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Macbre

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About Macbre

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  1. This is an e-mail I received from The University of Chicago Celiac Disease Center: Sign the petition asking the FDA for gluten-free standards now! Last year, U.S. Food and Drug Administration (FDA) officials made a commitment to the celiac community that the gluten-free labeling rule would be completed by the end of the third quarter of 2012 (September 30). That date has come and gone. The FDA has already heard from us. It's time for higher officials to know the celiac community needs gluten-free labeling standards now. The White House has provided us the opportunity to express our concerns through an open petition. Make sure your voice is heard! Visit the WhiteHouse.gov "We the People" website to sign the petition. (Not sure why the link doesn't highlight & take you directly to it....it did in my email.) According to the White House, if enough people sign the petition, it will be reviewed and administration officials will respond to the signers of the petition. In other words, we'll have their attention. We need at least 25,000 signatures by November 2nd. Anyone age 13 and over can sign the petition. In order to sign, users must create an account at WhiteHouse.gov and verify their email address. It's quick and easy. Please sign the petition today! Sincerely, Carol Shilson Executive Director The University of Chicago Celiac Disease Center
  2. I'm not sure if this has become a topic on here or not, but I would encourage everyone to read the e-mail below and sign the petiton to get our foods labeled. This is the e-mail I have recieved from the Univ. of Chicago..... Last year, U.S. Food and Drug Administration (FDA) officials made a commitment to the celiac community that the gluten-free labeling rule would be completed by the end of the third quarter of 2012 (September 30). That date has come and gone. The FDA has already heard from us. It's time for higher officials to know the celiac community needs gluten-free labeling standards now. The White House has provided us the opportunity to express our concerns through an open petition. Make sure your voice is heard! Visit the WhiteHouse.gov "We the People" website to sign the petition. According to the White House, if enough people sign the petition, it will be reviewed and administration officials will respond to the signers of the petition. In other words, we'll have their attention. We need at least 25,000 signatures by November 2nd. Anyone age 13 and over can sign the petition. In order to sign, users must create an account at WhiteHouse.gov and verify their email address. It's quick and easy. Please sign the petition today! Sincerely, Carol Shilson Executive Director The University of Chicago Celiac Disease Center THIS IS SO IMPORTANT.....PLEASE GO TO THE WEBSITE & REGISTER SO YOU CAN SIGN THE PETITON!!!!
  3. I had the DeBoles gluten-free angel hair pasta last night for the first time, and had a severe reation to it. I've haven't had any recent incidents and that was the only new thing I tried yesterday. Has anyone else had a reaction to their product? I feel like crap today ....been so careful and now this.
  4. Just curious to know why a topic is moved and where it is moved to. I'm seeing a lot of these and didn't know the reason behind it.
  5. I can totally relate to this....I've been gluten-free since 12/2010 & have gained 12 lbs. I'm so frustrated because I eat a very balanced diet. We cook @ home and I only have 2-3 gluten-free cookies during the day when I'm craving sweets. I hardly ever have gluten-free bread and watch my carb intake. Had my tyroid checked 2 weeks ago & everything is ok. I workout 6 days/week 1 1/2 hrs. & still I battle the weight. I change up my exercise routine so I know it's not that. Food goes right through me so I'm not constipated, I'm actually wondering why I'm not the skinniest person out there considering how much "D" I have. I'm about to try protein shakes as a meal supplement hoping maybe that will work.
  6. I was purchasing vitamins from Vitacost.com and noticed they have a lot of gluten-free foods & products that are much cheeper than in stores. I found several products that I eat on a regular basis and others that I've never heard of. Eating gluten-free can be very expensive and I figured it would be cost effective to order online (I don't think you have to pay shipping if ordering a certain amount).....has anyone else done this? I'm just wondering if the food is still fresh or broken up (meaning pasta) by the time it reaches you. I'm all about trying to save
  7. I'm assuming CC because I know the things I am eating are gluten-free, but it doesn't happen like this all the time. That's what has me puzzled. I get ALL of the same exact symptoms you listed when it does happen.
  8. I have been gluten-free for 1 year & 3months now, but still get glutened every now & then by accident. Most of the time I just experience the standard reaction, but occasionally (like last night) I have the stomach cramps and D and then while I'm on the toilet I start this uncontrollable shaking/tremors and then I start having heart palpations. The next day I'm completely wiped out and my muscles are tight and fatigued. It's almost like a panic attack, but I'm thinking something is triggering it....I'm not sure....I don't think it was anything I ate because what I ate was gluten-free. I do live in FL and my allergies have kicked in the past couple of days so I can't walk outside without having any allergy attack (never had those until recently) so I'm wondering if that has anything to do with it. I can't cut the grass anymore because I have a similar reaction. Does this sound familiar to anyone?
  9. Mine have definitely changed too....I have the typical bowl symptoms for a few days, but the neuro last for several weeks. I was glutened 3 weeks ago and now I can't get rid of the eye twitch, ringing in the ears and the brain fog, not to mention the joint inflamation and being off balance. Headaches....that's a daily occurance for me right now so I know where you are coming from. The neuro is definitly lasting longer than before. Usually that was gone before the intestinal issues.
  10. I have suffered from severe anxiety for about 2 years now....to the point I had several panic attacks. After reading many post that suggested a vitamin deficiency I decided what the heck - I'll try anything at this point. I bought the Super Nutrition Simply One Women (with the PMS reducer) and let me tell you....I am a NEW woman. Not only has my PMS symptoms disappeared, I'm not having ANY anxiety issues (only mildly when I've gotten CC), but nothing that I can't control. I've been on them now for 3 months and not only has it helped my anxiety, but my heart doesn't palpate as often. These are a life saver and they also have them for men too (minus the PMS reducer) I wanted to pass this along because I know there are alot of Celiac sufferers out there who are dealing with anxiety issues. The company offers a money back guarantee also....you can't go wrong with that.
  11. I read a post yesterday that brought up the possibility of someone maybe having candida. When it referred to becoming bloated after eating certain foods (sweets/ice cream) it got me to wondering if I possibly have it. I get severly bloated after eating ice cream and I'm usually bloated in the AM after having a glass of wine the night before. I'm a female and around my ovulation time I get severe pain and feelings of having trapped gas, but that only last a few days & then I'm back to normal (well normal for me). I have been dealing with a lot of D for a few weeks now, but I assumed that was from accidental glutening from some artichokes I ate. I get mouth ulcers frequently and I stay gassy. Does this sound like possible candida? and if so, how do I get tested for it. I see my GP on Monday so I would like to know what I need to tell her.
  12. Did anyone else listen to Nancy Snyderman talk about the "gluten-free Diet" on the Today Show? She was talking about how gluten-free foods are not providing the nutrients your body needs and refered to it as the "new sexy diet craze." OMG....I don't know about anyone else, but there is NOTHING sexy about having to eat gluten-free and especially nothing sexy about what happens if someone in our cases doesn't eat gluten-free. I was fuming by the time the segment was over and I was especially disappointed when she answered a viewers question about wanting to know if the stomach pains she's had for years could be due to gluten and Nancy's response was to definitly have it checked out, but in the meantime she should start a gluten-free diet. That is horrible advise! I can't believe she didn't do more research on this topic before she started giving advise on what you should do if you think you have Celiac's. Please tell me someone else saw this.....
  13. Mine is mainly rib cage pain, but now that I read yours I'm wondering if alot of my lower abdominal pain isn't gluten related....I've always assumed it was "monthly" related symptoms. I get alot of cramping and I assumed it was because I have endometrosis, but now I have to wonder. I got glutened about 1 week ago and have had terrible back pain and cramping, but I figured the back pain was from pulling something during working out and the cramping was from my monthly, but now I'm not sure.
  14. I use my iPhone and have an app called "is that gluten free". It comes in handy alot.