This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
I am a 25 (will be 26 next week) year old mother of 4 (ages 7, 5, 4 & almost 3). I was self-diagnosed with Celiac Disease in Febuary 2011 and have been Gluten Free since April 2011. I have had a few accidental glutenings and it is like being poisoned. In December 2010, I went to the family doctor, desperate for an answer. I was in pain all the time. No energy, bloating, gas pains, back pain, nausia, etc. They sent me to the hospital to have a HIDA scan, showed I had gallbladder disfunction, and a few other things (sorry I cannot remember) Anyway here is my interesting story....
When I was 4, I was diagnosed with Lactose Intolerance. I could not eat any lactose at all- though when I was about 10 or so, we discovered the "dairy pills" and I was fine as long as I took that with the food. When I was about 22, I had a saliva test done (forgive me I do not remember the name for this) and she told me that I had low bile, low vitamin B5, low adrenal, and a couple other things I can not remember. I asked about my lactose intolerance and she said it did not show that. I was shocked! I slowly started eating dairy products without taking the lactose pills, and nothing happened. I thought it was a miracle! Everything was great until one day in March of 2009, I started having the worst pain of my life, it was coming in waves, and I knew it was my intestines or something of the like. I had severe diarrhea which lead to severe bloody diarreha and eventually just blood. My husband took me to the ER and they did a CT scan and it showed I had Colitis. They gave me some pain pills and sent me home. 3 hours later, I was pretty much begging for death, so we went back to the ER, a different dr looked at my CT scan results, and he was shocked that they sent me home. They admitted me, had to put me on Hydro Morphin on an automatic drip through my IV. After 5 days of being there, they discovered I had E. Coli. (side note- I sent in another saliva test after getting home from the hospital, and she concluded that the E Coli was from a hamburger. I no longer eat beef.)
I lost 11 lbs in that week. I went down to 125 and I am now at 120 lbs, when I am sick I'll weigh around 116. I was never the same after the E. Coli. I was sick all the time. I started getting Acupuncture which did help but I was still sick a lot and felt like I couldn't eat anything. In the beginning of this year, she suggested I try a Gluten Free diet. That is when I started experimenting with low gluten, to eventually NO gluten at all- and I have been gluten free ever since. I could still eat dairy just fine until about a month ago. Now even the smallest amount makes me sick.
I chose not to have my gallbladder removed. As long as I didn't eat Gluten I was ok. I didn't have the classic gallbladder "symptoms" it was more of celiac symptoms. Now, I can't eat anything. I am sick no matter what especially after eating pork (we love pork- we raise our own pig every year) and eggs (we also love eggs and have our own laying hens) and now I can't drink my beloved coffee. After just half a cup, I'll be running to the bathroom and be in terrible pain. I get bad pain in my upper back between my shoulder blades and in my shoulder. I know it's my gallbladder and I've decided it's time to have it removed. I have an appt in two weeks. I really hope it helps. I will continue to stay gluten and lactose free, but I hope I can go back to my eggs, pork and coffee.