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JenC added a topic in Gluten-Free TravelRoyal Caribbean Or Carnival?We are planning a cruise in September and cannot decide between Royal Caribbean (for its onboard activities) and Carnival (cheaper therefore would book balcony rooms). I'm wondering which is easier for gluten-free travel? Both DD and myself are gluten-free, and I especially want her to have fun!
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JenC added a topic in Celiac Disease - Coping WithDoes This Sound Like Typical Response To Glutening?So, we took my daughter (age 3) off gluten in December and saw a positive response. Of course, since all of her tests showed no problem with gluten we were kind of wondering if that's really what it was that had helped her. Fast forward to a couple weeks ago: she did a head dive into the coffee table, sustained deep cut on her face and ended up with 8 stitches right near her mouth. The only food she was willing to eat after was Kraft mac n cheese, so it kind of turned into a gluten trial of sorts.
Within a couple days it seemed her stool was different, but nothing more than that until about two weeks in. We were questioning her intolerance at all. Gradually things like dark rings around her eyes, crappy appetite, and even crazier stool started happening, so we realized we needed to get her back off gluten. Then her tummy was hurting a lot, and we took her right off. Within two days of that she was complaining every time she ate that she felt like she was going to puke, or that her tummy hurt. Is it possible that her stomach is so irritated from the gluten that now not only does she have a low grade tummy ache constantly, but eating makes her feel nauseous? She was only back on gluten for two weeks.
Guess my husband (the one slow to come around to this gluten thing) is convinced now. I just want to make sure we aren't attributing these things to gluten erroneously.
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JenC added a topic in Celiac Disease - Coping WithWas She (Likely) Glutened?My husband took our daughter to the park. Afterward he stopped to get her a treat. Rather than get her something from the several options I listed, he got her a McDonald's strawberry sundae with nuts. Though their site says they're gluten-free, what are the chances of cross-contamination in this case?
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JenC added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsSo Flippin' Frustrated! Dd's Gi Was Useless.So, went to GI today with DD's list of concerns.
crappy sleep (wakes every 20 min-2 hrs all night long)
extremely irregular stool in frequency, consistency, color, smell, sometimes floats a bit
lots of undigested food in stool
tooth decay to the extent she had four removed
drop in percentiles (from high 90's to BMI being so low it's touching danger zone)
soy and dairy intolerant
says hungry won't eat
bags under eyes
pain when having BM - shivers, cries, totally freaks
His response: an ultrasound to rule out colon blockage. Give her Benefiber to make her regular. That's it!
He said that she may have IBS like me. That anyone who removes gluten from their diet will have pain when they start eating it again, even someone without celiac or NCGI. All the other symptoms mean nothing to him, just the alternating between C and D.
Her total IGA was 18 (range 20-100). He says it's too high for her to be IGA deficient, therefore her Celiac results are valid (all negative).
I am so, so frustrated. Please help. Does anyone have experience or can point me in direction of research contradicting this doctor? He also said if I am negative for both genes, then he thinks I couldn't possibly have Celiac, and it's pointless to do any more testing with her. What the heck.
- 21 replies
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