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momtojzsh added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsTest Results On KidsOkay so I was diagnosed a couple of months ago, and so I had 2 of my kids tested(the ones I figured needed it for right now)They are 6 and 7 years old
The tests came back and the doctor said they are both negative.
Anti-endomysial Ab was negative in both
tissue transglutamin IgG and IgA were both <3
IgA was 54 in one and 79 in the other.
Okay so does that mean they don't have it, and will never have it, or should I keep an eye on it and have them retested.I don't trust our primary care doctor at all with any of this, he is completely clueless to all of this.
Thank you for any info!!
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momtojzsh added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)Newly Diagnosed-Collagenous Sprue Any Others?Hi,
New here to the forums.Recently diagnosed with collagenous sprue after years of all kinds of symptoms.Diagnosis was based on biopsy results.No help fom the doctor yet.He told me what I had, told me to go gluten free, and said I needed to go to a specialist(and walked out of the room).Now waiting to see a dietician and GI specialist.So far everything I am doing is based on what I have found on the internet.Wondering if anyone else has experience with this.Thanks,
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