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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About MJ_S

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    1. MJ_S added a post in a topic Cross Contamination In Food Processes   

      I'm a super sensitive. Believe me, the implications suck. 
      So do yourself a favor and don't assume you are one until you've ruled out some other more common causes of cross contamination. That means things like kissing a gluten eater, going out to eat, and sharing a kitchen with a gluten eater. 
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    2. MJ_S added a post in a topic Need Dh Help   

      Can you make an appt with your dermatologist? They usually have fast availability, and should be able to get you in quickly if you explain the problem. If you need a referral you should be able to request one from your PCP's office.
      The dermatologist would be able to biopsy you, and put you on dapsone.
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    3. MJ_S added a post in a topic Gluten-Free Country...?   

      I don't think that sort of place exists anymore. Even in regions of the world that traditionally have not comsumed gluten, western foods are now ubiquitous. Wheat is the most commonly grown crop in the world, and is transported everywhere.
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    4. MJ_S added a post in a topic Refractory Celiac Disease   

      What foods are you eating? Specifically, which processed foods?
      The next step for you would be to try to Fasano diet, which is specifically designed for people exactly in your situation. It focuses on eliminating trace gluten contamination in the diet by eliminating processed "gluten-free" foods. His book is excellent.
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    5. MJ_S added a post in a topic Dh Please Help   

      My DH usually appears about 48 hours after exposure. According to the University of Chicago Celiac Disease Center, DH usually appears within a day or two, sometimes within hours, after gluten exposure:
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    6. MJ_S added a post in a topic Child Not Getting Better After Being Gluten-Free   

      In order of how I would approach this:
      1. I second the idea of exploring what's happening at school/sports or with friends, especially since there's been a sudden change. 
      2. Doctor's visit to rule out other health issues.
      3. 6 months is around the time that some patients start to report increased sensitivity. If 1 & 2 yield no answers, you may need to look more closely at home.
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    7. MJ_S added a post in a topic Need A Tooth Paste Thats Soy And Gluten Free   

      I use Tom's of Maine. It's been fine.
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    8. MJ_S added a post in a topic So Discouraged   

      Frosted, refractory is really rare so if you still have high antibodies it's more likely that you're still getting glutened. Have you tried giving up processed foods to see if it helps? Most celiacs do fine with the standard gluten-free diet, but there are some of us who are more sensitive and require a non-processed food diet. Even though it's a pain, it's WAY better than being refractory!
      A new study was just published this month discussing cross-contamination of gluten-free products, including certified gluten-free products:
      Basically, the study found that out of 158 products tested, 5% of products labeled "gluten-free" and 4% of products labeled "certified gluten-free" tested above 20ppm.
      While this may not sound huge, if you are one of the unlucky ones eating these products (and statistically, that's 1 in 20 products), you could be affected even if you're not super-sensitive. 
      The best defense is to skip the processed foods until you get your antibodies down. You're not a newbie, so hopefully you have other variables under control at this point (shared kitchen with gluten eaters, personal care products, etc.)
      Good luck!
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    9. MJ_S added a post in a topic Too Extreme Or Just The Right Medicine?   

      You can try contacting the manufacturer of the water pill and see what they tell you. Many will give a standard disclaimer, but they may also confirm if the pill is gluten free.
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    10. MJ_S added a post in a topic Thank You- A Very Special Day   

      I did - I thought it was great. Thanks again.
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    11. MJ_S added a post in a topic Too Extreme Or Just The Right Medicine?   

      Google Fasano diet. This diet is targeted towards super sensitives, but is also a great unprocessed diet to use in the beginning while you're in healing mode. It allows for plain rice (not processed cream of rice), all fresh fruits, vegetables, eggs and meats (no processed/canned items), olive oil, salt, beans, and nuts still in the shell. Some fruit juices/dairy items are ok as well. The  idea is to avoid processed foods as much as possible. If you're willing to try it, it's a great diet to help you heal, after which you can slowly start to add things back in, ideally one at a time at least 4 days apart from each other. 
      Be very cautious with the pills. You should be able to search this site and others to find certified gluten free brands. Country Life is one. I would stay away from anything non gluten-free certified. 
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    12. MJ_S added a post in a topic Thank You- A Very Special Day   

      Wow - that's great!
      I didn't know Fasano is in Lexington today. That's very close to me. If it's not too late, where and when is he speaking? I'm having trouble finding any information about it online.
      Edit: I found it: St. Brigid's Parish Hall at 7:00pm. Thank you so much for the heads up!!
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    13. MJ_S added a post in a topic Help Please! Going To Make Soup For Boyfriend   

      You don't need the broth since you also bought the ingredients to make broth. Just combine the greens and chicken, add water, salt, and some olive oil (since the breasts aren't too fatty) and bring to full boil. Simmer, covered, for 1.5 hours (or 40 minutes with a pressure cooker since you said quick). 
      Once it's done, add the noodles and cook them for however long they take according to package. Don't cook them separately.
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    14. MJ_S added a post in a topic Hairloss & Gluten   

      I lose much more hair than normal when I have a gluten reaction. It gets better after a week or so.
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    15. MJ_S added a post in a topic Are You Amazing At Explaining Cross-Contamination? Help Me Be Lovely And Thoughtful?   

      Do they bake a lot? This would be especially more likely at Christmas. If flour is being used, it's in the air, and that could be one way you're getting sick from just being around the kitchen.
      There's no easy way about this. You should really find out ahead of time if they are going to be baking heavily for the holiday meals, because if so you should stay away from the kitchen. Something to consider.
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