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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About aeb

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  1. My mom volunteers for a non-profit exchange program here on the east coast of the US. She recently noticed a young man who has celiac disease and is coming to the US for a year. The students who come live in a host family during their stay and attend the local high school. My parents and I cannot host at this point in our lives, but my mom believes that it would be best if he had host family who follows a celiac diet. The student's designated region is on the east coast of the US. My mom asked me to post on this forum (she knows that I have gotten support and knowledge here in the past) to see if there might be someone interested in learning more about hosting this young man (interest is understood to be wanting more information and nothing more). Please message back if you would like information or have any questions. I understand that hosting is not for everyone, but if you know anyone or you yourself would like more information please reach out to me. I myself was an exchange student and had a wonderful experience made all the more special by the strong bond with my host family.
  2. I lived in Argentina for a year after high school, I now speak Spanish fluently. I took a semester of portuguese in college. But I think that immersion in the language is the best way to learn a language. To get started without a big investment a lot of libraries in the us have language learning discs (good for in the car). Also the bbc has online language learning modules for free.
  3. I'm by no means an expert on this, I have a bit of a distrust for drs. I would think the apt will be very different if you have already been diagnosed than if you haven't. I think there a lots of posts on what tests to ask for. I would suggest writing down symptoms you have, when you started noticing them, and when during the day the symptoms occur. Good luck!
  4. Maybe another celiac student will start at your university next semester.
  5. I love word searches, as soon as my finals are over I will reward myself by playing the puzzle!!! I really should be writing a final paper now
  6. My dad and I will be walking in the Macy's Thanksgiving Day Parade in NYC. Ironically we were assigned to the Pillsbury Dough Boy, I guess he is really cute though. My favorite food cartoon as a kid!
  7. Building Momentum

    I have often considered becoming a volunteer firefighter, but with my current schedule impossible. I did join one in the summer of 2010, but again I was too busy to really get trained (AKA save someone) and then I moved. They do have some positions that are less physically demanding (at least they did in the area I lived). Plus, I think a major part of becoming a firefighter is building up the endurance to actually be one. I think you should go for it, maybe not as a career change but volunteer, if there is a volunteer department in your area and you would have the time.
  8. Frequent "glutenings"

    My little sister is also a bit jealous of the "attention" my mom gives to my special diet. I am living at home while at grad school, my sister spends most of the year away at college. So my parents and I are really close. My sister decided to become a vegetarian right after I went gluten free. I haven't seen her actively putting gluten in my gluten free condiments and things, but she is always putting my food down and saying that just a little wont hurt. So I started making a big deal about accommodating her vegetarianism when she visits. Maybe try to find something to "accommodate" your sister, give her some additional attention.
  9. I have always had a lot of hair, and correspondingly loose more than most. When I started getting really sick I was loosing lots and lots, I mean shower clogging amounts. After going gluten free my hair is staying more where it belongs, on my head. However, when I get glutened my hair starts falling out a bit more. It took a while for me to notice that it wasnt falling out as much, nearly a year after going completely gluten free. Give it some time and be glad that you started with a lot of hair.
  10. 1) Remember you get the sick feeling after eating gluten, the people offering you suspicious (or openly) gluten filled foods....they only get the good feeling of sharing with you 2) Its important to be comfortable and healthy, it is not necessary to justify the gluten free diet (or any other).
  11. Grr...

    I have mentioned trying gluten free to my sister a few times. Her response is always...but then what would I eat. UMMMMM.....have she not seen the shelves full of gluten free foods in the house. I probably have more yummy snacks than she does, and they aren't even all sugary. She always mentions that I get anxious, tired, and snippy (to be polite) when I get glutened when my parents take us out to dinner (they all see it as a special occasion, I see it as playing russian rulet). Yet, she is much more anxious, snippy, and tired than I am. It is fear of the known restrictions that puts people on the defensive. And yes, you do "get used to" feeling sick, after so many people told me I was exaggerating, making things up, having mental issues, etc....I thought that I was and everyone must feel as sick as I did. Our family members just don't realize they aren't healthy but can be. I have decided to hope that eventually they will decide to try it on their own, I can't force them.
  12. Food Lion?

    When I was there last summer there was a great whole foods store. I never went myself but the person who did the shopping came back with a bunch of stuff labeled gluten free and said there was so much she didnt know what to get. Even in the prepared foods section, they reassured her that everything is prepared separately and no switching of spoons (the staff served it). The shopper was a nutritionist so she knew what questions to ask. Maybe there will be a whole foods near where you are going.
  13. You may not believe this but even as a grad student I have felt this a little. I being cereal with me to my early morning class and snack during break. The other students "tease" about my kix cereal, and not its not actually kix but a gluten free version. We then went through the whole, want a piece of my muffin thing, no thanks im allergic, it doesnt have nuts, im not allergic to nuts thanks anyway, then what are you allergic to, gluten its in wheat. Yes I find it easier with people I am not close with to describe it as an allergy. And I got to do it all again a weak later when a someone brought in a b-day snack, except she didnt realize that white wheat is still wheat (she really wanted me to try it because it didnt have whole wheat). I dont mind this, people want to share food, its nice (as long as its not my expensive foods). But then this girl goes around to everyone offering food and asking (a bit loudly) if they have a food allergy declaring that it doesnt have nuts (why is it always nuts???) So yea, of course a bit awkward for me, cuse of course no one else had an allergy, and the girls friend then glares at me and says "Its special for her birthday" like my gluten intolerance is something personal against her. SO the point of this is just be confident in you. dont let people get under your skin, I know its hard, Im still not 100% there yet and I think Im probably nearly 10 yrs older. As you find yummy foods and share them with new friends, they will think being gluten free is something good. My best friends dad went this way, he bought foods for me to eat when I visit (tortillas, chips, crackers, dips, etc), and tried them, now they get them all the time for themselves. As for your youth group, I agree talk with the pastor or just tell the kids, if I was a diabetic and didnt share your cake would you tease me, if I were allergic to peanuts would you taunt me with your PB&J; they probably will say no. Celiac is the same, you shouldn't be teased for following a diet that makes you feel good and keeps you healthy. Seems to me like you are doing a good job, spend time with people who will support you and not bring you down. Good luck!
  14. Anyone From Md

    I'm from MD. Between Baltimore and DC. I tested negative for celiac genes, but am severely gluten intolerant.
  15. A friend of mine who has celiac recommended that I get tested for gluten intolerance. She noticed that I was loosing weight and not going out with friends as much. This was in college. After she mentioned it to me, I already had an idea what it was from being friends with her but never thought that it could affect me. I did go to doctors and got the tests done. Many of my nutrient levels were low and there was no other reason for the weight loss. I tried what I call a simple diet, white rice and plain veggies and fruits and yogurt. I felt much better until I came home for summer break, and my mom made me a lovely whole wheat sandwich everyday for lunch at work. Back at school in the fall I started my gluten free diet again So yes, you should find a way to bring it up if possible, without getting to graphic, but don't expect immediate results or gratitude. I only truly went gluten free almost 8 or 9 months after she mentioned it to me. But I am extremely grateful that she took a chance and suggested the idea to me.