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kota added a topic in Celiac Disease - Coping WithEtiquette For Thanksgiving?Hello,
I wasn't sure which board this would be best for, so I'll try this one. My husband and I had planned a quiet Thanksgiving for just us and our boys (we don't have family nearby anyways), and have our gluten free meal planned and bought. A (newer) friend of ours was planning to do the same thing with her family, so I suggested maybe getting together for just dessert in the evening and invited them over. She then invited us to all of Thanksgiving dinner at her house instead. I offered to have them over, since I have so many food restrictions. (I should mention I am celiac, lactose intolerant, and 35 weeks pregnant with barely-controlled gestational diabetes). My friend hasn't told me yes or no yet, she just said we'd talk about it later.
My questions are regarding etiquette: Was it rude to turn her invitation down for the whole meal and to offer to have them over instead? Was it strange for me to initially only invite them over for dessert? My intentions were good: I knew we had both already planned our separate meals, and I figured doing 'just dessert' would be fun and easy without the pressure and our kids would have fun playing. (not to mention less contamination potential, and I can still make our whole meal gluten free without feeling odd about the food being a little 'different'). I would still prefer to do just dessert, but I'm not sure if it's just plain wierd. Just needed some other opinions.
Thanks and Happy Thanksgiving!
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kota added a topic in Celiac Disease - Friends and Loved Ones of CeliacsGuide For Family/friends Available?Hello,
I haven't posted in quite awhile, and not sure if this question has been posted or not:
Is there a guide (book, website, blog, pamphlet, anything...) written specifically for family and friends about celiac disease/gluten intolerance?
Mostly because of an elimination diet, and also a quesionable biopsy I have been told by both a GI doctor and a dietician to avoid gluten. Even with that, and all the information that I read and share, my husband just does not 'get it'. He is off work this week and next which should be wonderful, but I am suffering as a result of cc issues. Not exactly the way I want to spend Christmas.
He thinks he does enough to keep food separate, but then won't wash his hands between touching his wheat bread & my food. Or, he'll just brush some of the wheat crumbs off the counter and think it's clean (half the time he doesn't even make that useless attempt).
I was thinking if there was something written specifically for family members it may be helpful for him. There is lots of good info out there, but nothing I have found with that target audience. Maybe I am going to have to write it myself? (With a title something like "Help! I Married a Celiac!")
Thanks for any help in advance.
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kota added a topic in Celiac Disease - Related Disorders & ResearchBlood Sugar / Diabetes QuestionI recently got a copy of some medical records from a former doctor and discovered that they 'forgot' to tell me lab results from a year ago (prior to going gluten free). I was so upset to discover that I am (was?) pre-diabetic. I have always known I have a larger risk of having diabetes (long family history, and I was a gestational diabetic), but had been told my glucose levels were normal - which they are not, or weren't a year ago. I'm a healthy weight and I exercise so that 'should' keep my risk down a bit. I must admit the thought of 'one more' dietary issue is more than a little overwhelming.
I will, of course,be going to my current doc soon regarding this, but was wondering if anyone knows of any good information I could find about celiac and diabetes? Most everything I find is regarding type 1 diabetes - can I assume there isn't much of a link between celiac and type 2 diabetes? I'm curious to see if going gluten free has affected my glucose levels at all (for better or worse).
Has anyone else had similar issues?
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kota added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)Confused About An Almost-DiagnosisHello, I'm new to the forum and not sure if similar things have been posted...but I'm a bit confused about what to think of my 'almost' diagnosis.
Last spring/summer I was tested (blood test) for celiac disease. While I was waiting for the results, I looked up some information about celiac and thought "wow, that so sounds like me!" I cut out gluten for 3 days, and started to feel better - but my blood test came back negative. I told my doctor about cutting out gluten, and asked for a referral to a dietitian. I did an elimination diet and sure enough dairy (which I already knew) and wheat made me sick.
I got about 75% better on a gluten free diet - and I finally just had an endoscopy/colonoscopy to confirm it and check for any other issues. I didn't eat gluten prior to the endoscopy, which I knew I should have - but I only had a few weeks prior and who wants to purposely feel sick anyways?! The doctor's report stated:
"minimal inflammation in the duodendum. Celiac disease could account for the changes, but the changes are very mild. It is difficult to say whether you have celiac disease or not, but with negative laboratory tests, this makes it fairly unlikely"
I had been gluten-free for 9 months at the time of my endoscopy. I thought that any inflammation in the small intestine would be enough for a diagnosis - especially being that I'm not even currently eating gluten?? And don't a lot of people have negative blood tests, but are positive for celiac?
I know it seems silly to want an 'actual' diagnosis. It's just that I have family and friends who are so doubtful and think I'm just being picky, making it up or being high-maintenance. I continually get comments like "just a little bit won't hurt" or "you're not that sensitive, are you?" I feel like a real diagnosis would give me something to stand on. Has anyone else had this issue? And when I fill out medical information do I write celiac disease or gluten intolerance?
So sorry this is so long! Thanks so much for any advice - I'm so glad to finally have a place to come to ask questions!
- 7 replies
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