This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
If it's any consolation my periods are way better since I went gluten free. They are less painful, shorter and best of all I have so much less PMS beforehand - it used to be awful and last up to two weeks before my period started. I used to feel like my hormones ruled my life - in a very negative way! They are not very regular now, but that could be because of the stress of imminent emigration...
I agree with the idea that cycles have a run in time of a couple of months - it may take a while to see positive changes, but yes, absolutely gluten issues affect hormones in the body - how about the effect on thyroid levels for an example?
Gluten/wheat derivatives turn up in the weirdest places. It really wouldn't surprise me if it was in sanitary products too.
Nobody ever got sick from gluten deficiency. Try the diet and see if it helps! Wait until after the tests though, since they are so soon anyway and going gluten-free now would mess them up according to the medics. A gluten-free diet is worth trying anyway though, even if you don't get a diagnosis - see all the other posts on these forums about that issue!
One of my kids is tall, very strongly built, the other petite and slim - not sure there's any correlation there. The eldest did break both bones in her forearm really badly jumping off a kitchen chair and landing on the concrete floor though (pre diagnosis). One bone snapped, the other shattered and bent like a banana. The surgeon had never seen anything like it. Looking back, I don't think it was coincidence. Both kids have terrible teeth. So does their dad and his (untested gluten-free sceptic) sister and mother. Hope that helps!
Could also be a twisted kind of denial - some people are soo determined to "prove" that celiac is all in your head they will try and prove it to you by "testing" you - secretly or openly - by glutening you on purpose. If she is having to face the possibility that actually, she might need gluten free food too, but doesn't want to accept it, that can only make matters worse.
We got round any such issues by going gluten free as a family, it doesn't have to be expensive although it can be limiting at times. Actually, we all felt much better for it. If your sister is that anti-gluten-free, she might then move out and solve your problems!
Poor thing! That's horrible. Have you had your thyroid activity checked lately? How certain can you be about cc - some people are incredibly sensitive to even tiny amounts of gluten, maybe you are one of them? (Sharing a teflon coated pan with a non gluten-free cook could be enough).
I tend to agree with the others - time to get checked up by a doctor, if only to rule out all the possibilities you are probably worrying about. Hope you get better soon.
No worries! I am so used to people thinking I am a nutter for believing my daughter's neurological symptoms are coeliac related I am probably just horribly over-sensitive! It did occur to me that I should have offered some sort of evidence for my statement - it does sound far out! This is a good summary:
I mentioned this because my daughter suffers seizures when she has been badly glutened which look like epilepsy (she falls unconcious and cramps violently) but according to the medics are something different as they last too long, up to a few hours at worst. Possibly extreme migraines as she gets a visual aura first. The attacks have continued even after the intial "poisoning" (what else can you call a huge plate of ordinary pasta for school lunch!!!) which put her in hospital, although they have got milder, leading me to believe that some serious neurological damage was done which is hopefully now healing to some extent. A lot of the comments in the behaviour forum rang a bell too.
Have you looked in the Gluten Intolerance and Behaviour Forum? There's loads of stuff there which strengthens the argument for a neurological connection. I've also heard of research on epilepsy which fails to respond to medication but is relieved by a gluten-free diet.
It took ages for my insides to go back to normal after I quit gluten - not unreasonable, after a lifetime of damage! In fact, for a couple of weeks after an initial honeymoon period, I actually felt worse before getting better again. But I did get better! Hang in there!
Depending upon how sensitive you are, cross contamination could be an issue, even from cooking utensils, etc. My daughter got quite sick from gluten-free bread made in a very well-washed teflon lined bread making machine. We are going to have to bin it and get another one... She has also had problems with the "gluten free" school meals cooked with the same utensils and equipment as the ordinary meals. Sometimes washing stuff thoroughly just isn't enough. If you are sharing cooking facilities with non-gluten-free cooks it is worth having your own pots and pans, etc.
Ha! Maybe I am just senile! Just remembered that there is some interesting stuff being done in Christchurch, NZ on the possibility that gluten has neurotoxic effects and isn't *just* a gastrointestinal issue... A very quick google revealed this: http://www.celiacosmadrid.org/The_gluten_syndrome__A_neurological_disease.pdf
I'm sure I remember reading something more recent in the paper though. Now where did I put it?
My daughter was getting cc problems from the so-called "gluten free" food at school which we found out about when she got physically sick. Talking to her teacher we discovered that she was way behind in school and was struggling to scrape in half marks in her weekly tests. Apparently she did no work at all after lunch. I started sending a lunch box from home and the results were immediate and amazing - full marks in all the tests and no more lost afternoons! Empirical evidence for hubby if he needs it!
My symptoms were more like MS - clumsy, shaky, terribly tired, poor memory - I'd have notes all over the place to remind me what to do. Some days I'd have trouble speaking properly, almost as if drunk. I am fine on a gluten free diet.
We found out my eldest was having problems concentrating in school after she got physically sick from cc in the school meals. Only then did her teacher say that no work got done after lunch and that she seemed to be in a dream all afternoon... I started sending a lunchbox with her and her weekly test results improved dramatically, from barely scraping through to full marks. I wish her teacher had talked to me earlier, instead of just getting mad at my daughter for being "lazy and forgetful"!
I always wonder how many other kids are suffering the same fate...
A quick update - my daughter went from scraping through her weekly tests with half marks to getting full marks (even in maths) once she stopped eating the "gluten free" school lunches and just ate what I sent from home. Her teacher *was* surprised! Does that count as scientifically proven?
I know when my eldest has been accidentally glutened because her behaviour gets so odd - she gets loud, agressive and hyper and this is wierd, makes loud sudden noises for no apparent reason. On the occaisions when she has been severely glutened she passes out and suffers convulsions - there's no doubt in my mind that gluten can have severe neurological side effects in sensitive individuals.
The itchy rash could well be eczema - a scratchy label in clothing can be enough to set it off. DH looks like "mini chickenpox" and is super itchy. Changing laundry powder for something milder (without enzymes) and skipping soap for a bit can help, as can a good moisture rich skin cream (hemp oil is great) and flaxseed oil food supplements. We found that our eczema pretty much cleared up once we went gluten free.
It really sounds a lot like celiac - you won't necessarily get positive tests results though. I'd agree with Shadowicewolf that it's worth trying a gluten free diet - you could well see results pretty quickly, my kids improved literally overnight. It doesn't have to be super restrictive, there are a lot of options out there if you are prepared to spend time reading lists of ingredients! Can you get advice from a nutritionist/dietitian? Other food sensitivities can become milder once you deal with the gluten problem and the gut starts to heal. Good luck!
My daughter gets eczema round the edges of her eyes, looks like she's been crying, or at worst like conjunctivitis - it clears up when she's gluten free. A recent problem with cc in school dinners seems to have brought it back on again, but it's going away again now she's taking a lunchbox. Must be a connection!
I had huge dark rings under my eyes before going gluten free - they're gone now! It's been better than a face lift! I think you really can see when some people have been glutened.