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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

viviendoparajesus

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  1. Liver Detox Plan

    I do not have any hard evidence or a reference to refer you to. I think gluten or something else your body stored got released and is causing your symptoms. Symptoms are similar for a variety of issues. Not to negate that you feel glutened rather to suggest the possibility that something else can cause a glutened like feeling. I like what the previous posters said in this regard. I wonder is your diet balanced? Best wishes!
  2. unfortunately it seems like your results are inconclusive. to my knowledge i do not think your increased levels would be a result of hashimoto's. if anything the gluten could contribute to hashimoto's, the blood test results, and celiac's. i do not think it works the other way. hopefully someone can give you more information for the meantime until you see the doctor. best wishes!
  3. Post Only In The Boulder Forum / Area

    i have heard good things about Integrated Health Systems at 3601 South Clarkson Street, Suite #420
  4. Wheat Belly By William Davis, Md

    sorry i have not read it. but your post captured my interest. from what i have seen it looks like it shares characteristics and ideas with some books i like and have seen before. it seems broader than just weight loss. i think that is just the catchy title thing to get people's interest and get the truth out about the problems of gluten beyond just for those with celiac's. based off what i have seen i would try to have an open mind reading it but still try to be analytical/ "critical" and not just take everything as a cold hard fact. i am interested in reading it now. thanks for the post. sorry i could not help and have not already read it.
  5. What Am I Eating?!?

    just reading it makes me kind of feel sick. it sounds way to processed to me. it is also heavy on grains. some people are cross reactive to other grains including rice. i stay away from artificial sugars which tend to give people problems even if they do not have celiac's. i would go with stevia instead. maybe switch to regular meat instead of deli meat since it is less processed and has less in it. maybe cut back on grains and add in more veggies and fruit along with maybe some beans, nuts, seeds, fish, and good oils (olive, flax). best wishes!!
  6. Thoughts?

    the doctor checked for h pylori and parasites. they were negative. we did a couple anti-parasite programs any way. i also did an anti-candida program. had not heard about all the cc issues with corn. it is not labeled real well. probably because it is not a "major allergen." i wish i could find a good doctor. my experience has been they do not listen, they think i am crazy/ hypocondriac, they do not know how to help me, and/or they do not work with me. yeah i have been thinking i need to see a doctor. i am just sick of the crap i usually get. i also cannot afford to take time of work or go to an out of network doctor. hmm. i had seen something about the salicylates before. i think i looked at it a little. i should probably look at it some more. thanks for the replies and information. i so love this site/ forum!
  7. Thoughts?

    I had a lot of health problems last year. Someone suggested gluten could be an issue so I started going gluten-free in the spring. I was diagnosed last summer and I went completely gluten-free. I also was told i had casein intolerance so i went of dairy. I was also told to avoid soy and corn. At times, I limited nightshades and grains. I noticed some improvements - skin cleared up, not constipated any more, warts went away, memory improved, brain fog lessened, better sleep, and mood stabilized. I wanted to feel better like I used to a few years ago when I had really stable mood, little to no brain fog, great concentration, good memory, energetic. Since April, I have been feeling worse and I do not understand why. I have diarrhea, cannot digest food, and bad stomachaches. I am always tired, cannot remember, warts came back, memory has gotten worse, i have brain fog, am distracted, have poor concentration, and am irritable. I am in more pain - headaches, back, shoulder blades, feet, etc. I just do not feel like myself and my quality of life stinks. I also think I must have malnutrition again given the GI issues. I eat good strict gluten-free diet no cheating and it is not an issue of CC. I do not think it is another common food problem - soy, nightshades, corn, other grains, etc. Typical diet - fruit (depends on season - peaches, nectarine, banana, grape, pear, berries, melon, etc), veggies (yellow summer squash, zucchini, green beans, kidney beans, lima beans, pinto beans, peas, asparagus, cucumber, celery, etc), meat (chicken, ground turkey, limited beef, lamb on occasion, no pork), nuts (mostly almonds, peanuts only on occasion), oil (extra virgin olive oil), himilaya sea salt. Supplements - digestive enzymes, serenaid. I have tried general vitamin supplements and ones that are supposed to help with GI healing, but they did not seem to make a difference or i felt worse. I do not think it is an issue of stress. Any body have a similar situation? Any ideas as to what I can do to feel better? Thanks for your any help, insights, or input you might have.
  8. Did Someone Spike My Cookies?

    yes butter has casein. it makes a difference if the issue is casein or lactose or some other issue. careful with non-dairy cheese options many still have casein in them. even vegan ones which makes no sense to me. daiya is a good option if you can have yeast. for milk i like almond milk another option is rice milk i would not do soy since it is a common allergen and can be problematic for people with thyroid problems/ hashimoto's and those with celiac's. for ice cream there is a great one made with agave nectar and cashew butter. another option is the coconut milk ice cream - the chocolate is great but the vanilla has very strong coconut flavor which is not my thing. for yogurt the almond milk almonde brand is my favorite. the coconut one is good especially for unique flavors. there is also rice milk yogurt but i did not really care for it. i have never been big on using butter so i am not sure of a good substitute for it. i have not had that drunk feeling so i cannot say how long it lasts. best wishes!
  9. Outback Steakhouse

    I ate at Outback Steakhouse for the first time ever. I do not think I had been there even before being diagnosed and going gluten-free. I went there because of their free steak promotion. I asked about how I could have my steak done and not have to worry about CC. The waitress brought me out a gluten free menu. I never had a special menu before at any restaurant. gluten-free stuff was either on the regular menu or they were like gluten-free what is that or what is the big deal about gluten-free. so not only was there a special gluten-free menu so we could all save ourselves a lot of time and trouble and disappointment but it also included instructions on how to order things and options. i was impressed. the server was so sweet and helpful. the food was good. the challenge was my other food issues that are not so mainstream. but yay for progress in the gluten-free arena. best wishes in ur dinning endeavors and hope u have a good experience if you try outback.
  10. How Long Till %100

    In my opinion no need to apologize, I have been wanting to ask something like this. I think you asked it in a different and great way. Thanks for asking. Undiagnosed for long time so had lot of symptoms including some digestive/GI ones 26 - Diagnosed via lab testing gluten-free - 1 year 4 months currently 50% some symptoms have lessened but other symptoms have appeared strange thing for some reasons at about 7 months gluten-free i felt better than now so maybe 75% recovered wish i knew why my progress went backwards. anyone have any theories? it is not cheating, CC, and does not seem to be an issue with another food (nightshades, soy, dairy, corn, processed foods, artificial colors/flavors, etc) Gfresh404 : i think you should heal faster than many of us since we tend to have been diagnosed so late after there was so much damage including some irreversible harm. have you explored other food intolerances and allergies. gluten and casein (milk protein) intolerances often go together. many people recommend avoiding nightshades, soy, etc. best wishes! thanks for asking the question and putting it so well.
  11. Wife's Weird Reaction

    Lot of good points from those who already posted. In particular, I would suspect she has a problem with gluten regardless of what her tests may say. If you have kids and both go gluten-free it will be great for them. I wish I had never had gluten and casein if I had not I would not know what I was missing in regards to taste. I have found I crave and miss casein not so much gluten. Especially since I feel better. Someone suggested since I felt better then worse maybe I have the wrong diagnosis, but in spite of the downward direction of my health I know I cannot go back to gluten I know going gluten-free helped. The gluten masked other intolerances, allergies, and problems I had. So that could be part of what your wife is experiencing. I hope you let her know you appreciate her going gluten-free. It seems like in the long term it will be better for both of you. But gluten is like an addiction it can be hard to go gluten-free since she does not "have" to do it. I have heard and read gluten and dairy problems can go together. Could be she has a problem with dairy. Also, I was told for blood sugar stability and hence ideal health breakfast should be protein focused not carbs. Blood sugar issues can cause stomach distress especially in the mornings - the doctors have told me this but I have also had first hand experience with this. The diet you describe is heavily processed/packaged/unnatural. I have heard if we just eat the same and substitute gluten-free for wheat we can still have problems for this reason. I noticed when I had a predominately fruit and vegetable diet to a high grain/processed/packaged one - I felt different - a fuller and heaviness. The best naturally gluten-free foods seem to be fruits, veggies, beans, nuts, seeds, fish, and meat. For some grains rice may be a good bet since it tends not to cause allergies. Quinoa is a good source of protein and a fairly ancient grain. I have heard negative things about corn I would explain it but I do not understand it. I do not have a lot of experience with millet, amaranth, and sorghum to talk about them. I think sorghum might be prone to going bad - molds I think. I think that is an issue with most grains. Along with their needing to be processed and refined to be usable. They also need to be cooked which is harder on the digestive system than raw foods. I have read to have a largely raw foods diet with cooked foods making a smaller percentage and grains and beans fall into the smaller category and nuts and seeds should be sprouted (Dr Bateson-Koch's book). I have not heard people having issues with Udi brand but I have heard Bob's Red Mill, so perhaps your wife has an issue with something they cook with. I would recommend digestive enzymes other than going gluten-free it was the other big thing that really helped me. Best wishes!! Yay for supportive loved ones!
  12. Water Retention Vs. Gas...

    celiacs does not have to cause digestive symptoms. undiagnosed gluten intolerance wreaked havoc on my body. i have blood sugar and thyroid problems that seem to be tied to it. i also think that is why diabetes amongst other problems runs in my family is since the real problem had gone undiagnosed for generations. i am surprised they found she tested positive for celiac's when many of us it took years to get the right test and often we have to argue to get it. you and your sister could go back to the doctor. you have a right to copies of the test results. you also have the right to ask questions and get answers. what made them test in the first place? what does a good biopsy mean? while the book's approach is a turn off for me, the gluten effect connects a variety of symptoms to gluten intolerance, sensitivity, and celiac's. i would not be convinced or worried because usually people in one's ethnic or racial group usually do not have celiac's diseases suck in that they do not discriminate they can strike anyone. people can be asymptomatic celiac's sucks because it can silently cause a lot of damage. or it can be symptoms that most people would never connect to the disease. biopsies have false positives so i would not be convinced there is not damage from the gluten. nor would being symptom free make me think it is safe for me or ur sis to eat gluten. one does not have to get sick after having gluten some people do which helps them make the connection and know foods to avoid because of cross contamination. however, i do not usually get symptoms that are easily tied to what i ate - and i know i am not alone in this. if she has diabetes i would think getting rid of gluten would help since do not carbs spike blood sugar. i think her body is screaming at her to stop having gluten. i fear that if she keeps having gluten she will be like my family and get something worse. i think she should strongly consider going gluten-free. i do not know about celiac antibodies but with thyroid hormones any amount is not good and indicates the body attacks itself. i highly recommend dr kharrazian's book see below.
  13. celiacs does not have to cause digestive symptoms. undiagnosed gluten intolerance wreaked havoc on my body. i have blood sugar and thyroid problems that seem to be tied to it. i also think that is why diabetes amongst other problems runs in my family is since the real problem had gone undiagnosed for generations. i am surprised they found she tested positive for celiac's when many of us it took years to get the right test and often we have to argue to get it. you and your sister could go back to the doctor. you have a right to copies of the test results. you also have the right to ask questions and get answers. what made them test in the first place? what does a good biopsy mean? while the book's approach is a turn off for me, the gluten effect connects a variety of symptoms to gluten intolerance, sensitivity, and celiac's. i would not be convinced or worried because usually people in one's ethnic or racial group usually do not have celiac's diseases suck in that they do not discriminate they can strike anyone. people can be asymptomatic celiac's sucks because it can silently cause a lot of damage. or it can be symptoms that most people would never connect to the disease. biopsies have false positives so i would not be convinced there is not damage from the gluten. nor would being symptom free make me think it is safe for me or ur sis to eat gluten. one does not have to get sick after having gluten some people do which helps them make the connection and know foods to avoid because of cross contamination. however, i do not usually get symptoms that are easily tied to what i ate - and i know i am not alone in this. if she has diabetes i would think getting rid of gluten would help since do not carbs spike blood sugar. i think her body is screaming at her to stop having gluten. i fear that if she keeps having gluten she will be like my family and get something worse. i think she should strongly consider going gluten-free. i do not know about celiac antibodies but with thyroid hormones any amount is not good and indicates the body attacks itself. i highly recommend dr kharrazian's book see below.
  14. i am probably too old to be her pen pal. but i would like to share my experience with her . i was diagnosed last year. i was so sad and angry i had to suffer so long (twenty some years). i am so relieved that i can feel better by eating the right stuff and that i was right all these years that something was wrong. i wish i had never had gluten. i imagine it could be awkward to be a gluten-free kid since society is so gluten obsessed and addicted to it but it would have felt great to know i could have a high quality of life and not be sick and jeopardize my health by just being gluten-free. if i had never have it i would not know "what i am missing" or had to "give up." i wish i had been diagnosed so young like your daughter to minimize the damage and maximize health. i already loved fruit and it is naturally gluten-free so i can eat it to my heart's content. i liked vegetables till the gluten made it so hard to eat them so getting rid of gluten meant getting to go back to veggies that are so good for me and despite their bad rap i think are pretty good especially with some olive oil and primordial sea salt (which is pink by the way good for you and pretty too). i also can still enjoy meat, fish, beans, seeds, and nuts - and i can better handle meat and fish whereas while i was having gluten it made me feel sick. i think it is easier to be gluten-free today than it used to be and i hope the future will continue to make it even easier. i hope people do not act like you are being a pain by needing to eat what is healthy for u. it sounds like u have great support and that is so helpful. i do not think of myself as abnormal. what is normal for my body is gluten-free. i question if anyone is really meant to eat and properly digest gluten. i hope you have a bright healthy joyful future. best wishes!
  15. Cyrex Labs And Enterolabs

    I had the EnteroLabs stool testing. It is gross but then it is over and it gave me answers I had been searching for - for years. I had the complete gluten sensitivity and gene panel. I found out I have autoimmune problems, intolerance to gluten & casein, and genetic risk for gluten sensitivity and celiac's. It was totally worth it. it has a huge advantage of not requiring me to go back on gluten. i think it can be more accurate than the biopsy since the biopsy is one tiny sample versus this is looking at a variety of factors. it looks at genetic risk and what is going on in the body. i had the cyrex labs - cross reactivity test. the website lists the foods it tests for. they do not list it but they are looking at the milk in chocolate (pointless for me since i know i cannot have milk so i eat dairy free chocolate). i think some of the foods they test for are great - sorghum, rice, corn, oats, millet, armaneth, qunioa, buckwheat, yeast. about half of them are worthwhile, but the other half i think are a joke since they are wheat, rye, and things we already know we cannot have. in addition, i already know dairy is out so all those are pointless. that said i learned i was cross reactive to yeast and buckwheat. the one doctor said this could change later. therefore, i am not sure it is an essential test. i was real sick and i needed as much knowledge as possible since i get silent damage and could never tie symptoms to foods. it is also a pricey test. i think it is good for some people and cases. in my situation i would do it again. in ur son's case it does not seem worth it. i do not know about genova labs food allergy tests or their stool testing. i had the skin scratch test and it was positive for a ton of foods. which makes sense since i have a bit of a leaky gut so the undigested proteins get out into the body the body then thinks it is a virus or other nasty invader and freaks out. the doctor told me properly digested food is rendered nonallergenic. i am glad to know what to avoid for now so that i can heal and minimize inflammation. it was covered by insurance so i liked that too. my allergy doctor told me the blood testing is not very accurate except for children. and that children have a more permeable gi tract. therefore i think it is worthwhile to have ur son stay gluten-free. he can always get tested when he is older. i was diagnosed last year. i was so sad and angry i had to suffer so long and can feel better by eating the right stuff. i wish i had never had gluten. i imagine it could be awkward to be a gluten-free kid since society is so gluten obsessed and addicted to it but it would have felt great to know i could have a high quality of life and not be sick and jeopardize my health. i would want my kids to be gluten-free even if they do not have gluten intolerance. the body just does not seem built to digest gluten. they could always get tested later or choose to have gluten. but if u never have it u do not know "what u r missing" or had to "give up." also kids r growing so they are so vulnerable to allergies and problems with foods so i would want to protect them. also the foods we should be eating fruits, vegetables, meat, fish, beans are naturally gluten-free and natural (vs processed stuff that is bad for us). i totally recommend the book allergies by dr carol bateson-koch. best wishes!