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Generic

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  • Jen1104

    Jen1104

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  1. When I participated I didn't have to do a scope. They must be really getting down to the nitty gritty of this. Did they say whether or not the scope is done before or after the study meds? Just curious...
  2. I agree drugs are pushed way too much. I stand by why I participated. It is in hope of raising awarness, hoping they can give my dad a pill that will help him to not slowly kill himself, and cc issues.
  3. I have hope that there will be something available within in the next 5 to 10 years. I just hope it happens before it is too late for my idiot dad. If anyone at all has questions about participating let me know here or send me a pm. I'll be happy to help.
  4. I had a GI Dr. call me this morning from Virignia Mason (the hosp. where I particpated in the study). He told me that the phase I participated in went so well that the new study is focusing on using the At-1001 on newly diagnosed Celiac paitents. They want to know if it helps them heal faster. Just thought I would pass along the info.
  5. I participated in the study a year ago. I started in Nov. had to stop Dec. 24th due to a diseased galllbladder. I found out that I was recieving the actual test drug (not a placebo) and wheat flour in capsules. I am a person who is super sensitive and reacts horribly to gluten and I DID NOT get sick! Not even once! Hooray! I had a three reasons to make...
  6. Richard not to be rude, but they did not used to be gluten-free. I know this for a fact. My mom called and confirmed after I spent Thanksgiving night in the ER due to the butterball turkey my grandma made for dinner. (back then we ate at 2 P.M. for holiday dinners, not sure why). Either way I have been gluten-free for 21 years now. I believe this happened...
  7. I have thrown up violently as an adult from accidental gluten. To make things more fun I usually have both ends going at the same time. (TMI sorry). I end up sitting on the can w/ a trash can on my lap. I would continue to do this to the point that I was severley dehydrated, delerious and passing out. The only thing that would stop it, would be a trip to...
  8. I'm hesitant to say go for the vacination. Shingles is just the Chicken Pox coming back to haunt you. Most people never get shingles others get them multiple times. My daughter got the at the age of 10 years old. She had chicken pox at 5 years old. She was treated by a Dr. both times with each outbreak. So it wasn't that she wasn't treated properly. Some...
  9. Manna Mills is having a Gluten Free fair to promote celiac awarness and to let people sample gluten free foods for free. They are also offering helpful advise for people newly diagnosed or new to the world of gluten free. Manna Mills...
  10. I know Butter Ball wasn't several years ago, they injected some gluteney juice stuff into them. Not sure any more. I usually just get a "natural" trukey to stay on the safe side.
  11. I was diagnosed with celiac 18years ago. About 2 years ago they thought I had MS, I was having alot of the symptoms. After 2 different MRI's snd several trips to the nuerologist and normal doc., they couldn't figure out what was wrong with me. After talking to my mom I realized I had alot of the same symtoms as her and she has fibromyalgia. So I did some...
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