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jennennyc

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About jennennyc

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  1. I haven't been diagnosed yet, but I'm just starting to try a gluten-free diet. I don't know for sure because I can't afford a sleep study, but I have cataplexy with stress or fatigue and can fall asleep just about anywhere (including stancing up on the train!). Also, my REM cycles are all messed up (I start dreaming before my head even hits the pillow and sometimes even during the day or while I'm driving!). I guess I haven't been gluten-free long enough to see if it helps, but my acupuncturist, who recommended I try it (because I kept coming up negative for everything my G.P. tests for) said that she's seen these symptoms in other gluten-intolerant/celiac people she's worked with, so I think it might be related. Obviously, I'm no expert, but I do think I'm in a similar situation, so it seems likely to me...
  2. Oh goodness... thanks everyone. I am a bit overwhelmed by all of this fear of cross-contamination. I'm having a hard enough time just avoiding the obvious forms of gluten. Since I'm fairly recently out of college, I'm not exactly used to cooking and planning meals, so not reaching for pizza or granola bars or frozen lasagna when I'm hungry is a *huge* adjustment in and of itself. It is good to hear I don't have to throw everything out, though. And luckily I don't have much wooden stuff to begin with! (It's mostly just cheap plastic and a few hand-me-down pots and pans). Did any of you have trouble learning to plan meals and come up with easy gluten-free meals? My boyfriend is a sweetheart and does most of the cooking, but I have a hard time getting him to just remember to read ingredients, never mind checking for contamination, so I think I'm going to have to start doing all the grocery shopping and cooking all of my own meals, which is really hard with constant fatigue. I usually have to sit down and take several breaks at the grocery store, and I get dizzy and sometimes even faint while I'm standing in front of the stove cooking, which is kind of scary. I know a lot of you have probably been through something similar, but I'm so overwhelmed and disheartened by all the things I can't have and can't do, and I'm not even sure this is possible for me. ...and even if it is... what if it's all for nothing? What if it doesn't work?
  3. Just finished reading it - very helpful, thank you. However, I am concerned because I can't currently afford to through out all of my contaminated kitchen items (most of them were donated used from family and friends already!) Also, any advice on how to deal if making your whole household gluten-free isn't an option? Thanks, Jenny
  4. Wow... I don't know if it's even possible for me to be that vigilant! I live in a small apartment with my boyfriend. We have no room to cook separate meals, and he doesn't want to go gluten-free with me (I don't blame him!), so it gets complicated. As I'm sure many others already know, avoiding contamination is tricky with limited space, time and money. I guess I'll have to try harder, though. Thank you. I really appreciate your help and encouragement. Hopefully I will be able to be more careful about it and see if it really makes a difference. I will try to abstain from eating out for a while (which is quite a challenge for lazy me...), but my birthday is coming up soon, and I will also be travelling very soon - any suggestions for that? How do I eat gluten-free when I am travelling and unable to cook for myself or even have a place for my groceries? Thanks again. You've definitely given me a lot to think about.
  5. Ugh... this all sounds painfully familiar! I just started trying a gluten-free diet a few days ago to try and figure out if that's what's causing my problems, but I definitely recognized a lot of the symptoms and issues you described... too bad my doctor thinks the only symptoms of celiac are diarrhea and stomach pain! Anyway, hang in there, and good luck!
  6. Hi everyone - This is my first time here, so here's a little background on my situation: I have been continually sick/run down for about 4 years now. I have been diagnosed and then un-diagnosed with IBS, CFS, fibromyalgia, mono, hypothyroid, hormone imbalances, anemia and all kinds of nutritional defficiencies, but everything is always just "slightly low" and never enough to point to a problem. After all these tests, I have been bled dry (both literally and monetarily!) and cannot afford or stomach the idea of shopping around for a new doctor for the nth time, getting blood tests, biopsies, etc. SO, at the suggestion of my acupuncturist and two friends who are celiacs and had similar health problems, I started a gluten-elimination diet last Friday to try and figure out if gluten could be the cause of my problems. So, I would like to hear from some of you who may have been through this already to answer a few questions: 1. How long does it usually take to work? (I was told to try it for 2 weeks - is that long enough?) 2. Will it still work if I am accidentally exposed to trace amounts of gluten? Or do I have to start over if that happens?(for example, I went to a restaurant where there was nothing for me to eat, so I had a garden burger and took the bun off --- then I learned that many veggie burgers contain gluten!) 3. Any other tips or advice from anyone else who did a diagnosis through elimination diet? Thanks in advance for any help you can give me. I'm really hoping I'll be back to feeling 24 instead of 94 soon.