This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
Please write a letter to your state senator and also the FDA. I did this about a year ago and got an excellent response from my senator (Orrin Hatch). He actually contacted the director of the FDA on my behalf (and forwarded me the response) and I think if more Celiacs speak up about these types of situations, we might eventually make some headway.
I've used Bette Hageman's flour for a couple of years now and I love it. I use it as a "normal" flour substitute and for the most part, the food still comes out good. I use it to fry chicken, make gravy, etc.
Yes, I've had tooth issues. 11 cavities in about 18 months, with proper hygiene. This was shortly before I was diagnosed. I have also had hair loss issues, which I attributed to being hyperthyroid at the time.
I've been going through the same thing. It is so frustrating. I too have been without a medication for about 3 weeks now due to the fact that I have to get my Dr. to write a letter to my ins. company explaining why I have to have name brand when generic is available. It's ridiculous.
Well I have one, but I was the only person that was going to eat it, so I don't know if it counts, I'll tell it anyway.
Just last Thanksgiving I was going to make a gluten-free pecan pie (my favorite!) Anyway, I tried a new recipe and the crust was made out of gluten-free cereal. I used gluten-free frosted flakes type and I'm thinking maybe I should've used a different type. Anyhoo, during cooking for whatever reason the cereal "crust" basically fused into an inedible very hard lump. It looked like glass, lol.
First of all, don't beat yourself up over it. I did the same thing. I was 100% gluten free for a little over a year and then I dunno...went crazy and was not careful about my diet. I wasn't eating gluten every day, but on a weekly basis.
What finally got me in the mindset that this was something I had to do, was when I started thinking about the consequences of not being gluten-free. Also, I spent years being really sick before my diagnosis (over 10 years) and I thought why on earth do I want to go back to how I felt then, when I have a way to be healthy and not have those issues?? I also was of the mindset that a little won't hurt. Well that in itself is wrong, but not only that I felt that for me it was a slippery slope. A little turned into a little bit more and a little bit more.
So now I've recommitted myself to being 100% gluten free. In fact I marked the day on my calendar just as a reminder of how well I've been doing. You just need to remind yourself of the importance of staying gluten-free and committing to it. I've found that places like this message board are a great reminder of why we need to stay gluten-free, and are full of great people who have answers to so many things, including many yummy gluten-free recipes.
Before being diagnosed and going gluten-free, I would have to run to the bathroom after eating. It got to the point where I was almost agoraphobic, it was horrible. In fact I didn't fly on a plane for about 8 years due to the fear I had of not making it to a bathroom.
Now, if I get glutened it's more delayed and not quite as severe.