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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About JenC

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    1. JenC added a post in a topic Royal Caribbean Or Carnival?   

      Thanks! We ended up in a boardwalk balcony room on Royal Caribbean.
      • 0
    2. JenC added a topic in Gluten-Free Travel   

      Royal Caribbean Or Carnival?
      We are planning a cruise in September and cannot decide between Royal Caribbean (for its onboard activities) and Carnival (cheaper therefore would book balcony rooms). I'm wondering which is easier for gluten-free travel? Both DD and myself are gluten-free, and I especially want her to have fun!
      • 5 replies
    3. JenC added a post in a topic Does This Sound Like Typical Response To Glutening?   

      She is definitely casein sensitive, so she is off gluten, dairy and soy, and has been for six days. She is still complaining of tummy aches and occasionally of feeling like she needs to vomit after she eats. My guess is that we did a number on her stomach.
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    4. JenC added a topic in Celiac Disease - Coping With   

      Does This Sound Like Typical Response To Glutening?
      So, we took my daughter (age 3) off gluten in December and saw a positive response. Of course, since all of her tests showed no problem with gluten we were kind of wondering if that's really what it was that had helped her. Fast forward to a couple weeks ago: she did a head dive into the coffee table, sustained deep cut on her face and ended up with 8 stitches right near her mouth. The only food she was willing to eat after was Kraft mac n cheese, so it kind of turned into a gluten trial of sorts.

      Within a couple days it seemed her stool was different, but nothing more than that until about two weeks in. We were questioning her intolerance at all. Gradually things like dark rings around her eyes, crappy appetite, and even crazier stool started happening, so we realized we needed to get her back off gluten. Then her tummy was hurting a lot, and we took her right off. Within two days of that she was complaining every time she ate that she felt like she was going to puke, or that her tummy hurt. Is it possible that her stomach is so irritated from the gluten that now not only does she have a low grade tummy ache constantly, but eating makes her feel nauseous? She was only back on gluten for two weeks.

      Guess my husband (the one slow to come around to this gluten thing) is convinced now. I just want to make sure we aren't attributing these things to gluten erroneously.
      • 3 replies
    5. JenC added a post in a topic Was She (Likely) Glutened?   

      Well, no apparent CC this time.
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    6. JenC added a topic in Celiac Disease - Coping With   

      Was She (Likely) Glutened?
      My husband took our daughter to the park. Afterward he stopped to get her a treat. Rather than get her something from the several options I listed, he got her a McDonald's strawberry sundae with nuts. Though their site says they're gluten-free, what are the chances of cross-contamination in this case?
      • 7 replies
    7. JenC added a post in a topic So Flippin' Frustrated! Dd's Gi Was Useless.   

      I can see wanting to rule out everything else before jumping to gluten. I went to him hoping he'd want to cover all the bases. It seems like he isn't concerned enough to think there is even a problem. Great point about bringing respected studies with us next time to reference! I'm concerned that aside from the misinformation he spouted off, he discounted the huge drop in percentiles on the growth charts, the undigested food and sometimes floaty stool, and the fact that I AM gluten intolerant with Hashimoto's. He just completely ignored those things. He didn't even take the stool sample we brought in.
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    8. JenC added a post in a topic So Flippin' Frustrated! Dd's Gi Was Useless.   

      Why didn't I think to ask for citations and studies? Oh well, I'm not going back to him. I knew within a few minutes he was useless. He kept hearing my comments/questions, then turning away from me and speaking only to my husband. Nice.
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    9. JenC added a post in a topic So Flippin' Frustrated! Dd's Gi Was Useless.   

      Ah, but you are forgetting that this "doctor" doesn't believe we should remove gluten from her diet. Excellent point, though.
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    10. JenC added a post in a topic So Flippin' Frustrated! Dd's Gi Was Useless.   

      Yeah, that makes sense to me. Why would someone who tolerates gluten fine feel ill after going back on it? Seems like someone who has no issues could eat it or not, with no change in body.
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    11. JenC added a post in a topic So Flippin' Frustrated! Dd's Gi Was Useless.   

      Here are some of the gems I heard from my daughter's GI today. True or False? Links to current research (for my husband) are much appreciated!

      ANYONE who removes gluten from their diet and then later reintroduces it will feel ill and react to it. This does not mean they are Celiac or NCGI.

      If someone tests negative for the two main Celiac genes, no further testing is needed. Celiac has been ruled out.

      IBS is its own valid thing, and not often a misdiagnosis of NCGI.

      A Total IGA of 18 (range 20-100) is not enough to be IGA deficient.

      Irregularity is most likely cause of foul smelling stools, alternating between regular/C/D, strange colors, undigested food, and lots of gas and stomach cramps.

      What do you guys think? Does this doc know his stuff, or should I fire him?
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    12. JenC added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms   

      So Flippin' Frustrated! Dd's Gi Was Useless.
      So, went to GI today with DD's list of concerns.
      crappy sleep (wakes every 20 min-2 hrs all night long)
      stomach pain
      extremely irregular stool in frequency, consistency, color, smell, sometimes floats a bit
      lots of undigested food in stool
      tooth decay to the extent she had four removed
      drop in percentiles (from high 90's to BMI being so low it's touching danger zone)
      soy and dairy intolerant
      says hungry won't eat
      bags under eyes
      frequent congestion
      pain when having BM - shivers, cries, totally freaks

      His response: an ultrasound to rule out colon blockage. Give her Benefiber to make her regular. That's it!

      He said that she may have IBS like me. That anyone who removes gluten from their diet will have pain when they start eating it again, even someone without celiac or NCGI. All the other symptoms mean nothing to him, just the alternating between C and D.

      Her total IGA was 18 (range 20-100). He says it's too high for her to be IGA deficient, therefore her Celiac results are valid (all negative).

      I am so, so frustrated. Please help. Does anyone have experience or can point me in direction of research contradicting this doctor? He also said if I am negative for both genes, then he thinks I couldn't possibly have Celiac, and it's pointless to do any more testing with her. What the heck.
      • 21 replies
    13. JenC added a post in a topic Please Help Me Understand Celiac Vs. Gluten Intolerance   

      Thanks for this. I've decided I need to just suck it up and be gluten-free, as regardless of whether it is celiac, I have to be diligent. I would be elated if my emotional eating issues eased as a result of being gluten-free!
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    14. JenC added a post in a topic Please Help Me Understand Celiac Vs. Gluten Intolerance   

      Thanks. I have serious anxiety issues, but if I can convince a doctor to order one I'll just force myself to do it. I really want to know.
      • 0

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