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rgarton added a topic in Celiac Disease - Coping WithMucus Problems And ExerciseOkay yes gross stuff.
I'm a recovering celiac. Nearly three years now. Still suffering a touch.
Whenever I start exercising again for some reason I get that 'need to go' feeling but not completely, then I know, the dreaded mucus stage is coming. Just mucus.
I don't like it!
I've been okay stomach wise and been coping a lot better.
I am under stress at the moment but I deal with stress fairly well.
I started doing exercise and voila it appears again.
Anyone else have this problem or could just help shed some light on this awkward situation?
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rgarton added a topic in Celiac Disease - Coping WithToo Much Salt And Fat Potential Problems?Hello again,
I was just wondering if anyone else had bad probelms with too much salt or fat?
I ask because yesterday i ate a whole bag of salted/roasted macadamia nuts, its not a big bag but enough.
I do eat them occasionally but not a whole bag. So i woke up this morning with agonising cramps in my lower stomach and the inevitable happened, really loose stool, like mud, not watery, and had to go to relieve myself a few times before the cramping died down, i also took a paracetamol because it hurt so much, i rarely, rarely do this. I think cramps are a natural thing but this morning was too much.
I also had rice last night which if anything usually binds me up, but i've been reading more and more about how rice can adversly effect some people when they have too much. But i don't think i have as i havent had it for quite a few days now.
So I'm wondering if people on here if they have to much salt/fat do you get these types of symptoms and does it make sense? If so I'l stay away from the amcadamias no matter how delicious they are.
Thanks in advance.
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rgarton added a topic in Other Food Intolerance and Leaky Gut IssuesMy Stomach Is An Evil Dictator And Need Putting In Line, Anyone Wanna Help?Hello guys,
I haven't been on here fr a very long time now, but your always here and ready to help so i'm asking for help.
I've been strictly gluten free for a year and a half since my diagnosis. I also cut out all dairy, soya, tomatoes and peppers. I'm a vegan by proxy. I havent eaten meat since i was 4.
Most mornings I wake up, and within 10 mintues I have bad lower stomach cramps and urgency to go t the bathroom.... Were getting to the TMI bit and i apologise. Its usually a dark brown (I take iron) and i don't know how else to put it but it is like the consistency of soft ice cream, or a cowpat, now formed except a few pieces and so soft but not watery. Its horrible to be blunt.
Some mornings i don't have to go at all, which is delightful, and usually after I've eaten white rice with peas and brocolli the night before. But if i keep eating rice i become constipated and thats not good. So here is my diet
Morning: Breakfast cereal made from rice which is the only cereal i can have.
Lunch: 6 rice cakes, two with avacado and four with sunflower spread and organic peanut butter.
Snack: Apple, Banana or a handful of almonds if i have them.
Dinner: Rice with peas and brocolli, Mashed potato with peas and brocolli, gluten-free pasta with gluten-free/df/sf pesto with brocolli and cucumber.
I also do not drink any caffeine, i drink herbal teas and water. Occasionally elderflower cordial.
I have cut most corn out of my diet as i was having sweetcorn and it improved things for a little while which i was super excited about but it came and smacked my smile off my face. The only remaining corn in my diet is a small section of my pasta is made with it.
I was thinking maybe it was the potato as i can't tolerate any other nightshades, but tbh my gastro issues aren't much better anymore from not having them so i don't even know anymore...
All my hair/make up etc are wheat free/gluten free etc. I'm so careful about CC, it basically isn't possible. I never eat out. I don't even generally go out!
I go to the gym every day because i have osteopenia at the moment and they don't want me taking calcium tablets because of possible heart problems that run in my family. So I'm doing weight bearing excersises to increase my bone density instead which apparently is better for you anyway.
THIS SUCKS. I'm open to all suggestions, please anything... I'm so sick of feeling this way. Of my stomach controlling my life.
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rgarton added a topic in Celiac Disease - Coping WithMy Mum Thinks I'm Over Reacting :(Hello again, you wonderful supportive people.
I'm 22 and living at home, in a little debt and have super sensitive celiac disease. If i touch a cereal bowl my brother has used (glutened all over) I get ill. My mum rolls her eyes at me and tells me there is no possible way to get glutened off a cereal bowl thats in the washing up... But i do. She has Celiac disease too, but isn't careful and doesn't get reactions like mine.
I recently got told to cut out all dairy, including lacto free milk and cheese, she again thought I was being dramatic, but its been just over a year since my diagnosis and i still feel awful and am desperately trying to find out what is causing me all this pain and every day discomfort. I'm on coconut milk now, but don't have much of it.
I spoke to a dietician who thinks i may be allergic to nightshades and possibly corn too. I already know tomatoes, soya are a no no. I've had a feeling about peppers (although i adore them) but last night even though i told my mum this she went ahead and made us a meal, with peppers in and I couldn't bear to say anything so i made some rice had some of the food she cooked me but ended up eating in my room just so i could leave it until she was out to put it in the bin, i had a little bit, not the peppers, but this morning had a bad stomach, i had also asked her if she could not use chilli beans but she did anyway. And last night i felt so depressed. Also that morning i had doves farm gluten free cornflakes, they are so tasty but i have a bad feeling about corn...
One! Has anyone else had a reaction to corn, if so what was your reaction like?
Two! Does anyone else have a problem with nightshades but are seemingly okay with potatoes (i think im wishing im okay with potatoes)?
Three! Does anyone else have a celiac family member who thinks they are over -reacting and how did you deal with it?!?
Four! How the hell do you cope with all these restrictions?!? I'm so tired of all of this, im feeling so low already!
Thanks guys, you are all my rocks on hard times!
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rgarton added a topic in Super Sensitive Celiacs & Gluten SensitiveHot Flushes?On my doctors advice i gave up lacto-free milk and started rice milk, little did i know it contained barley, so after two days i switched to coconut milk, which i nice enough. I had a few symptoms of course, and today is pretty bad, but it's very unusual for me today as usually i'm one of the coldest people I've ever met, but today i feel hot and uncomfortabel, ive checked my temp but am fine normal temp, but to touch i feel hot...
Does anyone else get this?
Thanks for any info!
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rgarton added a topic in Celiac Disease - Coping WithAnyone Else Lose All The Friends?Hello again,
I'm in tears and this is the only place i can think of to ask and relieve myself.
I got diagnosed just over a year ago and have been battling ever since. I'm still not well. But enough of that.
I had a best friend and quite a few close friends before i got ill, then i got diagnosed and my new partner was my rock. I could barely function at all you all know what it;s like. And all my friends, or who i thought were my friends fell off the map.
I've tried on several occasions to get back in touch but nobody gets back to me. When i fell ill, i wasn't mean or emotional or anything. Just could barely leave the house. I always text, call email all of them but they replies slowly came to a halt.
I like to think if one of them had got diagnosed with severe celiac disease, or anything I'd make more of an effort to stay in touch, to make sure they were okay... But nothing. Not even a 'hope your okay' Nothing. Nada.
I have my partner and that's it. He is amazing. But i actually have no other friends anymore. Its horrible realizing this.
Did anyone else experience this? I'm sorry to moan and rant!
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rgarton added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)Coming Off Dairy Products Side Effects?After a year of telling the doctors something was wrong i finally got diagnosed with Coeliac Disease, the highest reaction they had ever seen. Before they told me it was panic and IBS. I could have beaten them up.
So a year has come and gone and i was still having symptoms, after working out i was allergic to soya and tomatoes, something still wasn't right. I was on lacto-free cheese and milk.
I finally found a doctor who listened and told me to stop having lacto-free stuff and have rice milk instead and see how it goes for a couple of weeks.
Its my third day (morning) and yesterday i was slightly constipated but today not so at all. (Before i cut all dairy out it was like mud and mucus all the time.) But now it was fluffy and ragged, will this just take time to adjust? I prefer the mud like BM's!
It's freaking me out. Sorry for the TMI!
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rgarton added a topic in Celiac Disease - Coping WithAnother Tmi Topic! Sigh!I know lots of topics like this but voila this is what were all here for right? Support and knowing at least one other person with Celiac disease is going through it too!
So to begin with the tmi, apologies!
I've been going from constipated to what can only be described as mud like stools in a matter of days, its infuriating, im fine with constipation, its better than the other way! But i still go to the bathroom every day its just well small amounts with mucus, after a couple of days like that, i had a bm yesterday which was surprisingly thin, not pencil thin no, just thinner, but i had hardly eaten anything the previous days (just get fed up with food) and today voila after yesterday almost pigging out for me, but no one else agrees just ate more than usual, i woke up, bm was soft, and well mud like, its dark, but because of my iron tablets, but also first bit of it was hard and covered in mucus.
After 10 months being gluten&dairy free (very strict) and 8 months soya free... when the hell is all this nonsense going to stop?!? I dread morning time, absolutely hate it and it ruins my day when i have days like this. Has anyone got any advice, my doctors just seem to sigh at me whenever i call or see them now, i don't think they realise how badly it effects me! Oh and I'm losing weight again, this time last year i was 10 and a half stone, now im only 8 nd a half, i dropped to 9stone in a matter of weeks and have been bobbing along around 8,10 for months, but now im 8,7... I am so so so fed up and tired!
Someone please just say they're going through the same thing or some advice?! Thanks!
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