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w3bjammin added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)Chest & Neck Pain After Going Gluten/soy FreeI was diagnosed with Celiac disease in March. I went gluten free for a month before I realized that soy was also causing a problem. After cutting out the soy as well and a few slip ups I started to feel better by May. My exhaustion and burning headaches went away and my heartburn decreased. By June my heartburn had gotten worse again. I had an endoscopy mid-June and according to the GI specialist everything looked fine and my intestinal lining seemed as healed as it would get. Nonetheless my heartburn which consists of neck stiffness and chest pain that makes it difficult to breath has gotten worse. No over the counter heartburn medications work nor does Nexium or Sucralfate. The pain is position dependent. Sitting up, standing up, and sleeping straight seem to reduce the pain. Even more bizarre is that drinking alcohol will completely get rid of the pain for 1-2 days afterwards. The more I drink the longer the effect. Has anyone else had similar problems? Neither my GI specialist nor my primary have any ideas and I don't think drinking is the best long term solution. I am extremely frustrated with the situation.
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