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sburton

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About sburton

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  1. I'm wondering if there have been any studies or information on athletes with Celiac and the effects on endurance sports. I'm working my way back into running with several 42 km full marathons and a 105 km race behind me. This year I'm entered in 2 marathons and one 50 km trail race. I'm interested to see if there is information specific to this. Thanks.
  2. I have a 4 year old who, while eating a bagel (or other gluten containing food), will start crawling over me and dropping crumbs everywhere! But, hey, kids will do this sort of thing (make messes) but, as long as I don't eat the mess and wash myself off before eating, it's no problem. Watch what goes into your mouth but with things like cross-contamination of things that don't go in your mouth is over-doing it IMO.
  3. I am a corporate entertainer. This usually means that I am performing following a company banquet. I am always invited to eat beforehand (but prefer not to even though most hotels now could cater to me). I keep it simple: "Thank you but, because of food allergies, it's best for me to avoid feeling ill before my show." I realize that "allergy" is the incorrect word to use but it is understood quickly rather than "celiac" which has little reference points for most people and "disease" which gets people feeling sorry for me. This allows me to quickly move on and get down to the real business. For personal social occasions where there are more opportunities and time for conversation, I mention that "I have celiac disease and would rather enjoy my evening with you than eat and have to worry about what food may make me sick". This is almost always followed by questions which I have learned to answer honestly because people seem to be interested. This does it's job, is honest, and expresses that the reason I am there is for them and not the food. I notice more post-diagnosis than ever before how much of our life's events revolve around food. I also realize that removing myself from certain social norms does provide some discomfort for many others. This is not their fault nor is it ours - just know that some don't know how to react and their well-meant responses are not always the best choice. Anyway, that's just one man's approach
  4. Both allergies and intolerance could produce similar outward symptoms? I don't get any skin reactions. I should mention that I was tested negative for signs of diabetes on a recent physical (didn't bother talking with my general doctor on this at the time as I wanted to speak with the specialist first).
  5. Thanks everyone. What is the difference between a sugar allergy and a sugar intolerance? The reason I ask is to try to figure out who to visit next (ex. my allergist that I already have for my air-borne allergies). Could an allergy be missed - or not considered - by a Gastroenterologist? I realize that a specialist in one area may not think of potential causes outside of his/her expertise. It's good to at least know of potential questions to ask at my upcoming appointment.
  6. I've had intestinal reactions over the past couple of years even though I am VERY careful about my gluten-free diet. (note: it's been 9 years since I'm on a gluten-free diet) After some experimentation over about a year, I talked with my Gastroenterologist last year, informing him that I suspect that it is sugar that is causing me difficulty, but he assured me that sugars are about the easiest thing for our bodies to digest and absorb. He told me that it is likely something that is in the food that also contains the sugar. After another year of more thorough experimentation, I am VERY convinced that it is processed sugar that causes me difficulty. NOT fruits, NOT lactose, NOT artificial sweeteners, but refined sugars. Everything seems to point to this. I've booked another appointment with my Gastroenterologist and am hoping he'll help me in figuring this out. In the mean time, I've been on a STRICT sugar-free diet for the last 2 weeks. I am pleased to say that I feel better now than ever and have had zero intestinal issues. I also realize that cutting sugar out of my diet has it's own additional positive health effects. Like people have said to me: if you had to cut something out of your diet, sugar is a good one to go. It's still a challenge. And I still want to know for sure that sugar is the culprit. Has anyone else with Celiac have sensitivity to processed sugars only (NOT including lactose or fruit)? Or heard of this? Thank you so much.