Subscribe to FREE Celiac.com email alerts
Brrrandy added a topic in Celiac Disease - Coping WithDo You React Differently To Different Forms Of Gluten?It seems that I have a pretty consistant reaction to gluten overall, but it's always amazed me how much the severity can vary. Have you ever noticed that the form that gluten changes the way you react? Even if they are both essentially flour?
For example, there have been times when I've ingested what I know was a very tiny amount of gluten yet reacted very severely-- like when a friend served soup several years ago and included a teaspoon of flour, or when I had sushi with a tiny amount of sauce that contained a tiny amount of soy sauce.
Yet there are other times when I've had what would seem to be larger amounts of gluten, and haven't reacted to them almost at all-- like last year, when in a moment of weakness I ordered a breakfast sandwich, took two bites and immediately came to my senses and threw it away.
It kind of seems like when it's in liquid it is way worse. But maybe I am just looking for patterns here.
Curious to know if anyone else has noticed different types of reactions?
- 6 replies
- 1,239 views
Brrrandy added a topic in Celiac Disease - Coping WithStomach Pain... Do I Need To Go To A Doctor?I was glutened over a month ago, and ever since I have had symptoms that seem to be sticking around. Normally I feel off for a few weeks, but it's been a while now and I'm starting to get worried. I have had stomach pain that varies in its intensity in a very specific spot on the low right of my abdomen, GI upset, feeling really exhausted. It is almost always there though... either a mild dull pain or a more severe sharp or dull pain. Many other small things but those are the main issues. When I massage the area that is hurting, I can feel almost like a lump or blockage that goes away after I massage it. I've read some things about the ileocecal valve, could I just be experiencing problems with that?
I don't have health insurance right now, so I don't want to waste a trip to the doctor to be told nothing. At the same time, the stomach pain is worrying me. Is this just normal for some of you after being glutened, something that will get better on it's own eventually? Is there something I could be doing to help myself recover faster? Or should I be trying to find a way to get to a doctor?
- 9 replies
- 930 views
Brrrandy added a topic in Celiac Disease - Coping WithWhat's Your Routine When You've Been Glutened?I was glutened as a restaurant last week (after asking TWICE about something that was on my plate... should have listened to my instincts), and of course I've been going through all the usual things (nausea, dread of eating, stomach pains, aches, tiredness, etc). My tendency is to ignore that I feel bad and keep doing exactly what I always do, and (surprise) I usually still feel terrible weeks later. I'm sure there are things I could do to help myself recover faster, so I'm trying to incorporate other tactics other than 1) Immediately throw up, 2) have my boyfriend cuddle me.
I know this topic comes up on the forum at different times, but I'd really like to compile an arsenal of things to try until I feel better. What's your "glutened" routine, starting from the moment you know and ending when you feel better?
- 0 replies
- 505 views
Brrrandy added a topic in Celiac Disease - Coping WithMy Top 5 ListI'm in year one of being off gluten, and I thought I'd list out the top 5 most helpful things to me during this time. For many of us, getting off gluten is just the beginning of the journey. There can be many corresponding health problems or lingering deficiencies that tag along for a while. These are the things (besides just not eating gluten) that have helped me cope and recover.
Feel free to post your top 5 (or 10!) and share your knowledge and experience.
Anxiety- Running, and a good pair of running shoes.
I know, I know. I'm a bit dim-witted if I think anything I say will convince anyone who's not running to run. But seriously, I started to get that weird excess energy feeling, and felt like I needed to take off running, so one day I did, and it's only gotten better since.
Major symptoms- Elimination diet and a corresponding recipe book
Look it up and do it. Enough said! A good recipe book helps a lot when you're clueless.
Recovering nutritionally- Metagenics Ultra Meal Rice, Fish Oil, Probiotics, enzymes, and Vitamin D
My nutritionist/acupuncturist/chiropractor put me on this stuff a little while after the elimination diet. It's an expensive regimen. The Ultrameal alone is $35 and lasts just short of a month if you use it every day, but even when I can barely afford rent, I buy this. That's how much I love it. I truly feel this is one of the top things I do for my health, and it actually tastes awesome too. The other supplements are the cherry on top, but in the beginning, they were crucial. I'm not big on supplements, but I can't deny the effect of high quality goods. I credit them with my 180 degree turn around in less than a month.
I'm pretty sure it was the acupuncture that stopped my migraines.
Insight, knowledge and support- The UltraMind Solution by Dr. Mark Hymen
Totally dumb name for a book, but for anyone having brain fog, anxiety, depression, or other related mood/mind things, this book is a very interesting and informative read. It completely revolutionized the way I think about health.
Lack of support/feeling alone- Crying about it
For a while I tried to play things off and be cool, but when I came home to visit my parents after a particularly hard week of having to eat out for business trips, and they offered to take me out to dinner, I broke down and cried. Even though I'd said it, they didn't realize how tough it was for me to swallow fears every time I went out to eat. I spilled my guts about how sick it really made me, and how hard it was for me socially to feel like a princess for being so "picky" after years of gastrointestinal nonchalance. It inspired them to educate themselves and have food ready when I visit.
Everything under the sun- my amazing doctor
There is something to be said for searching and searching until you find someone to help you. My doctor is a combo acupuncturist/nutritionist/chiropractic neurology specialist. He listens, believes me, and more than anything else, provides results. Don't settle for another doctor who will do nothing.
Ok, so I did seven.
- 4 replies
- 842 views
Brrrandy added a topic in Celiac Disease - Related Disorders & ResearchMeniere's Disease, Gluten, Viruses, Oh My!In high school I got some strange virus, and around the same time I got dizzy for the first time.
In college I got what they called "Mono," and it was the summer after that I had my first major vertigo attack and was diagnosed with Meniere's Disease, which has calmed down (but I still get tinnitus and some fluctuating hearing loss if I drink too much).
Then, skip forward, I had many of the usual tell-tale signs of celiac (brain fog, muscle aches, some anxiety, migraines), went off gluten, and felt frickin' amazing.
I also consistently have had problems with my neck (lots of cracking, aching, pain near ear).
Migraines were fine but have returned after starting birth control.
Are any of these connected? Specifically the Meniere's/Virus/Gluten connection? How? Is there some weird superbug that causes autoimmune disorders? Is there a genetic component? Or am I trying to draw intersections between things that are actually just running parallel? I still feel pretty susceptible to viruses of all kinds. Any advice for how to beef up against these? I'd especially like to read some research or articles if anyone's got anything, but anecdotal evidence is more than welcome, for sure.
- 7 replies
- 2,842 views