This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
Left side abdominal and back pain is most often associated with the colon, or the tube through which stool leaves the body. For me, when I am either severly constipated or have diarhea from having to take laxatives to relieve the constipation, this side hurts. My doctor said it is from my muscles trying to contract to push the stool through my system. Do you suffer from constipation or diarhea? If so, then I would relate these symptoms to the back and abdominal pain. It could also just be gas, but if you have celiac disease, being gluten-free should help clear up these problems. But, be aware that it can take a long time to clear up, even after being gluten-free. I'm talking months to a year or two, depending on severeness. Hope this helps.
Hi, I just read your post, and you are not alone! I too, don't really suffer much from GI symptoms, but I get severely emotional. I mean, REALLY bad. Some days I get so angry that I really throw things and I can flip at the drop of a hat. The thing is, I am not normally like this, and I only started suffering from things like this since my celiac disease was activated. One day, I cried all day, literally. It just seemed like I was overreacting to everything! I strongly believe that it was all gluten related, as I have no other explanation for it. And, unfortunately, it's worse when I PMS, so I know that I absolutely have to stay away from gluten. I get so emotional that it puts a strain on every relationship in my life- boyfriend, family, friends, co-workers, etc. But, try to be very careful about being gluten-free and you shouldn't have any problems. Good luck, and remember, we're here for you!
I also had an issue with antibodies showing up while being on a gluten-free diet. My doctor and his nurse have been doing research and have recently put together another panel of blood tests for celiac. They are going to be testing me for more antibodies, including the TtG test. When I asked him if the results would be affected by being gluten-free, he said no.
After more explaining, I understand why. He said that the TtG test will probably be affected, but the other things he is testing for will show up if I have it. He said that if I have celiac, the antibodies will always be there, as a delayed reaction, even though I'm not having an "immediate" reaction to gluten. He explained it like this: If you've ever had chicken pox, you only get them once. However, once you get them, the antibodies remain in your blood forever. So, I had them when I was 7, but, if I was tested for that antibody now, I would have it because it remains in my immune system. Because those antibodies remain, that's why I only get chicken pox once in my life (and everyone else, unless immune). With celiac, once you get the antibodies, they are always there because they are in "delayed" response. So, celiac is not like chicken pox in that you "only get it once" it's just that once it's been activated, the antibodies will always be there (or I should say, certain TYPES of antibodies).
I know this seems confusing, but the way he explained it was very clear. I was very persistent too, and I was challenging his every explanation, and he did a very good job at combatting me, so I trust his explanation. If your chiropractor thinks that you should test for something else, then maybe you should. Or, at least have more blood work done that tests for these antibodies. I'm still waiting for my results, so once I get them, I will let you know how accurate the tests are because I've been strictly gluten-free for 2 months before having this test, so, if these certain antibodies show up, then the test does work.
Just to add to the discussion about vitamins. . . I know that vitamins can turn your urine bright yellow, and they can also turn it green. This is because the vitamins react with certain things that are already in your system, i.e. Iron. So, if you have funny-colored urine, I wouldn't worry about it too much. It's more than likely from the vitamins.
I just had some interesting information about oats that you might be interested in.
I recently joined my local celiac support group, which is associated with the National Celiac Disease Foundation. When I questioned the representative about oats, this is what she replied, keep in mind, she has had celiac disease since 1991 and is very educated about the disease. She stated that a couple of years ago (about 3 or 4) a few board members of the group had ordered what were supposed to be the "purest" oats in the world. They were supposedly straight from a field over in Ireland. She said that these few people ate the oats (after being gluten-free for years) and they indeed had a reaction. She said that while she cannot confirm or deny whether or not the oats contained gluten, all of the people who ate them had reactions. So, this particular chapter of the celiac disease foundation does not promote trying or eating oats if you have celiac disease.
Just thought this was interesting, considering the oats were supposed to be so "pure."
I felt the same way after I went gluten-free. I noticed that I actually felt generally worse, with worse symptoms after going gluten-free. It's been almost 2 months for me, and I'm just starting to notice changes, so hang in there! We're here for support.
As far as I know, there is a difference between celiac disease and a gluten intolerance, though they are treated the same way, as somebody mentioned before. My doctor told me that (as I am still going through more testing) I may not have full-blown celiac disease, but definitely have at least a gluten intolerance.
I also have not had Enterolabs tests done, but I think that is the test that my doctor is ordering for me. If he feels it's worth using Enterolab to test me, then there must be something to be said about the accuracy, reliability, and quality of these tests. . .
I'm not sure about all Type 1 diabetics, but in my brother's case, he DOES have the gene for celiac, but he does not have celiac disease. He only has type 1 diabetes. However, it is suspected that celiac disease and Type 1 stem from the same gene. There is still research being done on this.
I'm not sure what test he is doing. I'm assuming that he's doing the gene test, otherwise, you're right, being gluten free would definitely affect test results. I'm not going to let my doctor tell me otherwise. I'm still waiting to hear from him about what test he is going to do. Thanks for all of your responses!