This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
Thank You so much for your replies! I am so happy to meet you! Cougie, your story is so similar to m ine, I am so sorry you have had to suffer so much! It is terrifying when your body doesn't do what you tell it, and does things you didn't. I wish you all the luck in the world!
I miss the ease of making a sandwich. The thrill of fresh baked bread. An ice cold beer. Cinnamon buns ice cream. Ritz crackers. Graham crackers with peanut butter and bananas. Pie. cake. Cupcakes. But most of all, I miss pasta.
I wanted to finally officially introduce myself, as I have been posting and have been neglecting to do so. I'm Kelly, I'm 37 and live in VA. I just this year finally realized it was the Gluten trying to do me in after being so sick I thought I would die. Having stroke like episodes and visting doctor after doctor.
Being told by my Insurance company that I was too sick to apply for more Life Insurance was my eye opener that I needed to figure it out and quickly.
Much research later, after taking everything artificial from my diet, I finally took out the gluten, and I'm betetr! Better is a vast improvement over what I was I can tell you! Writing helps, as does a good sense of humor. I try to stay positive, be happy and keep smiling. Sometimes I even succeed!
Welcome Peeptoad! Once your body begins to heal from the damage the gluten causes, it can be very hard on your system to introduce gluten back into it. Be very careful with your challenge, and try a small portion. Such as 1 cookie, or cracker. NOT a whole sandwich as I did. That was a bad idea for me!
I think all of us have slid down the slippery slope of wondering "Do I even have Celiac or a gluten allergy?" And we then think, "Oh I will just have one sandwich." Then yet again, we learn we are indeed intolerant of gluten, flour and wheat products, It's not in our heads, we are sick as dogs when we eat it. We can't have it. So, we run out and try to find ANYTHING that will be gluten free and delicious. Then after eating said deliciousness we feel sick again, look closely at the packaging and find the words 'contains less than 20ppm'. How unfair! We rant and rave, and then finally realize we need to be careful. VERY careful. And then it gets easier. It DOES get easier.
I am SO familiar with the mucus, and bleeding, too. I was diagnosed with Ulcerative Colitis, and then magically, the ulcerative colitis symptoms improved without Gluten in my diet, but I am still having trouble with candida overload, and that causes all sorts of nasty problems as well.
I always say, Ok Today NO dairy, and then slip up with my coffee.
So, starting tomorrow, LOL, NO more dairy for me, and we will see!
I also went through a battery of tests for MS, and when I stopped eating gluten the stroke like symptoms associated with what they thought was surely MS did indeed go away. Those were terrifying! I went to doctors, a Neuro, a Rheumatologist, and physical therapy.
I have been told I have severe fibromyalgia, tested repeatedly, and nothing I do, diet or otherwise make those symptoms go away, but the rest are better, and with my diligence all will continue to improve. And so will yours! Continue with any testing they require to make sure, but always remember you are not alone in this! There are LOTS of us, and we are willing to help.
It can be frustraing, and difficult, BUT, your body will let you know what is best for YOU! All of us are different, unique, and have our own ways to cope, and things that make us feel better. A dietician will tell you common sense, which is to eat things that are natural and pure, contain no gluten, and have no chance of cross contamination. Veggies, rice, lean meats, all of these things are good for everyone, but are perfect for us. Eggs, nuts, and dairy may cause problems with some, and others may tolerate the just fine. It's trickier to find hygiene products that aren't the culprit, but a little research will make you a pro in no time. Good luck!
For me, I suffer from depression, cramping, gas, bloating, bad taste in my mouth, bleeding, headaches, brain fog, muscle weakness, joint pain, limb tingles, dizziness, some D, some C it varies, and alot of mucus in the stools. Even the teeniest bit will cause problems, and now my mouth will swell, and burn, and I get a rash.
I do my very best to be a food nazi, and stay away from anything suspect but it IS difficult.
Good luck to all!
I have a strange "rash" on the inside of my cheeks that 3 doctors have looked and and just scratch their heads at, I'm postive it is some strain of thrush, due to the gluten intolerance, but thrush treatment does nothing for it, and it won't go away. I get sores in my mouth, and have one very small one on the inside of my lip that has been there for months, and never goes away. I get canker sores, and my teeth are weak.