This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
Give it all time for your body to heal. The first year is the big year for healing. You may be able to add back some things after that first year but when the system gets so broke down we have to have that healing time. I too was not able to eat dairy, oats or any gums the first year. I now can have dairy and oats but do avoid cow's milk even still after 2 1/2 years.
Keep with the diet. I was actually diagnosed but my daughters were not and all have gone with a gluten-free diet. If they have any gluten they will feel ill so they know not to eat it or pay the price. Your body is telling you something and no one else has to be on-board with it and you do not need a diagnosis. If it makes you feel better to be on a gluten-free diet, go for it!
It will common place with time and you will not give much thought to it. There is a huge population having trouble with wheat right now and the diet is gaining more and more acceptance because of it. Restaurants, airlines, grocery stores are even accommodating which says alot in my opinion.
To all of the newbies, stick with the diet strickly, it is worth it! I have been gluten-free now for 2 1/2 years. If you read my bio you know I was suffering bad when I first come to this site. It's hard for me to believe now how much pain and how stressed my system was. It took me a good 2 years of recovery, the first year being the hardest. Now I am back in the gym lifting heavy weights and no longer feeling the aches in my tendons, joints or bones!! I can jog again. Not only do I have energy for workouts but I can sleep at night too....I know how rough that was. Stick with it, don't cheat....embrace what you can do and what you can have, it will make the difference!
I too was in denial and actually avoided the gluten-free diet for a while because I didn't think it applied to me, I have no idea now even why. Your mom must have seen something in order for her to push for this test. You are saying you didn't feel symptoms but I am wondering what your mom picked up on.
No, you do not have to go as far as a biopsy.....if going gluten-free will improve your well being then go for it!!
Just wanted to pop in here, especially for the newbies wondering if they will ever get better, and say it is nice to have my life back! When I look back to that first year when my body was so badly broken it's like looking back at someone else's life. For those who are struggling, keep working for your health, it will all come together.
For me- no more itching, no more inflammation, dizziness gone, buzzing in my ears went away, balance is back, I have energy once again. Even my sciatic pain is gone. I am living a normal life once again and it feels great!
I did not read the other replies, however I had trouble with sugars. I went thru this time (about a year after being off gluten) when my body was terribly sensative to sugar, even natural sugar. I would get dizzy, break out in sweat clear down to my ankles (and I do not sweat), I would be sick to my stomach and felt like I could pass out. I went thru testing. First doc said I had pre-diabetes which totally floored me but I went on a restricted diet. Even the tiniest amount of ice cream was sending my blooed sugar too high, it was really weird. I was on a no grain, no sugar diet fro 6 months. Went to a new doc that looked at all my previous lab results, had my A1C retested and she told me she felt my pancreas was not working properly, that I did not have diabetes. So what I did, is I looked up how to eat to repair the pancreas. I wa scared but I did allow some grains back in my diet, no more than a 1/2 cup per meal and limiting that and careful with all sugar. I then started juicing, lots of veggie drinks with just enough fruit to sweeten the drink, problem solved and I am serious. I still drink at least one veggie juice drink a day, I load my diet with veggies and on days I don't I just do not feel right. I can actually eat a little bit of ice cream now but I keep all grains and asugars to a limit. I hope that helps, that is what worked for me.
There's a variety of things that can cause ringing in the ears and not everyone is the same. Mine finally went away when I went off all grains and sugar. I currently allow a little grain and a little sugar but I have to be very careful or the ringing comes back.
It is not always easy not getting support especially from a spouse. When I was first diagnosed it was not by tests, it was by a doc who decided to call it celiac based on symptoms, going off wheat and then going back on and getting terribly sick. So husband would tell people "we weren't sure it was celiac, that maybe my system just needs time to heal."
After reading so much about how bad wheat is for you I convinced my teen daughter to go off and my husband even gave it a try. My daughter noticed a difference, said she felt so much better. Husband said it made no difference to him and went back to his gluten stuffing. I still have a hard time watching him fill his mouth and plate with gluten as I truly it is bad for people in general.
I used to tell everyone my story and I used to hard about wheat but I have finally gave up, people don't want to hear it, they don't want to try it and they don't think it applies to them. One of my last straws was with my husband not that long ago. He said, "I am sure glad I don't have issues with wheat." I didn't do well with that statement. I really don't think he gave a real good honest try so how would he know and that was the last for me to talk about gluten.
My friends have been great, my daughters wonderful.
After over a year off wheat I was still having trouble with inflammation....it was like my body was on fire and I never knew what was going to happen next....it was like my body was still being attacked by something.....so I went completely grain and sugar free. It made a huge huge difference for me. I found when I was completely grain free though I would after a good length of time have to almost binge to get my carbs or I would find myself very tired. Now I allow 1/2 cup grain from time to day, not even every day. I had to find the right balance for me. I do allow some sugar but again very little. I went to juicing, replacing one meal a day with freshly juiced veggies with some fruit and that has helped my energy levels a great deal. So I think it depends on each person and what they are dealing with as to whether grain free is good for you. Grains are important if they are not causing the body issues.
Skittles, nettle tea is made from the weed/plant, nettle. Have you ever heard of stringing nettle? It is a tall green plant that grows wild at least in Europe, not sure where all it grows. There are some teas that come mixed but I actually like the one that is nothing but nettles.
After my first week of more of daily nettle tea I backed off to 1-2 cups per week only steeping the tea for approx 1 minute (otherwise it is too strong for me) and I have not had any inflammation issues since. My body is no longer on fire and I am no longer chasing the next health issue. I actually feel normal now.
My husband has problems with gout and has been using the tea as long as I have and is reaping the benefits himself. We ran out at one point and he noticed he started having cramping in the arches of his feet which he had not even realized had gone away. He feels the tea keeps the cramps in his feet away. He drinks the tea almost daily but my body is super hyper sensative so I have to be real careful.
IrishHeart, you are so correct about the pain I was in, it was terrible! I feel for all of the newbies with the same issues. What I can say is 'don't give up, don't stop trying, continue to find what works for you body.' I think people thought I had lost my mind, a real freak but I had to do what made me feel better. I have learned an awful lot in the last 2 years. Feel better now than I have in many years. My husband even mentioned he sees a huge difference in me.
Wanted to share this link also. I have been doing yoga and have finally got rid of the nerve pain (pins and needles) in my feet due to 2 bulging discs in my back but I was also having a different type of nerve pain in one of my feet...podiatrist said the nerves were inflamed....he tried various treatments including a cortizone shot to the foot which lasted about 6 months and then the pain came back. I am also finally noticing a difference in this pain and I don't think it is from the yoga, I could be wrong. I think it is from the nettle tea. http://www.livestrong.com/article/17727-natural-treatments-peripheral-neuropathy/