This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
Biotin, vitamins and gluten-free haircare products are all good suggestions. I would also suggest you make sure you are well hydrated. Before my celiac was diagnosed and under control, I had terrible problems with dehydration and among my many symptoms, was constantly losing my hair. Even now, if I get dehydrated for any reason (not drinking enough water when I exercise, for example), I will experience hair loss afterwards. Just something else to keep in mind.
Yes, vertigo is one of my main symptoms as a celiac. It is one of the ways I can tell if I've been getting into anything gluten contaminated, as the vertigo starts to come back. However, if I am 100% gluten free, I am also 100% vertigo free. If I were only 98% gluten free as you say you are, I would have vertigo all the time still. Get yourself to 100% gluten free and give yourself some time to heal, you may be pleasantly surprised to see your vertigo is gone completely.
Are you sleeping in later on Saturday mornings? Perhaps your body is used to getting up and eating at a certain time during the week. The hormones in the birth control pills could make you feel queasy without food in your belly. I'd try getting up and eating at a normal work time next weekend and see if that cures it.
This may be a silly thing to ask, but are you working at home or at a gym? I only ask because I joined a gym for the first time in November. The first day there I got thirsty and took a drink out of the water fountain. And got glutened! I realized later that the fountain was across from a granola bar vending machine, so people were probably getting a little snack and a drink... oops, gluten! Ever since that I remember to bring my own water bottle, and haven't had any problems at all. And now I know to avoid public water fountains in general, which remarkably I'd never thought of before.
Thanks for all the good advice! I hadn't even thought about Amazon for bulk orders, I will definitely have to look into that (love their free shipping offers!). And great advice to go for items clearly labelled Gluten Free on the front of the package. That's a good thing to try to stick with especially in the beginning perhaps, as I don't think anyone there is particularly an expert on the subject, though their hearts are certainly in the right place and bless 'em for doing this. Awesome list for kids' food, thank you so much! I won't be able to get everything all at once, but we try to donate monthly, so I'll send some variety and then ask how it went and what was popular.
Yes, I agree food cupboards vary widely in what they can or will do. This one is wonderful in that instead of handing out pre-packed bags of food, the clients are actually allowed to 'shop' from the choices available with a volunteer guiding them, you can have one of these and two of that kind of thing. I always thought it was a blessing for people with special needs diets to be given choices, and I'm so delighted that they're taking this extra step for the gluten-free crowd.
Wonderful ideas, thank you! Yes, things like crackers with individually wrapped components would be perfect, as they will split the packages between multiple families when they can. I know every package of Ritz or Saltines that someone donates winds up feeding three or four families, so yeah it would be great to give them a gluten-free alternative to those!
I am hoping to get your recommendations on this. There is a local food cupboard that my family has donated food to, and volunteered at, that we like to support. I just found out that they have dedicated an entire shelf to gluten free products! They said they have actually had a number of people with celiac and other gluten-free needs come in. Needless to say, we'll continue to support the entire cupboard, but definitely want to help them stock up on the new gluten-free shelf! So, here's my question. I'm actually a very sensitive celiac, and avoid most processed / pre-packaged gluten-free foods, so I'm not completely familiar with the gluten-free options and good brands out there right now. What would be your recommendations that I could buy and donate? What do kids on gluten-free diets like (I don't have kids, so I'm clueless!).
We're talking staples here, nothing too frou-frou (or crazy expensive, our budget has a limit), and can't require a fridge or freezer. So maybe cereal? Snacks? Pasta? Mac & cheese? If I buy them something like Rice Chex, they'll probably put it with the regular cereal, and I'd like to get them stuff that would stay specifically on the gluten-free shelf. Are Panda Puffs good? I'm thinking the Tinkyada pastas would be good, and Annie's has a gluten-free mac and cheese, doesn't it? Maybe I just need to go shopping and look But could definitely use advice on things that kids like!
I also had a bad gluten reaction to Ricola in the last two weeks. Unfortunately, I had a bad case of the flu and a cough so bad I was starting to get sick to my stomach I was coughing so hard, so I was taking their recommended dosage of two every two hours, or whatever it is. I did that for several days in a row. Yeah, I had (what I now know) are gluten symptoms in those couple of days, but I thought it was from the flu! Then I got a bad DH rash. Oops. Gluten. It was the only new thing I was taking. It seems that Swiss gluten-free standards are substantially more lenient than ours.
Yes, I lost weight after being diagnosed last year. Anyway, I'm down about 20 and still losing gradually, which is great because I have it to spare and am very happy to lose a healthy pound or two a week. Back when I was still having gluten and unaware of the whole celiac thing, I think the biggest thing that brought on my weight gain was that I would get nauseous if I got hungry. The hungrier I was, the more nauseous I was, to the point of getting sick to my stomach. Needless to say, I didn't let myself get hungry if I could help it. And for some reason, that made me gain weight.
Thanks for the welcomes, although I admit I've been lurking for quite some time
For me, I am very confident it was a gluten reaction when my vertigo appeared, as I only get vertigo when I get into gluten. No gluten = no vertigo. Whenever I try a new processed food, I try to give it a full month or until I hit a reaction and have to stop. On several occasions, it's taken several weeks to get a really definitive reaction. From my understanding, that's a very celiac kind of thing, as it can take time to do noticeable intestinal damage. It was like that with the Chex. I was on it for a little while, feeling a bit worse for wear and was just starting to notice that my head had been feeling funny, then one day I was standing at a table, turned to walk away, spun hard and fell over. LOL. Vertigo! When I stopped the Chex, it went right away.
My understanding with processed foods... and correct me if I'm wrong... but gluten free only means tested down to 20 parts per million or lower, doesn't it? So not really free of gluten in the strictest sense of the word. I think my tolerance is simply lower than that, and of course everyone's is different as has been said. I can't have King Arthur gluten free products either. I'm currently testing Jules gluten free flour mix and it seems like a winner, fingers crossed. But I also just bought a mill and some whole grains, and that seems the safest way to go for the future.
My mother is LDS and has celiac. There is no reason in the world that you can't be accommodated. Yes, you need to go to a higher authority if the bishop will not help. For my mother, someone else would bring a piece of gluten-free bread that would be served first to the celiacs in the ward (there are 3 in her church). That worked for a time, but then she had a minor gluten reaction one Sunday which she thinks may have been from a contaminated hand or serving tray. She now has permission to bring her own little bit of gluten-free bread in a tiny Rubbermaid container with a lid. They keep the lid on, and when they get to her, the lid gets popped off and the bread dropped into her hand. Nobody else touches it. Works great.
Oh, wow yes. I lose my hair when I get into gluten, I now recognize it as one of my early warning signs that something gluten contaminated has crept into my life again. When I was finally diagnosed with celiac by my doctor, I'd been losing my hair for quite a while (among umpteen other problems which also all turned out to be from gluten). My hair started growing back soon after I pulled all the gluten out of my diet and life, and after a couple of totally gluten-free months I had crazy short tufts of hair growing all over my head from where it was finally getting a chance to grow back in! I went to see my doctor in that time, she saw my hair and said "oh, you are SO celiac".
I get a gluten reaction to "gluten free" Chex cereal as well, for what it's worth. I think they just have a low level in it, I had to eat it more than once before I built up a reaction. However, when my gluten-induced vertigo suddenly came back... I knew it was gluten! Got better as soon as I stopped having the Chex. There seems to be a LOT of "gluten free" products that I can't tolerate the teesy weensy levels of gluten in. I guess that's why I'm posting on the Super Sensitive Celiacs board.