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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About ThePurlQueen

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    • Birthday 07/24/1984

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    • Gender Female
    • Interests sewing, knitting
    • Location Indianapolis

    ThePurlQueen's Activity

    1. ThePurlQueen added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms   

      New Thyroid Problems And Premature Ovarian Failure
      I was here a while back asking about celiac, my first/original post here.

      I had blood tests done, they were negative. I had a scope done last May. I was told I had an ulcer that was likely due to NSAIDs and everything else was normal, including negative biopsy. I never saw lab or patho reports, never thought to ask.

      My new problems are this: I thought noticed some swelling in my neck and mentioned it at my physical last month. I had a thyroid ultrasound done and the results were overall enlargement of the gland and there is also a small cyst. I had my dr do blood tests again, I've always felt my symptoms were hypothyroid-like, my TSH was normal, though I am now reading that's not unlikely? I also had her test my sex hormones because I am still on a quest to find out what the hell is wrong with me. My estrogen was very low, and FSH very high, indicating premature ovarian failure/menopause, but I am 28.

      I have had somewhat irregular (for me) periods since they returned 9m ago. Shorter and lighter, one only lasting a day. My last period was normal. I had a miscarriage between my 4th and 5th baby, but overall have had no problems with fertility, have 5 children.

      My "celiac" symptoms were worse at the end of my last pg and I wonder if that pregnancy is what threw my body into complete turmoil. I have an appt with an Endocrinologist on the 28th, to find out the next step and what all this means.

      As soon as I found out my thyroid was messed up and potentially my fertility, my mind immediately went back to all I had read about celiac. Just curious if anyone else has dealt with POF and how possible it is that my negative tests were wrong or if NCGI can cause all of this too.
      • 4 replies
    2. ThePurlQueen added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms   

      Lactose Free Also?
      I've thought that I was lactose intolerant for about 2 years, but now realizing I may be Celiac I am not sure if I actually am. I know it's possible for it to CAUSE lactose intolerance, but now I don't know if I actually am.

      I have never been able to give up lactose completely, I love cheese. That's really the only thing I eat, and occasionally sour cream. If I have to start a gluten-free diet, it's going to be too hard to go completely lactose free too. I feel like there's nothing I can have. Will comsuming small amounts of lactose actually delay the healing, or does it just make you feel bad, like a regular lactose intolerant person? As long as I am not eating gluten does it matter if I have a little lactose sometimes? I hope I'm making sense.
      • 1 reply
    3. ThePurlQueen added a post in a topic What Tests Exactly Should I Ask For?   

      Thank you!

      The appointment went well. She, of course, thought it sounded like IBS, but also said it was smart to test for Celiac with the other symptoms. She said obviously we couldn't do the endoscope until after I had the baby. I am not sure if I would even want to have it if the blood tests are positive. I've never been sedated before and it kinda scares me honestly. She went ahead and checked my thyroid again too since they were already drawing blood, but it was normal just last summer.

      They drew the blood and now I guess I wait. I know it depends on lab probably, but about how long does do people typically get results back?
      • 0
    4. ThePurlQueen added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms   

      What Tests Exactly Should I Ask For?
      I have an appointment in the morning with my family doc and want to be sure I ask for all of the correct blood tests. I would hope she'll know, but you know, just in case I don't want there to be any doubt, I want any test she can order lol

      Also, anything specific I should ask about? I am taking along my history and notes about Celiac's. Again, I would hope she's a little knowledgeable, but I am not taking any chances. I want to be sure she knows I am serious and why. She's a great doctor, I don't think I will have to fight hard or anything, I guess I am just nervous about pleading my case for these tests.

      Also, as far as I can tell being pregnant will not have any effect on the outcome of the tests right?
      • 2 replies
    5. ThePurlQueen added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms   

      Another Newbie - Completely Lost
      Hello there. I have been reading here for a couple of days, and have finally gathered the courage to post. I know there are a lot of posts just like mine, so thank you to anyone who reads my rambling.

      Obviously I am here because of Celiacs, but I have not been diagnosed. Just like many stories I've read, I suspect based on all my symptoms. I don't know how many times I have seen my doctor with the complaint that I am just sick of always feeling like crap. My story is pretty typical to many I have read here. As a teenager I just always felt sick to my stomach, nauseated and moderate, tolerable pains. My mom shrugged it off, thought I was just complaining all the time, nothing really wrong. I started having depression, anxiety issues and panic attacks around 16. I blame some of that on hormones and being a teen, but I still struggle and never really understand why, I don't feel like I should be depressed, but often am.

      I went through life just always having a lot of stomach aches and pains, it was just normal for me. I have never been 'regular' in the bathroom area as long as I can remember. Every few days was very normal for me. I have terrible gas and gas pains often, and it doesn't seem to matter what I eat. I get a lot of muscle aches and joint pain for no reason. I've been tested for RA twice. I have never been able to sleep well. I can stay asleep, but falling asleep is hard. I have no sex drive at all. Like I enjoy it, but have no desire to initiate it. I am completely exhausted all the time, everyone just says it's because I have 4 kids. I get headaches all the time and I feel like I can't remember anything most days. I have trouble keeping up with things if I don't write it down. When I was pregnant with my now 2 year old I had a glass of chocolate milk and then felt really bad afterward. I said to my husband, why does milk always make me feel so bad. He laughed and said maybe you are lactose intolerant. It was like a lightbulb went off over my head. THAT would explain all the stomach pain. I did some research and it seemed plausible so I cut out lactose. Not completely, but pretty much everything except the little bits in processed things and I still ate cheese. I love cheese I noticed a difference mildly in my aches, and in my gas, but everything else is still there.

      Fast forward to now, for the last 5ish weeks I have switched from "going" every few days to every time I eat a meal. At first I thought I had a virus (probably did), I had super diarrhea for about 5 days and actually went to get IV fluids because I am pregnant and wasn't keeping anything in. It slowed to anytime I ate a large portion of something, but after 3 weeks I was beginning to wonder what was going on. I would get terrible cramps and have to go to the bathroom immediately. It occured to me that this has happened many times before, with the sharp pains, but it has never been this consistant. It's so embarrassing. Last week I had a period of about 3 days with nothing, and now I am back to everytime I eat I have diarrhea. Twice this week I haven't made it to the bathroom, and I was only downstairs at home. I am beginning to be afraid to go anywhere. It's humiliating and I have never talked to the doctor about the GI stuff because I am embarrassed and she can't seem to find anything wrong with me anyway. I have been tested for thyroid issuesand RA twice, and have had routine blood work even recently, but nothing special like vitamins or anything. I have been slightly anemic several times. Twice I couldn't donate blood because my hgb was too low.

      Everyone brushes all my symptoms into stress of having 4 kids and going to school, but I believe I handle it all quite well and feel like crap all the time. It's not stress. I don't care what anyone says. I know my body and I just don't feel good ever.

      While trying to figure out what would cause my current GI problems I stumbled across Celiac Disease and have been reading like a maniac ever since. It all sounds just like me. I can
      • 2 replies

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