This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
In the past for injury-related inflammation I've found that large doses of fish oil capsules worked amazingly well. I'd take around 12-16 a day (reasoning that fish oil is food) and the efficacy was superior to ibuprofen for me. Usually I just use naproxen sodium for inflammation but if the max dose isn't doing the trick I add some fish oil and it helps. After my recent glutening which resulted in awful stomach distension followed by days of ab pain I found drinking a lot of natural ginger ale (i.e. sugar, water, ginger) helped. Or at least was a good placebo. I haven't yet tried the fish oil treatment for ab pain since it resolved after a few days so I can't say for sure it would help.
Agh. I got glutened last Friday by a restaurant. I had thought I was doing better, but I think I slipped up at work and re-glutened myself by accidental cross contamination of my lunch in the company microwave. The timing for this afternoon's new round of reflux and stomach pain would fit that scenario. Now my stomach is swollen and blah I feel like crap. Except for the ravenous hunger pangs that have set in.
The bloating, gas, and massive appetite had vanished once I went gluten free about a year ago. I think I had forgotten how miserable I felt back then!
Obsessive phase over some idea? You must be related to me! Cycling is a passion of mine. I don't do any long distance touring but am planning on trying some randonneuring rides in 2012. If you're putting in 3500 miles to cross the US consider doing it in comfort. Have you considered doing one of the group tours run by a group like Pactour? Also if you like to mix your long distance cycling with insanity there's the Race Across America held every summer.
I eat lunch somewhat late to avoid a crowded lunchroom. I have sort of a ritual that involves wiping down the microwave, my spot at a table, and the chair with a towel with some cleaning spray. I use my own utensils and never eat anything people have brought in, except fruit which I'll re-wash. Also, anything with gluten is banned from my office and if a co-worker shows up with a donut I'll ask them to come back later after they wash their hands while pointing to my "Gluten is the Enemy" coffee mug. This is all somewhat of a pain in the neck but it works for me - small company though, I don't how I'd manage in a big place with a giant cafeteria.
I have a coffee mug that says "Gluten is the Enemy" that I use at work. It gets the point across, but I've been here a few years and they're used to me and my sense of humor. Some humor goes a long way, in my experience, in making others feel more comfortable about my issues.
Here's a question: does the way that the gluten is cooked make a difference? If that gluten cake was cooked for a long time perhaps enough of the gliadin proteins were denatured, reacted with something in the cooking process, or something along those lines so you didn't get a severe reaction. This isn't unheard of, there was a paper published a few years ago on sourdough breads not causing an autoimmune reaction:
I had 7 years of acid reflux that responded poorly to Prilosec. It got absolutely unbearable in the months before getting my somewhat murky celiac diagnosis. Resolved after 2 days on the gluten free diet. Now, reflux is my 'early warning sign' that I've had a low-level exposure to gluten.
Has anyone tried treating brain fog? It's very similar to fibro fog found in fibromyalgia, and those patients are sometimes treated with drugs like Concerta (ADHD med) or Provigil (often used for narcolepsy) which clears the fog.
Non-celiac gluten intolerance is considered to be about 30 years behind celiac disease in terms of research, quoting a researcher from memory. You can find papers published in the last few months that are establishing non-celiac gluten intolerance as a separate disease category.
There's always the possibility that you're sick with something else entirely - candida, bacterial overgrowth, other food intolerances or allergies, etc., or that the less-than-perfect gluten-free diet isn't good enough anymore.
Here in the USA health care is expensive and the wait times are also horrendous. My wife once spent 10 hours in an ER waiting room with a kidney stone, dry heaving in a bucket. My pleas to get her re-triaged fell on deaf ears, I nearly called an ambulance to pick her up from the waiting room to take her back to the same ER.