Get email alerts Get E-mail Alerts Sponsor: Sponsor:

Ads by Google:

   Get email alerts  Subscribe to FREE email alerts

  • Announcements

    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


  • Content count

  • Joined

  • Last visited

Community Reputation

0 Neutral

About jules24

  • Rank
    New Community Member
  1. Hi, my name's Julia and I'm almost 15. I was diagnosed right after I turned 3, so I've been on the gluten free diet pretty much all my life. Before diagnosis, I weighed 19 pounds. I was skin and bone with a distended stomach. I was diagnosed at children's hospital in Boston, MA. My mom had to order everything online and even there wasn't much. She made my bread, which everyone here knows doesn't last very long unless frozen and then toasted. As I grew up things got slightly easier. My aunt was diagnosed at age 43 and that was when we knew it was my moms side with the gene. I didn't know anyone my age with celiac. I met one girl at a camp for two weeks but never saw her again. By middle school celiac was much more common. And now, as a freshman in a private high school, I have two friends with gluten intolerance (one has the parents who created and own 'cherrybrook farms' mixes and some cookies), another friend who has celiac and even a teacher with celiac. And this is all at the same school!!! Now everyone makes mistakes, especially a celiac. My reaction to gluten is much more violent than it used to be as a child. I've taken a bite of a cookie, realized it was wheat, spit it all out, and I've still gotten sick. My most recent slip-up was my mom's mistake. She made french toast and instead of using the canyon cinnamon raisin bread in a clear and purple package, she used the Vermont company bread in a clear and purple package. I had 5 slices, my biggest amount of exposure to gluten since my age three diagnosis. It takes my body about two hours to realize the wheat needs to get out and then throwing up for 2-4 hours. I could never purposely cheat on the diet because of my reaction