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Poppi added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsThink It's Time To Abandon The Gluten ChallengeSo I've been gluten free for 2 1/2 years. My doctor has been wanting me to do a gluten challenge and I've refused.
However, my middle son was diagnosed with Autism recently and as part of the full physical workup his pediatrician wants him tested for Celiac as well as all the other possible metabolic/genetic issues that can show up in kids with autism. Sounds rational to me and I figured that if I have to feed him gluten for the whole summer it would be almost impossible for me to avoid cross contamination so I might as well do the challenge as well.
Week 1 was fantastic! I ate all the things I have missed. Croissants, good bread, cinnamon buns, homemade goodies, burgers at restaurants.... I have to admit I really, really enjoyed the first several days. However, today is day 12 and the back pain and nausea hit me hard last night. I was up at 5 this morning because my back hurt too much to continue lying down and I'm cranky and nauseous.
I can't decide what to do.
Continue gluten challenge?
Pros: I am enjoying the food, I could proceed with testing, it's easier to do my son's challenge if I am not gluten-free myself, there are still foods on my bucket list I haven't eaten yet
This is my 3rd attempt at a gluten challenge, the other 2 attempts didn't even last a full day, if I bail on this one I will never try again so as far as testing goes, it's now or never.
Cons: I feel really sick and sore and that's not going to go away until I ditch the gluten again.
Mostly I'm just really disappointed. I had hoped when my first week went so well that I had somehow magically healed my gluten issues and I could go back to all the foods I love and miss.
What to do, what to do.
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Poppi added a topic in Gluten-Free Recipes - Baking & Cooking Tips1000 Gluten Free Recipes - Carole FensterSo a week ago I bought 1000 Gluten Free Recipes by Carole Fenster for my tablet. I was curious and it was an experiment to see if I liked cookbooks on my tablet rather than in paper format.
I discovered that I hate cookbooks as ebooks but this is a great cookbook.
I have made:
Cinnamon Raisin Bread (twice)
Granola with Dried Fruit
Lemon Poppyseed Muffins
Chocolate Chip Cookies
Chocolate Cherry Coconut Cookies
Double Chocolate Cookies
Lemon Poppyseed Scones with Lemon Glaze
The Oatmeal Bread collapsed on itself but that was my fault for massively over-rising it, it still tasted good and we ate it all.
Other than that one mistake everything has been wonderful. The Lemon Poppyseed Scones are really great. I made them today and they are almost gone. I will be making another batch this evening to have in the freezer for coffee dates.
I was a bit apprehensive about buying the book since many of the recipes call for Expandex which is a modified tapioca starch that is nearly impossible to get in Canada unless you want to pay a fortune to have it redirected across the border by a 3rd party shipping company. I made the muffins without it and they were great. I have also just subbed xanthan gum in the recipes which call for both xanthan gum and guar gum and haven't noticed any problems.
If you are looking for a cookbook, this one gets a great review from me. (As I sit here munching on my Lemon Scone)
Oh, and a huge bonus for me is that she uses almost no rice flour in the cookbook. Her basic blend is Tapioca, Sorghum and Corn or Potato starch (whichever you prefer) I use Corn starch as it is cheaper. I am thrilled since my niece is allergic to rice and oats and I have an awful time trying to bake for a family gathering. Now I have a whole bunch of great recipes that are gluten/rice/oat free.
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Poppi added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)Couldn't Tolerate Coffe But Now I Can?I am just shy of 11 months gluten free and one thing I noticed when I went gluten free was that coffee also made me feel awful. I would feel glutened for 2-3 hours complete with brain fog, sour stomach, big D, back ache and headache.
A few months ago I start experimenting a bit because I really, really miss coffee. I found that I could tolerate a decaf a couple times a week and be fine. So when I was out with friends I would occasionally indulge a decaf latte and feel okay. Sometimes I'd get a headache but no big deal.
This past week I have had a terrible head cold. This morning I found myself with a terrible Benadryl hangover and decided to go ahead and grab a cup of coffee. So I busted out the French Press and made a cup of medium strength regular caffienated coffee. It was amazing and I felt fine. I'm on my second cup of the day and I still feel fine. Great in fact! I probably won't sleep tonight as this is my first regular coffee in almost a year but I am enjoying it immensely.
Is this a result of my gut healing? I have noticed my gluten reaction changing as well. I accidentally glutened myself with the chicken feed last month and had horrible D which wasn't a normal symptom for me before. Healing gut = changing reactions?
Anyway, I'm just curious what the experts say.
For what it's worth, I can't ask my doctor about this because she refuses to acknowledge that I might have a gluten problem unless I do a gluten challenge/bloodwork/biopsy.
Edited because caffienated fingers can't spell.
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Poppi added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)Surprise Mystery GluteningI have always said that the worst part of celiac is not being able to just go out for dinner or enjoy all the dishes at a potluck or be spontaneous about eating out.
I was wrong.
The worst part of celiac is having sudden, painful, explosive diarrhea at someone else's house.
I felt some ominous rumblings in my tummy last night but shrugged it off and went to go knit at a friend's house. Big mistake. The only silver lining is that she suffers from IBS so she understood and gave me some immodium so I could make it back home at least.
I haven't left the house in 2 days until last night. My kitchen is gluten free. The only source of gluten I can think of is the chicken feed. I generally don't touch their food but yesterday I had to pick up a chicken and wash her face because she had some dirt crusted on her comb and I wanted to make sure it wasn't dried blood. Perhaps some dust from their food got on my hands and wasn't washed off well? Who knows.
What is interesting is that my reactions used to be purely inflammatory. My joints and back would flare up and the burning pain would last for days or even weeks but I had almost no digestive reaction. Now I notice that my reactions are almost purely digestive. The crappy part (no pun intended) is that the reaction is sudden and horrible but the good part is that it's over by the next day and I feel better faster than I did before. Is that common?
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