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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity

Katie H

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About Katie H

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  • Birthday 06/29/1994

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  • Gender Female
  • Interests Pony riding, soccer, track
  • Location Upstate NY
  1. Hello, I'm Katie. I'm 17 and I've only been diagnosed with Celiac for about 3-4 months now. Still challenging and frustrating, but it's getting better!
  2. Oh that might explain why I feel hungry so often. I just started taking vitamins and taking soy completely out of my diet. I feel great! Soy free for a few days now and my stomach hasn't hurt at all. I haven't felt this good in a very long time. Thank you for your help!
  3. So no dairy, soy, or sugar. I think I can do it. Have you heard of Kefir? It's a yogurt type drink that I get sometimes and it has probiotics in it. Is that okay to drink? It says it's 99% lactose free. What other probiotic's are there? I also really like yogurt like chobani or stonyfield. Should I give that up for a while? And when you say whole foods that means vegetables, fruits, meat, rice, ect? Does the sugar in fruit count as the sugar you're referring to? Sorry for the questions. I'm trying to slim down a little bit too so maybe this will be good for me.
  4. No, we don't have a gluten free counter or anything. We do keep my gluten free food separate from all the other food in the house but it's not like it helps that much since it's all packaged. I probably do need to just be more careful about putting stuff on the counter. That could be my problem. I'm going to try going without soy for a little while and see if I feel any better. Thank you for your reply.
  5. Hello I'm 16 years old and I was diagnosed with Celiac Disease about 2 months ago now. My symptoms started about 3-4 years ago but I just assumed I was lactose intolerant. So, I took lactaid pills whenever I had any dairy. It seemed like the pills helped, but I still was uncomfortable. I think my symptoms have just gotten worse (or I've just gotten tired of being in pain all the time) so I decided I should see a doctor. And sure enough, the Celiac Disease blood tests were positive. I'm getting a lactose intolerance test in a few months after I get some time to heal. Pretty sure I didn't have any other malnutrition problems. I'm a healthy weight (pretty much perfectly average, BMI of 21). My Mom has basically become obsessed with making sure my foods are safe, which is making it much easier to avoid gluten. But of course, I've still made several mistakes and have accidentally eaten stuff with gluten in it. I'm still learning and researching almost everything I eat. I've even been good and changed toothpastes since the one I was using could possibly have gluten in it. Other than going gluten free, I haven't really changed anything else about my diet- I still have dairy with lactaid pills, corn, soy, beans, fruit, and vegetables. I've still been very uncomfortable though. I don't feel all that different from going gluten free. Maybe I just feel less depressed, that's all. I haven't really had a good #2 for probably over a year now. Because of this, I went to see another doctor who put me on a mild (gluten free) laxative to get things moving better. She said I was just constipated and I needed to get on a more normal schedule of going to the bathroom. She also said that I would be pretty uncomfortable for a while on the medication, but the pharmacist said I shouldn't feel bad at all so I didn't really know who to believe. The laxative does seem to help me go at least, but I still have terrible gas pains sometimes. Basically all it's helped with is allowing me to go when I feel that I need to. But yet, I feel better after I go only for a little while and then the pain starts again. I just always feel like I have to go plus I have a gassy stomach and it's pretty noisy and gurgly all the time. During school it's just the worst since I can't always be in the bathroom (it's also rather embarrassing so sometimes I just hold it all day). Sitting down in class seems to make the cramps and gurgles worse. The pain is mostly in the lower part of my abdomen, but just the whole general center of my abdomen feels like there's so much pressure on it. Occasionally I have diarrhea or loose stool (like this morning), but usually my bowel movements are relatively normal. I've cut back on the laxatives since she said to when I felt like things were moving better. I have to stay on them for 3 months. I don't really know what my symptoms were from Celiac Disease since I never really had much time to be completely gluten free. I feel anxious sometimes when I'm home, like I can't relax. I also don't sleep nearly as much as my friends do. I don't know if this is a symptom, but they can all sleep for 8-10 hours. I can only ever sleep for 8 and then I wake up. Usually, I have to force myself to stay in bed but I just feel like there are so many things I'd rather be doing so I get up. I haven't really slept well for years now and I have terrible dark circles under my eyes. Maybe I'm just super sensitive to gluten? I can't go to Dunkin' Donuts even for a simple coffee without feeling sick. Every time we go to a restaurant I always feel sort of nauseous and have diarrhea the next day, even though I'm very careful to order gluten free things. I just realized something too- I wear a retainer sometimes at night since I used to have braces. Maybe I don't clean it well enough from when I used to eat gluten foods? I probably wear it 3-4 times a week. So what I'm wondering is if it's the laxative that's making me feel sick sometimes or if it's some other food I'm eating. My issues vary so much- for example, the other day my stomach hurt alot during the day (midmorning-lunchtime is when it usually starts, even before I eat) and I didn't go to the bathroom all day. Around 3, I went home and went to the bathroom. I felt much better then. But then at nighttime, the gurgliness came back and and gas pains. Help!