Get email alerts Get E-mail Alerts Sponsor: Sponsor:

Ads by Google:

   Get email alerts  Subscribe to FREE email alerts

  • Announcements

    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


Advanced Members
  • Content count

  • Joined

  • Last visited

Community Reputation

1 Neutral

About eah4me

  • Rank
    New Community Member
  1. We are going through a similar issue with our daughter in that she did great off of dairy and then suddenly went right back to where she had been with the stomach aches and behavior problems despite still being off dairy. We also strongly suspect gluten problems despite negative testing. I have heard it is possible for them to have multiple food allergies/intolerances. Maybe that could be contributing? Just an idea. You could consider asking your doctor about eliminating other potential allergens from the diet.
  2. I also live in CA and have had to deal with the public school system and their lack of interest in dealing with children with food allergies. Unfortunately, there is not a lot you can do legally unless you want to get really aggressive and hire a lawyer to try and pursue the "discrimination" aspect of how they are handling your situation. Certainly it is wrong, but getting the school to understand and do anything about it is very difficult. The way I handled it was to deal with the individual teacher at each grade level and leave the principal/administration out of it as they were impossible to talk to. I wouldn't try to fight a big fight like getting the cafeteria to offer gluten free/allergan free meals...just accept the school won't make big changes, but should certainly be willing to help you in accomodating your child's needs. I would love to see more awareness in the public schools and menus with options for food allergic/special dietary needs kids, but I think that is going to be a long time in the coming and for the short term, not an easy fix to your problem. I found that offering alternatives to how to handle class parties was the best approach. I bought packages of treats that my daughter could have for those impromptu parties where I had no prior notice and just asked the teacher to hand that to her instead of what was being served. For planned parties, I would always volunteer to provide one of the snacks...usually a baked good, and would just make it so that she could eat it. No need to tell everyone they are gluten and dairy don't know the difference. Just serve them up and your child will not feel singled out or different since they will all be eating the same thing! As far as sending your child to the office for parties, I don't understand at all why they would think that was necessary. If they insist on doing something so out of line as that, I would go to the school board and make the biggest stink possible! That is ridiculous. Contact your local news station and let them know what is going on. I live in a pretty small town, and our local news people love interesting local stories like that!! Hope that helps some.
  3. Thanks for the replies! So we went back to the pediatrician today and they ordered a celiac panel, sed rate, CBC, CMP, urine culture and KUB (abdominal radiographs). Obviously we don't have any results yet, but her x-ray was pretty odd because her stomach was HUGE and full of gas. The tech couldnt believe she wasn't in more pain. Hopefully we get some answers tomorrow when the doctor calls with the radiologist report.
  4. Thank you so much for posting your story. I just found this website yesterday in my search to help my daughter and it has already been so helpful! My daughter also had golf ball sized tonsils which we finally had removed 3 months ago because of chronic strep. Now I'm wondering if it was related to a gluten problem. I've always wondered what is wrong with me as well and have been told by doctors I am just "small", have a fast metabolism, have a sensitive stomach, etc....everything but a problem with gluten. Like you, I'm hoping my search for answers for myself will help me find answers for my daughter as well. Best of luck to you and your son!
  5. I am looking for some advice for my 9-year-old daughter. We've already been through quite a bit with her but are still grasping at straws to find answers for her symptoms. I will try to make her story short! ha, ha My dd was a VERY colicky baby and at 6 months of age had a violent GI reaction to rice cereal. ER said it was a virus but I knew it wasn't. Tried rice cereal again at 8 months of age with the exact same reaction. ER called it a virus again but now I was certain she had a food reaction. Never fed rice cereal again!!! Starting at about 1 1/2 years of age she started complaining of frequent tummy aches. Seemed to get diarrhea more than her sisters, but overall not an unhealthy child, just lots of complaints of her tummy hurting. Doctor always said she just had a sensitive stomach and that we shouldn't worry. By age 3 she started with frequent strep throat, still lots of tummy aches and weird behavioral things (very moody, volatile personality...very up or down). At age 5 she got really nasty croup and then ended up with a cough that went on for months so she was placed on an inhaler presumably for allergic asthma. Finally at age 7 a friend of mine pointed out that she may have food allergies or celiac disease. I pursued this with our pediatrician who ordered a blood test for celiac disease along with a CBC and BMP which all came back normal. At that point we did an elimination diet at his suggestion and took her off of all dairy products. Her symptoms finally improved for the first time!!! chronic cough went away, tummy better, appetite improved, behavioral problems went away completely. Aside from periodic relapses of tummy aches she did great for about a year. Then she started having more and more frequent tummy aches until now they are almost as frequent as they were before we took her off dairy. Oh, forgot that 3 months ago she had her tonsils removed because of chronic strep throat. Whew. My poor dd. She has been through a lot and now I am so frustrated because I feel like we took 10 steps backwards because she is sick again. I'm wondering if she could actually have celiac disease on top of the dairy allergy even though her blood test was negative. I am hearing the blood test is not that accurate so we should still consider gluten as a problem for her potentially. My question is...where do we go from here? Take gluten out of her diet and see if she gets better? Pursue the genetic blood test? I don't want to submit her to endoscopy and biopsy. Hoping someone here will have some insight for me. I'm going nuts! Thanks