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terpeng

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About terpeng

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  1. My DD was diagnosed with celiac disease last week, and since I
  2. My 16 yr old DD was diagnosed with Celiac Disease last week. In the Church of Jesus Christ of Latter-Day Saints, (LDS) we have sacrament of bread and water each week. The bread is one small torn piece, I would say about the size of a nickel. We asked the bishop permission to subsitute gluten free bread, but were told no, but that we could do home sacrament. I don't want to have to do that for the rest of her life. Anyone else LDS and have this problem? How do I get the bishop to agree to let us bring in some gluten-free bread in a ziploc bag? Is there any info I can show him? His attitude is "It's only one small bite once a week. That's so small I won't hurt her."
  3. Ok, I got more info from my dr appt today. I asked for a copy of my DD test results and the endomysial antibody IgA was positive. The tTG was 55 (I was told normal range was 0-3). The immunoglobulin A, Qn Serum was 151 (normal is 61-348) so that one is normal. Those were the only 3 tests done in the panel. My dr is a different one from DD but in the same office. I will get my test results for myself back on thursday. The dr said that yes, my DD definitely has celiac disease, but that she is not as sensitive to gluten as those with higher numbers, and therefore won't have to be as careful about contamination. Does that sound right? This is all so new to me and I keep hearing differing opinions from people. How do I know who is right? I am going to attend a support group meeting tmw night and hopefully get more answers.
  4. My 16 year old daughter was diagnosed with celiac disease last week after 3 years of unexplained seemingly random stomach pains with no other symptoms. She was given a blood test to check for celiac disease. The doctor didn't really give me any more info other than to go gluten free for the rest of her life. I suspect I have had it for years myself, undiagnosed, and am going in for a blood test today. Is it really necessary to have the biopsy? It seems invasive. If the blood test is definitive, I don't see the point in the biopsy. Could it be a false positive? What exactly does the blood test do? Just say, "yes, you have the gene for it", or actually say, "yes, you definitely have celiac disease"? Any advice?