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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About Mara10

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    1. Mara10 added a post in a topic Nothing Left To Eat   

      Thank you for all the great advice and heads up on how this E.Coli thing is turning out... Ironically enough I developed most of the symptoms of E.Coli poisoning and had to find a clinic today. Its just Acute Gastroenteritis (joy) but I was really trying not to panic there.
      My doctor said no dairy of any kind, and no meat, just rice and bread<--obviously doesn't work for me. So I'm going to be a rice, carrot, and potato gal for a little while.
      • 0
    2. Mara10 added a topic in Celiac Disease - Coping With   

      Nothing Left To Eat
      I recently posted that I am a freshly self-discovered gluten intolerant American in Germany. Since then I've had to cross corn and lactose off of my list of safe foods. When I stopped eating those two categories I felt wonderful but now there is a lot of drama with this E. Coli business. They say to stay away from almost every vegetable because it might be contaminated. I've been eating meat and fruit and feeling really lousy. I'm very new at gluten intolerance and this makes it much more of a challenge. Its hard not to panic, I'm running out of edible things that are healthy for me. I think root veggies are safe, any recipes, ideas?

      Yours, Mara
      • 18 replies
    3. Mara10 added a topic in Celiac Disease - Coping With   

      An American Celiac In Germany?
      After two separate tests done on myself, I'm pretty sure I'm gluten intolerant, if not Celiac. I've spent my teenage through now years searching for the Holy Grail of Energy. My young alcohol and drug free life was ruined by a constant drugged out and exhausted feeling. I have been painfully thin my entire life, and eating massive amounts of calories never did a thing (trust me, my grandmother tried to fatten me up). I am also constantly anemic.
      Last summer, aged 22, I went into the clinic for some bloodwork because my condition was baaad. I was sitting on the couch barely conscious every day and felt like death. The results came back with nothing wrong with me except massively high levels of white blood cells and low platelets. "You have an allergy" she said. "Its either that or cancer. Doubt it." She told me to come back if I was still feeling bad. I didn't because visits to her are expensive.
      So recently I left for Germany in order to find a job in my field. I started to feel really exhausted at work every day, and didn't want to be making a bad impression on them. Germany happens to have been feeding me a lot of pretzels, beer, bread coated meats, and great pastries. So in my searches for things that cause exhaustion and brain fog, I found gluten intolerance. I tried the diet for one week, and felt a little better, but not enough to convince me, so I had pasta for dinner.
      I was a bag of migraine, groaning stomach, confusion, brain fog, and weakness for the rest of the day. This all started within an hour of eating the pasta. So I went another week and a half on the diet, adding vitamins to help me heal. Still was not feeling great, and then was feeling worse. So I tried to retest myself by eating a handful of cereal. The previous test's results did not happen again, but for the next three days after the handful of cereal my insides turned to painful mush. I also now get headaches within minutes of drinking or eating lactose.
      I realized my vitamins had gluten in them, so I've switched to gluten free ones. I mean glutenfrei, which I scoured the stores for. My job here pays almost nothing, so I stick to fresh produce from produce markets, which is really cheap here. (5 Euros for a week's worth of fruits and veggies is great!) I've also cut out coffee, which is said to inhibit iron absorption.
      I'm incredibly new to this. Basically my life has flipped upside down within a month. On top of that, I'm in a foreign country working for the first time, and I'm completely alone. Most of my coworkers have heard of gluten intoleranz, and all of the stores carry glutenfrei products, but they are expensive.
      I suppose it doesn't quite seem worth it to test for Celiac, obviously eating gluten affects me violently enough that I'm not going to touch it anymore. I'm not going to suffer for (two months?!) on gluten just to get positive blood results for a condition who's "cure" I'm already following. For now I'll call myself gluten intolerant, but its possible I'm Celiac.

      I'm infinitely grateful that this forum exists, and that everyone here is supportive and willing to offer their stories. Much love.
      • 1 reply

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