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jules24

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About jules24

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  1. Hi, my name's Julia and I'm almost 15. I was diagnosed right after I turned 3, so I've been on the gluten free diet pretty much all my life. Before diagnosis, I weighed 19 pounds. I was skin and bone with a distended stomach. I was diagnosed at children's hospital in Boston, MA. My mom had to order everything online and even there wasn't much. She made my bread, which everyone here knows doesn't last very long unless frozen and then toasted. As I grew up things got slightly easier. My aunt was diagnosed at age 43 and that was when we knew it was my moms side with the gene. I didn't know anyone my age with celiac. I met one girl at a camp for two weeks but never saw her again. By middle school celiac was much more common. And now, as a freshman in a private high school, I have two friends with gluten intolerance (one has the parents who created and own 'cherrybrook farms' mixes and some cookies), another friend who has celiac and even a teacher with celiac. And this is all at the same school!!! Now everyone makes mistakes, especially a celiac. My reaction to gluten is much more violent than it used to be as a child. I've taken a bite of a cookie, realized it was wheat, spit it all out, and I've still gotten sick. My most recent slip-up was my mom's mistake. She made french toast and instead of using the canyon cinnamon raisin bread in a clear and purple package, she used the Vermont company bread in a clear and purple package. I had 5 slices, my biggest amount of exposure to gluten since my age three diagnosis. It takes my body about two hours to realize the wheat needs to get out and then throwing up for 2-4 hours. I could never purposely cheat on the diet because of my reaction