This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
I was diagnosed with Celiac about 2 1/2 years ago (diagnosed via 3 different blood tests by 2 different doctors and biopsy). About 18 months ago I began a vegan diet, lost 75 lbs., stopped eating any sugar other than what is in fruit/veggies naturally, began exercising regularly, started taking probiotics daily and now have normal digestion, dropped my cholesterol by 60 points, have perfect blood pressure, etc. I am 5'9 and weight 130 lbs. and now eat a mostly plant based diet (I eat salmon once a week and nonfat Greek yogurt 3 times a week - other than that, I eat no animal products)...I did this for health reasons and feel and look better than I have for many years. I eat 2 to 3 pieces of gluten free bread per week, no sugar, pasta once every 6 weeks or so, very little oil, no margarine - I sauté in broth or water.
This is the best thing I have ever done for my health, my digestion, my joints, etc.
Probiotics are the way to go. I take Align once a day and my chronic constipation is cured - normal bms for the first time since I was in high school....I am 62 and was diagnosed (blood test and biopsy) with Celiac almost 2 1/2 years ago. I buy Align at Costco. I am vegetarian - eating a plant-based diet other than salmon once a week and plain Greek yogurt every other day. Much of my diet is raw. Align has totally changed my life.
I was diagnosed 2 years ago next month....I have suffered from constipation most of my adult life. I have taken expensive digestive enzymes, different pro-biotics, fiber - tried so many things - nothing helped. I was spending $100 a month on a natural probiotic and fiber capsules from my nearby apothocary store....with very mixed results. I started taking Align probiotic - I saw an ad for it and bought it at Costco. I had read that Align is the #1 gastroenterologist recommended probiotic for 4 years in a row. I didn't know if it was hype or what but it is $45 for 3 months and I gave it a try. I started taking Align 4 weeks ago and for the first time in many years I am not constipated and can absolutely count on normal bowel activity - it has changed my life. Perhaps it might work for you too. For $45 it is worth a try.
Bacon is delish - no doubt about it! I think that it is great that you have found a diet that works for you - bottom line is not all of us with Celiac react the same to certain foods or even exposure to gluten...finding the path that makes us feel our best is what we all need to do - good luck with your Paleo diet!
I appreciate everyone's posts and thoughts. I just came from the doctor and got the results of my extensive blood tests - I am doing great - in fact, I was told to take my iron supplements only every other day instead of every day - probably because of all the leafy greens I'm eating and the fact that I'm not eating anything remotely suspect of containing gluten. My total cholesterol was 140 with perfect hdl and ldl (it was 200 in May) - so a 60 point drop is not too shabby. My doctor and I discussed the vitamins I am taking and she thinks I'm right on track. I feel and look the best I have in many years....I know this kind of diet may not work for everyone but it works beautifully for me and it just seems like the right thing to do - to eat as little processed food as possible, center my diet on lots of organic produce with a little fruit and supplement with sufficient beans, soy and hemp powder for protein.
Thanks for the tip about vegiac.com Ed - I joined a few days ago. I know you are right about being "mostly vegan" and the criticism by the die-hard vegans. Truly I don't care if I get slamed by vegans for eating eggs - I'm pretty confident in my life choices so things like that are only mildly amusing to me.
Thanks kenlove! I'm happy to hear that you are feeling better on your vegan diet - you have been eating this way for a while now - very encouraging. So sorry about your heart issues - is the damage repairable through proper diet? I go in tomorrow for my blood test results to see if I am lacking in any vitamins/minerals - I did this to make sure that I am on track nutritionally.
We took 3 trips this year and I worried about how we were going to eat while away....there are some great vegan restaurants in some of the larger cities and surrounds - at least in the U.S., however often vegan/vegetarian restaurants are pretty expensive - we have saved a ton of money since going vegan - we rarely go out to eat and animal products (especially meat) has skyrocketed!
Hi all, just wondering if there are any vegans out there? My husband and I have been mostly vegans for a little over 3 months (I say mostly because we do eat local, organic egg whites and local honey) but other than that we adhere strictly to an animal-gree diet and nothing we eat has cholesterol in it.
I was diagnosed with Celiac about 18 months ago. I believe I have found the diet that truly allows me to have the least amount of Celiac symptoms of any eating plan that I have been on since being diagnosed.
We eat every organic vegetable (often local), herb, nut, seed, beans, legume, fruit (in moderation), hemp powder, chia seed, flaxseed meal, quinoa and oats (I have never had a reaction to either), a piece of gluten free toast about every 3 weeks, almond and soy milk, tofu, peanut butter. I add no added fat to our diet (we seem to get plenty of fat from our diet without adding any fat) and we eat no refined sugar or desserts. My skin is soft, my hair is thick, my fingernails strong and fast growing, my complexion clear and I am symptom free as far as my Celiac is concerned. I finally have energy and stamina and a digestive system that is working properly for the first time in many, many years.
Has anyone else elminated animal products or just meat from their diet and if so, how has that worked for you?
Really it is not bread that makes you not hungry....vegetables, fruits, legumes, beans, nuts, seeds - those foods make you full. Just elminate bread and start eating more of the food that I listed - I guarantee you will be fuller longer and be healthier.
My idea of eating gluten free has definitely changed over the last 18 months (since I was diagonosed with Celiac). I started off spending a fortune on processed "gluten free" products - I just gained weight, was always constipated and was always hungry - probably from the lack of fiber in "gluten free" processed foods.
Now I eat a plant based diet and I exclude grains with gluten, eating mainly oats (which I seem to tolerate just fine and quinoa). I very rarely eat rice because it is caloric with almost no fiber and now I have learned probably full of arsenic. I eat fresh, local organic fruits and vegetables, nuts, seeds, limited grains, beans and legumes. I eat no animal products and I add no oil to my diet and I am the healthiest I've been in years and without any symptoms of Celiac for the first time in ages.
The good thing is my husband basically eats the same diet that I do except he once in a while eats high fiber wheat bread and cereals. Life became so much simpler when we decided to pretty much eat the same foods.
I would eat before the event or take a lunch that I could eat in the car and then have a green salad or something at the event (bring my own dressing). I wouldn't want to take food to be heated up and I would try to make things as simple as possible and not make a big deal out of my needs. Adopt a mindset that these events you are going to are just 1 day or so out of your life - not your whole life. Eat before you go, take a snack and eat when you get home if you need to...you'll be fine.
First of all - celiac disease is different than a wheat or gluten allergy although they do have some things in common.
Here is a link that might help you unerstand the difference:
First, you need to be tested for celiac (blood test) to determine if you have the disease as it is significantly more serious to have celiac than a wheat allergy. If you do not have celiac, go to an allergist and get tested to see which grains you are allergic to.
Stop buying so many "gluten free" products. Just eat whole, healthy foods. I buy gluten free pizza dough mix, pancake mix and Amy's gluten-free frozen dinners to keep on hand (Walmart carries these and they are about $2 cheaper per dinner than Whole Foods). I keep a loaf of gluten free bread in the freezer. I buy gluten-free oats (Walmart in their gluten-free section)....that is about the extent of the gluten free products that I buy.
As far as eating out and traveling - it can be done. More and more restaurants are becoming aware of and catering to those that can't tolerate gluten. Choose restaurants wisely - if you know you are going out to dinner with friends or are eating on the road, do research ahead of time. Let your computer search engine find gluten free restaurants/bakeries in your area or areas where you are traveling - they are becoming more and more frequent. I have found gluten-free cafes and restaurants in many cities across the U.S.
When we go out with friends, I call ahead to the restaurant and speak to the manager and ask about what is on the menu that I can eat. Many restaurants will glady put a meal together for you that does not containt gluten. I always explain briefly about the cross-contamination problem. Many restaurants will work with you - some restaurants are aware of cross-contamination. Some restaurants are clueless.
I have also eaten before going out and then just had a dinner salad with oil and vinegar dressing...just so I can see my friends, eat something and stay gluten free.
As another poster noted - eat whole foods and try to skip foods with sauces, dressings and soy sauce.
When we are traveling, I stop by Whole Foods and buy gluten free products - I'll carry a small disposable cooler in the car and fill it with Greek yogurt or low fat cheese sticks, fresh fruit, hard-boiled eggs, gluten free muffins, carrot and celery sticks...these are great lunch/breakfast items.
As far as fast food - I will occasionally go to Wendy's and buy a plain baked potato and pour their low-fat chili over it - it is delicious and very filling. I don't do a lot of fast-food though.
Not being able to eat gluten should in no way ruin your life. Stop whining! Your friends don't need to "understand" about your intolerance to wheat. Be proactive in planning where you can eat and what you can eat and working with your doctor to determine exactly what allergies/disease that you have.
Lastly, don't make your wheat intolerance the center of every conversation or thought. Really, no one wants to hear it. Deal with it intelligently and by actively seeking information and resources. Right now you are operating on assumptions - see your doctor!