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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Celiac Ninja

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About Celiac Ninja

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    Advanced Community Member
  • Birthday 03/02/1984

Profile Information

  • Gender Female
  • Interests The Big Man in the sky, my family, 3D & 2D art, gluten-free cooking, gluten-free research.
  • Location Washington
  1. Have courage little Eloise! Our Messiah's arms are bigger, He can hold you through the dark times, you are a courageous girl and your celiac family is routing for you all the way. May whatever God decides to come, may you be peaceful inside. Keep the little light burning for Him, He will take good care of you on your journey home. (home to Heaven or home to your earthly home).
  2. I'm a busy woman, two kids, two cats, celiac, lots of stuff not done, lots of stuff I want to do.     Then I'm dashing to the bathroom (the kids follow me) so I got to get in before they do and shut the door. They pop open the baby gate sometimes now, the oldest one has no trouble.   "I just want some privacy! Holy smokin' cow man!"   You just have to pee, that's it!   Then you open the lid, there it is.......the ring of DEATH.   You forgot to swab that out for a few weeks.   It's frightening, it may be causing your allergy symptoms, it's odor is permeating the bathroom. Dang Nab IT! I meant to do that!   You sit with a guilty conscience, hurry up, here come the kids. You look back as you flush, water has no power anymore over the ring of death.   Yuck.   Running away seems to make sense at that point.     Just run!  
  3. I can be happy, if I remember what's written in the Bible. Not to complain when trials come my way but to see them as pure joy. Sounds crazy right? The Lord only allows hard times for two reasons; Satan wants to crush you with the trials of life, and God wants to see you rise above!   I'm standing pretty TALL today Thank you God for your strength! I will have to borrow it for many years to come!
  4. Lots Of Blood Tests

    So...   Oncologist doctors and Licensed Naturopathic doctors are still not respecting each other in this valley at least. Doesn't surprise me. I the client am in the the middle. It's like a tug-o-war game really. One person says this, another person says that. There is absolutely no reason under the sun why a oncologist doctor can not respect nutrition. There is equally no reason why a Licensed Naturopathic doctor can't speak with the oncologist doctor before referring a patient.   Yup. That's fun for me. I'm trying to explain things after being gluten-ed for a week by the wrong tea (my fault) and am messing up the words. It doesn't help that the oncologist doctor is of eastern origin and likes to verbally start conflict with female patients. Not cool in this country. I won't be seeing him after the CT scan. This oncologist also said there isn't anything significant about celiac disease to be concerned about.   I assumed he was a moron and had not taken professional classes on celiac disease.   I don't like to switch physicians. The family practicing nurse could not handle all my health history. I filled out that stupid paperwork and answered TOO honestly about health history and that is OVERWHELMING for them. Simple, don't fill all the paperwork out. Don't tell them everything.   Another unfortunate thing is; gossip doesn't not know no bounds within the professional organization.   So when someone has labeled a patient a hypochondriac, it gets passed on. Or if a patient sees one doctor that talks to the radiology department, the nurses, or other physicians then the rest of the department hears of that one doctor's personal opinion of the patient. Not professional. If the patient wants to get a scan, let them. It's their health.   Oh wait...here is why. Said one doctor; "I don't have a legitimate excuse to get you a scan, it will make me look bad on the insurance company." I the patient was going in for a scan of where my old tumor site is, I've never checked up on the tumor site and it's been 11 years. Now I'm having chest pain and fluttering, difficulty sleeping on my side again like when I had cancer. The doctor says "It's been too long, lymphoma wouldn't be your issue, being a stay at home mom is probably what's really going on, your just imagining your symptoms."   I think I need to report that oncologist. But I'm going to have mercy and let him do the CT scan. After that we'll see if he belittles me again. Then we'll see if I report him.   OTHER THAN ALL THAT....   My father-in law has asked his church for donations to help Matt and I with the bills. Out medical bills are getting pretty steep. The church, people we don't even know, have donated about a thousand dollars! WOW! So we are hoping to repay them some how. To say thank you more than just emailing a letter for the pastor to read. It's a Lutheran church so I'm not sure what's kosher. lol   Now.... I'm going in for a CT scan on the 19th. I'll return to my Licensed Naturopathic doctor until we move. We'll continue to boost my health and work with the information we have to help me be able to sleep on my side at night, maintain my diet changes and supplement anything that I'm lacking in so my body and repair better.
  5. Possible Lymphoma Cancer Again...

    Well well well....   Not surprised. Nor scared. I may have cancer again. :P   I am going to go WHOLE HIPPY NUTS THIS TIME! BooYAA!   I'm allergic to pain killers: no surgery for me. Thank GOD! I'm not interested at all in chemo or radiation again. Been there done that. They will want to bone marrow transplant, I will not tolerate pain killers nor that transplant without painkillers. lol   I am however FAR more aware of what to research, how much to supplement, how little and signs to look out for. I DO have a Naturopathic Doctor licensed and NOT a quake to monitor what I choose to do nutrition wise.   Welcome, to the FIGHT! DING DING DING> IT'S ON! LOL   Cancer shall meet it's worst enemy..... ME! BWAHAHAHHAHA   Any-who, cancer is literally our own healthy cells becoming malignant (going astray/doing something they aren't programed to do by DNA). SO really we should care for our unhealthy cells. Treat them with the herbs, vitamins and minerals that are put here on the face of this earth in their best form by God Himself. I believe I will live as long as the good Messiah allows me to and I will be with Him when He wants me to. I'll just be more educated of the remedies available and be more responsible for the temple (my body) that He has given me. I should have never SLACKED on my immune supports when first diagnosed with Celiac. That was the stupidest mistake, I was worried about the money>which is now being spent ANYWAY.   Sigh.   Time to get back up in the saddle!
  6. Cancer Fighting Regim

    The battle ground....   Lymph nodes going up my neck. Nodule 9mm on the back of my right thyroid lobe. (Hard to palpate) Unknown battle ground in chest cavity.   Weapons....   selenium 100mcg x2 each day. (breakfast, dinner) Vitamin E 400 I.U. x2 each day. (To process the selenium better) licorice root tea x2 a day. (helps with menstrual, adrenal and immune) Intolerance Complex x3 each meal (for digesting more than just gluten) Copper 2mg x1 each day (immune boost, oxygen to cells boost) Ginseng Supreme complex x1 each day (energy) multi women's vitamins (3 pills a day recommended on bottle)   Coming soon!: Zinc 15mcg 1x day each day (my multi isn't enough for the amount of copper I'm adding) (10/1 or 30 zinc for 2 copper) B12 (platelets not completely duplicating correctly-large platelets) Alpha lipoic acid (nerve damage repair-absolutely needed because my celiac is causing long term nerve damage)   Tests, scans, learning.
  7. Well well well....   Not surprised. Nor scared. I may have cancer again.   I am going to go WHOLE HIPPY NUTS THIS TIME! BooYAA!   I'm allergic to pain killers: no surgery for me. Thank GOD! I'm not interested at all in chemo or radiation again. Been there done that. They will want to bone marrow transplant, I will not tolerate pain killers nor that transplant without painkillers. lol   I am however FAR more aware of what to research, how much to supplement, how little and signs to look out for. I DO have a Naturopathic Doctor licensed and NOT a quake to monitor what I choose to do nutrition wise.    Welcome, to the FIGHT! DING DING DING> IT'S ON! LOL   Cancer shall meet it's worst enemy..... ME! BWAHAHAHHAHA   Any-who, cancer is literally our own healthy cells becoming malignant (going astray/doing something they aren't programed to do by DNA). SO really we should care for our unhealthy cells. Treat them with the herbs, vitamins and minerals that are put here on the face of this earth in their best form by God Himself. I believe I will live as long as the good Messiah allows me to and I will be with Him when He wants me to. I'll just be more educated of the remedies available and be more responsible for the temple (my body) that He has given me. I should have never SLACKED on my immune supports when first diagnosed with Celiac. That was the stupidest mistake, I was worried about the money>which is now being spent ANYWAY.   Sigh.   Time to get back up in the saddle!
  8. Country Life is certified gluten free. I AM THERE! YES!
  9. I totally can't have anything the hospital offers. It's part of being allergic to more than just gluten.   Reed's soda is gluten free, they make many different flavors. They have a website, you can call, email, ask questions, find one that your body is okay with so the next time your in the hospital you have back up! Prepare for the stupid people in your life. Stand firm with what you know.   I tupperware homemade food where ever I go. Got Intolerance Enzyme complex pills and Gluten enzyme pills for just the situation where somebody gluten's me. Especially my kids. Hands and toys get in my mouth.   I'd be totally running out that hospital in my gown with the back out!   I hope your surgery went just fine.
  10. The find that will impress me is: Is our body (celiac's body) capable of producing and or maintaining gluten enzymes to break down gluten? We can retrain the immune system, build our tolerance back up (different ways to do this) but where are our enzymes going?? What does our body do with our gluten enzymes?
  11. Growing Like A Champ

    The little dude is 3 weeks and 10 lbs. already Which is fast. He's smiling, making valiant efforts at holding up his head and frowning at everything that is perplexing. Very cute stuff. So far he's breast feed 90% of a full 24 hours and the other is formula (similac "advanced" formula). The similac supposedly is suggested as a gluten free on this site by people who have looked into it, but the can does not say gluten free. I want to contact the company and get their word for it but others have tried and were given somewhat of a run around. But altogether, baby doesn't have bad reactions when similac is in diet. He is doing really well. As for the circumcision, my husband and I wanted it done based on Biblical teachings which we respect, but we did not know there were three types of circumcision. We were refered to a pediatrition by someone who didn't know him and I unfortunatly didn't do my research! Pooies on me! So baby got the most invasive and frightening type of circumcision the Gomco method, which I hate, and was is such pain (even on three types of pain killers which I also didn't like to have him shot up like that) he screamed and tried to pull himself out of the restraints so badly that he passed out a few times. It was the most horrific thing I've ever seen done to a child and it was my own. I cried as much as he did, dady nearly passed out. But who cares how daddy felt, baby was totally two weeks old and going through serious tramatic pain. Worst decision and hopefully the last worst decision we will ever make for him. The Mogen style is the quickest and usually bloodless.
  12. Baby Is Born!

    This is one healthy baby boy! After 11.5 hours of labor with a midwife and assistant watching closley, my husband and I had our baby boy in our arms! He is 20 inches long, 7.14 lbs, and had a 14 inch around head! He came out healthy as a horse, nothing of concern! WOW Thank God! His little finger nails were even longer than mine (past his fingertips) which explains the scratching inside :S hehe Our next adventure is nursing, major lack of sleep, and bonding with our baby boy Totally excited and happy about this, and I've finally got the womanly curves that I should of had years ago, just took a baby to get them. Booo-ya!
  13. Old Hag Syndrome / Sleep Paralysis

    I've had this a few times, Chiropractor and I thought it might be related to my scoliosis. Vertebrae and or muscle cramp disrupting the neck or something.   Later I learned, it does happen on my back every time, it's part of the melatonin in the base of the brain over producing. Not sure why or how, could be food allergies. Since I've gone gluten-free I no longer have these sleep paralysis episodes.   It is very frightening. Couldn't breath or move, only thing I could move is the scm muscles in my neck, slowly turn my head right and left and got out of it. That's why I thought it was a muscle spasm in the base of my neck or a vertebrae out, once I started moving it I could get out of it.
  14. A lot has happened since I last blogged.   There are obivous reasons for me being tired; I have two kids under the age of 3, I'm a celiac, I've got hypoglycemia...yadda yadda. There are not so obvious reasons; chest pain at night, ache down the arm, lymphnodes swollen up neck (Cat scan confirmed), noduel on thyroid (cat scan confirmed), scar tissue in left cerebral hemisphere (MRI scan).   My only concern is the swollen lymph nodes. The experience with lymph nodes was non hodgkins lymphoma. I seem to be an angry bear when I eat or drink sugary stuff. My neck seems to swell up more too. I get a head ache or migrane or am generally not with it.   I had an frightening experience the other night, I don't know how it's related to the majority of the postings, but I woke up 2 hours after sleeping and the bone in my forearm was numb. The skin, the muscle was normal but the done inside was totally numb. The are ached real deep, so I just kept moving it like it were a normal numb foot or hand experience. After about a while it got better so I laid back down. I had been sleeping on my stomach with my head turned to one side. I don't normally sleep like that.   So...my diet has changed based on those responses. I'm cutting the sugar way down. The sugar I get is from the Silk brand coconut milk (original flavor). I eat fruit, have organic gluten-free corn flake cereal. I'm just really wowing you now aren't I. lol I sure miss sugar. But it does not make me feel better. Not at all.   I'm taking: gluten-free Women's NutriGold multi vitamins Swason's copper supplements with vegetable glaze (glaze keeps me from throwing them up) EnzymeScience Intolerance Complex Country Life's Ginseng Supreme Complex Vitamin K supplement when I need it   *I need to have a regular exercise. It needs to be every week so that my system has time to work out junk in my lymphnodes. Drinking water and stressing out around the house or sitting on my rear doesn't flush the system like exercise does.   Note: it is overwehlming to talk to doctors about my health history. They ask too many questions, I provide too much information. Makes for a depressing day for both people. There is no instant cure. It takes time, experience, knoweldge and lots of prayer.   "Keep showing me Lord, I don't want to fall behind. You are my Great Healer, you'll get me there at the right time. Amen!"   With more thought to this entry; I'm going to look up some various things that could be linked to the experiences with sugar and the arm bone falling asleep as well as my exhaustion. There is a possibility that I have leukemia. I'm appearing to have a majority of the symptoms except the blood test for white blood cell counts and the bone marrow test. I've had a bone marrow test back when I finished cancer treatments at the hospital, they warned me I would need to have a bone marrow transplant if I had to do chemo again. No thanks.   I'd like to do what I can that is provided here on the earth and trust God for healing if He desires to heal me. There could be greater reason for me to suffer and bear my cross than just "find a cure! panic..." that's just futial. What's the purpose of a story that's helps educate others and build their faith if everyone found healing from mankind in the hospital? Hospitals have not always existed, neither have doctors. God has. So let's utilize His healing power and seriously show up this world's view of "cure".
  15. Halloween Celiac Stereotypes

    Seems funny, obviously I wouldn't go trick or treating with my specific allergies, that'd be stupid. I'd buy my own specific treats and not bother anyone else. Celiac's could just have a specialty Hallow-Treat party at home, baking specific dishes that simple but tasty, using proper precautions of course. Then invite friends/family with specific issues. AND HAVE A TREAT!