. Also, they will only let her be on it for 5 years because the meds will cause her bones to become extremely brittle and may eventually bread. This seems like a ridiculous medication. Has anyone found or seen any research on alternative treatments for osteoporosis specifically caused by Celiac? thanks.
  10. The holiday season is quickly approaching! What's on your gluten free/kitchen wish list?
  11. Nyc Restaurant In Times Square

    I'm from New York, and I never eat in Times Square when I got to the theatre. It's more than worth it to travel a few minutes to an amazing restaurant. I recommend: Bistango Senza Gluten Colors Friendman's Lunch (near 34th St so not too far away) There is also another Bistango on 55th St I think, at the Kimberly Hotel. I've only been there for brunch, but I've heard great things. Have fun!
  12. Thank you, everyone, for the advice. I may ask my vet for an alternative, but if she doesn't have one I'll just continue doing what I'm doing and work to decrease my anxiety about it. Thank you for sharing your experiences. And bartfull - very sorry for your loss. I'm sure that you had given her a wonderful home and that she lived a very happy life.
  13. Thank you so much for the advice. Idon't think I'vegotten outwardly sick from handling my cat's food. My last blood test cameback negative, but she lives at my boyfriend's apartment (we're planning on moving in together), and Iwasn't seeingher on a daily basis. But emotionally it has been stressing me out a lot, and I'm worried about long term effects of having gluteny cat hair everywhere. In the past, my catrairly drank water,but recently has been drinking a lot more. She didn't like the moving water. Our favorite trick was placing a mug of water in the bedroom. She thinks that it is my mug and that she's being sneaky and stealing it When she was with her foster family, she ate dry cat food full of carbs and gluten. When we took her home we put her on a very good quality wet food because we wanted her to be healthier, but thatwas when she first started getting constipated. The vet had us try mixing pumpkin in with it which only helped a little. Then she went on the medicated food and her poops looked like dinosaur poops.We couldn't believethat she had all of that in her little body!Her energyand overall happiness increased.So the tricky thing is that all of the advice to put her on high quality, high protein, low carb food does not work for her. I think I need to find a gluten-freebrand of specially made food for constipated cats.
  14. I've posted about this briefly in other topics, but I think I really need to make a switch and need help. My cat has been to the hospital twice for severe constipation. The vet put her on a special prescription food to help her go to the bathroom, and now she's healthy and very happy. But it has gluten in it. I'm struggling. My boyfriend mostly feeds her but sometimes he gets stuck at work or goes out of town. I hold my breath when I feed her because of particles that are released in the air when I open the bag, and I wash my hands constantly. But then of course she licks herself after she eats. And she sheds. And her hair is everywhere. And I also want to kiss her because I love her so much. I'm going to talk with our vet, but my boyfriend is very reluctant to try anything new for fear of endangering our cat's life. Does anyone know of gluten free cat food for constipation? Also, any advice? I feel like I need a hug.
  15. Hi everyone! Just a heads up that there are a bunch of bloggers doing great product giveaways to celebrate Celiac Awareness Month. If you search instagram/twitter/facebook for hashtags like #glutenfreegiveaways, ect you should find a bunch. Sharing the love!