This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
I can't thank you enough for these repsonses. I'm truly grateful for everything everyone has shared and I appreciate your time and your willingness to share your knowledge and experiences with me more than you know. I'm on a work deadline but am going to print these responses and go through everything, think about every comment and move forward from there. This is all truly invaluable information to me and again, I so appreciate your advice, opinions and encouragement. Thank yo so much!
Thanks very much for these two new ideas. I agree the most important thing is to heal and move forward. Will keep trying, exploring and learning. Excellent advice, as always. You guys are so smart and helpful--thanks so much!!!!
Thanks so much for the replies. I have tried both pea protein and hemp protein (both is small quantities to start, etc.--never "over did it") and have similar reaction as to soy--not as bad as gluten and corn, but still a day of suffering with D, gas, cramping, nausau, etc. until it moves through. I can do limited amounts of hulled hemp seeds and chia seeds a day, which I will dutifully maintain. When I add more/too much these I also have problems.
Am determined to keep trying, just worried I'm still not getting enough protein and this could prove detremental in long run, etc.
Thanks again. The information and knowledge you guys pass out here every day is truly remarkable, empowering and life changing. Thanks again.
This was so helpful to me. Almost a month later I have been able to completely avoided gluten and corn. I have tried so hard after learning from this site how bad it is to relapse/cheat. I feel much, much better but am still struggling to get enought protein from sources that don't upset me. Having been vegan for 20 years, I really do not want to eat meat or dairy. I tried to reintroduce soy recently and had some big problems with gas, bloating and feeling nausaus for 24 hours, etc.--which is better than the 3 days suffered at the hand of gluten and corn, but still not easy to tolerate. Pumpkin seeds and sunflower seeds seem to be a problem (bad stomach pain, bad gas but not as much bloating and not other symptoms of gluten and corn)if I do more than a partial to 1 serving a day--which was hard for me to do when I last got hungry, but realize I hve no choice but to return to small portions, if any.
I may need to contact one of those celiac nutritionists you spoke of if I continue to have such problems. Is there a way I could obtain their name and number from you? Don't want to put you out or on the spot or be a bother or any way be a problem, but any advice you may have would be helpful and very appreciated as always.
Has anyone tried to reintroduce nuts and if so, what was your reaction and how quickly. I tried to reintroduce with a few each of pistachios and almonds--today feel all gassy, bloated and rumbling intstines...is this common?
I can relate. It can be so hard to find good products that fit our needs. I found a "protein" bar called NuGo Free Dark Chocolate--it's gluten, soy and dairy free--they actually taste pretty good--decent chocolate flavor especially if you are otherwise limited and have a decent protein profile (I am vegan and have difficulty getting enough each day) they have some ohter flavors as well. I get them on Amazon. If you find any other products that are clean, please advise and I will do the same. Good luck! I feel for you!!!!
News Flash! Wanted to make sure you knew this--when I went to check this bar out on (Company Name Removed - They Spammed This Forum and are Banned) (I have to avoid 8 Main Allergens, not just wheat and soy)--I saw this and wated to let you know: "Safety Information
May contain traces of peanuts / tree nuts/soy bean/milk"
Thanks so much for these replies. Very helpful and based on this will continue to avoid. Thanks for helping me deal with craving that could have had bad consequences and keep me motivated towards healthier way of life! Will look for this Lindt bar, to be sure. Thanks Again!
Do those of you with soy intolerance also have a problem with "soy lecithin" in all cases? This ingredient seems to be in all chocolate except for Enjoy Life Bars and just curious of any of you who are normally sesitive to soy can tolerate this "soy lechithin" in small quantities? Thanks for any insight you might have.
Hi! I found a WONDERFUL company--Gerbs Pumpkin Seeds--they also do sunflower seeds--all are done on a clean line--free of 8 main allergens. I haven't been able to find a company that does this and believe me I'd love to--all seem to be processed on a line that also processes peanuts or at least "other tree nuts" and I'm highly allergic so I get sick if I eat these. Gerbs is located in Rhode Island--www.gerbspumpkinseeds.com and (401) 231-5181. I personally find their website hard to work with so I just call them directly. or email them and ask them to call me. If you find out any "clean" sunflower seeds or pumpkin seeds--would love to know as these are my main source of protein (vegan and grain intollerant). Thanks!!! PS their chocolate covered products are not made on-site so can contain wheat, etc.
Thanks so much, to you both! Very interesting and helpful. I'm rushing around now but will follow up next week with any questions/concerns. Thanks Again for your time and help! Have a wonderful holiday weekend!
Does anyone know, in general how many grams of protein a typical (average height and weight) healthy forty year old woman who works out (free weights and cardio)would need each day? Realize this is something to see a nutritionist about, etc., but am just wondering ballpark figure-wise what the standard/average amount would be...Thanks for any information you might have.
Thanks so much. I will certainly look into this further, especially if you say that it has made these things easier to digest for people. Has it worked for you personally and did you notice a big difference? Is this the same thing as if you buy "sprouted pumpkin seeds" or "sprouted sunflower seeds" at say a Whole Foods? Those seemed so expensive I never tried them despite the claims on the package that they are easier to digetst. I saw these at the store around the same time that I was trying to do more rice and rice protein which are also supposed to be "easy to digest" and they are so not that for me, so I figured I better stay away...
Again, I can't thank you all enough for your kind and thoughtful responses. They have helped me so much. It is so incredibly calming and healing to get such amazing insight from people who really understand. It has really empowered me and strenthened my resolve to move forward.
To answer some of the thoughtful questions that were posed of me--can't do potatoes but can do carrots and radishes and will try the others from that grouping. Also love pumpkin and the winter squashes but since they are so high in Vitamin A and so are things I really need to have (almost) every day like spinach, green leafy lettuce, etc. I have to limit them or my skin turns orange.
The almonds I ate were "roasted with sea salt" and had no peanut contamination. I got so hungry I moved on to some others I had around that were raw and were also processed on a line with wheat, etc. so I may have been glutenized and not realized it. To specify, yes it was a digestive sickness--terrible, terrible GI problems for 5 days following--just as bad as any celiac attack.
I've not tried the "soaking" as nuts really never agreed with me any way. I was only ever able to do about 2-3 roasted almonds at a time w/o problem. Realize soaking may help but since recent problems can't really go there at present.
Will just keep trying to add protein as much as I can during the day and night and just keep trying new things and moving forward. If I am still having problems, I will most certainly would love to talk to the nutrition experts you recommend. I will keep you posted if needed.
I just want to thank you again for your acceptance and kindness. I grew up in a very unhealthy environment surrounding food which was very psychologically damaging on top of all the physical things my body was already fighting b/c of ingesting things that made me so sick over the years. It's just really neat to find a group like you that fosters such healthy, positive thoughts about food, eating and nuturing oneself. As my husband said, I'm at the point now where I'm basically having to relearn how to eat food. Having such a smart, accepting, positive group of people to encourage and advise me along the way has been just incredible--so exactly what I needed. Thank you. I'm truly grateful that you took the time to share your thoughts and kindess.