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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About Rebecca92

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    Community Member
  • Birthday 03/29/1992

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  • Gender Female
  • Location Nashville TN
  1. So I was diagnosed via a celiac panel approximately three years ago and have been gluten free since (minus the rookie mistakes and CC) My symptoms have definitely gotten better but I don't feel 100% so I decided to see a gastroenterologist I've been having a lot of nausea with some vomitting along with having to run to the bathroom a few time a day but had trouble going off and on . While I'll admit that sometimes I mess up and CC myself (I live with gluten eaters lol) there's no way it's gluten related I am extra careful when preparing and choosing food and cosmetic products. I had an endoscopy at a a few months ago and they did find a small ulcer and said that my small intestine was inflamed but didn't seem too worried about it, but honestly I don't trust the guy anymore he spent a total of two minutes talking about my results :\ but that's another rant. They gave me horse pills to take twice a day before I eat and being that I'm young and in college of course I never ended up taking them all. The gastro doc gave me a two week supply of an acid blocker to try to heal up an ulcer if there is one.  The gastro was surprised that the positive celiac blood test wasn't followed with a biopsy of the duodenum because there are false positives with blood tests. He said they would call in two weeks and see how I feel, and if I'm not feeling great then we should go ahead and schedule and endoscopy and a colonoscopy. Obviously I'm not thrilled with this idea so I'm hoping the acid blocker works (which the nasea is getting better) but if I'm still having "bathroom" issues and an extremely tender abdomen on the left side I'm thinking about doing the tests. For the endo he said that if I am a celiac even if I've been gluten free for almost three years I will most likely show some damage and also mentioned checking to make sure there's not a small bowel malignant tumor or something and the colonoscopy to check for microscopic colitis. I'm thinking about maybe just doing the endo for now and only doing the other if I get no answers. It was extremely scary to hear him say the word cancer he said that about 3% of celiacs get the malignant tumors. I was just wondering if anybody had any advice or if anyone knew what exactly he meant by false positive, if it wasn't celiac then what else could it be? I mean whatever it is it obviously likes a gluten-free diet so there's no way I'm going back but it just has me wondering, the doctor didn't really explain much about false positives. I'm sorry if this seems long or rambling but this is the only place I can ask these kinds of questions talk about these things without people getting grossed out or confused lol unfortunately I am the only celiac I know in R. The chapter in my town always meets on saturdays...and I always work saturdays. Go figure lol
  2. I've been having some digestive issues lately so I decided to see a gastro doc. A little background info though: I was diagnosed with celiac through a blood test about three or four years ago, and she never did a biopsy to confirm the diagnoses.My symptoms have improved significantly with the gluten free diet so I do really think that it is celiac disease. but the symptoms haven't completely disappeared. Sometimes it is my fault because I accidentally contaminate myself (I live in a gluten eating household although they try their best to keep things safe) but sometimes I have done everything I can think of to make sure it's safe and I'm still having issues. Within the past couple of weeks I have been experiencing extreme nausea sometimes followed by vomiting, my stomach is really tender to the touch on the left side, my stools have often been yellow and thin with mucus or undigested bits of food (TMI I know I'm sorry!) and it often takes me 5-6 bowel movements to feel like I'm "empty" and sometimes it's just mucus that comes out when I try. This is different from when I get glutened because their isn't a whole lot of stomach pain (some but not the intense stabbing pain of glutening) The doc seems to think it could be Microscopic Colitis which is apparently another autoimmune disease that goes hand in hand with celiac. Does anybody else here have this? Were you having similar symptoms?  He also mentioned a condition that effects about 3% of people with celiac. It quickly can cause a kind of cancer in the colon I think he said, but I can't remember the name of the condition to save my life, but he did say that if it turns to cancer that nobody survives. He says it's most likely not that but it could be. If anyone has any idea what I'm talking about I'd appreciate the name of it, I had so much information to take in from him at once the name has slipped my mind. In august I had an endoscopy (done by a different doctor) that found inflammation in my stomach and a small mild ulcer in my stomach (probably caused from use of ibeprofen plus stress), they prescribed sucralate (which my new gastro doctor said wasn't a very good med to give for ulcers.) My new gastro doctor gave me dexilant (an acid blocker) to take for two weeks and see if that improves the symptoms. If it doesn't after those two weeks were going to do an endoscopy to get a biopsy of the duodenum and a colonoscopy to get a biopsy of the colon to check for microscopic colitis. I'm hoping this medication resolves it. I was under the impression that a endoscopy after you go gluten free is useless, but he told me that it is rare for someone with celiac disease (assuming they haven't been gluten free for a long long time) to have a completely healed intestinal tract and that he should still be able to see villi damage.   This has been such a frustrating process, and I am getting so sick of not feeling good whether its diarrhea or extreme nausea it never seems to stop. I just want some for sure answers. I am hoping that someone here has had similar issues or if there's anyone here with microscopic colitis, and how they manage it all the information I found online said there was no real treatment... I'm sorry this is long and probably rambles quite a bit, but hopefully someone out there has had the same issues!
  3. Just running my hands over my legs makes them hurt almost like a big bruise but there's no bruise. I got a massage the other day and it was painful when they got to my legs. It's mostly the calf and my inner and outer thigh. Could this be some sort of vitamin deficency or something? Anybody experience anything similar? Any advice would be appreciated!
  4. Nashville Doctors

    I've decided to switch physicians, my current one sends me for all kinds of crazy expensive tests for little things like a stomach ache and very low fever. I feel like these tests are unnecessary not to mention costly! I'm looking for a new family doctor, maybe one that has an understanding of celiac. I'm scared to switch doctors because I don't want to end up with one that thinks gluten free is just a fad. I need a Dr that will take my celiac seriously. If anyone has any suggestions that'd be great! I'm willing to go to the nashville area or murfreesboro area. 
  5. I don't know if anyone has shared this video here before but I just ran across it on youtube and I thought it was hilarious, mostly because I have heard about 99 percent of everything on this video. Just a little bit of humor to brighten your day :]   Heres another one "Stuff Celiacs Say"  
  6. All great ideas, I found a few things through our school database but there wasn't really a whole lot on just celiac, most of the articles had to do with celiac and its effects on a another disease. It's coming along though, I don't have to give my speech until march 19th so i've got plenty of time to edit and make it better. Now im trying to decide whether to make gluten-free brownies or gluten-free cookies to bring
  7. I forget its there sometimes honestly lol, its definitely a reminder though to keep myself healthy and happy :] hurt like crazy to get it though, especially on my spine that was killer but it was worth it in my opinion.
  8. Almost a year ago I posted a topic on here for ideas for a tattoo to represent my gluten free transformation, and silly me I forgot to post a picture of it completed! So here it is. It's a phoenix to represent coming from being sick to a new healthy lifestyle. Anybody else have tattoos that represent their diagnoses? or even just any meaningful tattoos
  9. I wasn't really sure where to put this post so if it's in the wrong place, I'm sorry. I'm taking a speech class in college and we have to do an informative speech, I've chosen celiac disease as my topic(I was diagnosed a year ago). I am having some trouble finding articles written by professionals (like a article written by a doctor) I need statistics, expert testimony, and a story to really capture peoples attention. I have three main points in my speech which are 1.Symptoms/Effects on the body 2. Diagnoses/Misdiagnoses 3.Treatment/Gluten Free Lifestyle. I could talk about celiac disease all day but I have to have sources to back up my facts whether its from online or a magazine or journal. I'm also having trouble coming up with a catchy title for my speech. I'm going to bake some gluten-free cookies to bring to class as my "visual aid". If anyone has any advice or thoughts on this I'd love to hear it
  10. I've worked at a grooming shop and have seen many cases of dogs coming in with hot spots, yeasty skin or other skin problems saying they've tried everything. We tell them to change to a holistic grain free corn free diet and within weeks the dogs skin issues disappear, canines are meant to be carnivores they just fill pet food with corn for a filler.
  11. Udi's is my favorite I also use Rudis from time to time but I always toast the bread in the oven under the broiler. I can't even tell the difference as long as its toasted
  12. Walgreens brand cough syrup is labeled gluten free
  13. Horses

    I used to have horses a couple years back but I had to sell them for financial reasons. I was not diagnosed as a celiac at that point. I've always loved riding, I had a quarter horse gelding and a spotted saddle horse mare. Eventually I want to start riding again and get into competing in hunter jumpers.
  14. No not yet, I figured I'd give my body a little more time to heal and see if it improves, also I still can't get enough sleep. I could sleep all day and still be exhausted doesn't matter if I get 4,8,14 hours of sleep
  15. I've been gluten free for about four months now with a few accidental glutenings from cc, but I've been pretty careful about what I'm eating and lately I have been craving salty foods like crazy, is it possible this is related to celiacs? I craved salt before going gluten-free too just not this badly, its like an insatiable craving.