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33 in Ca Celiacs and DH

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About 33 in Ca Celiacs and DH

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  1. Do we really have to use gluten free makeup, lotions, soaps, detergents, etc? If so, do you know of any gluten free Makeup lines? I am an esthetician, so my hands are ALWAYS in different cleansers, peels, makeup, etc!
  2. Wow! Thank you!! I didn't realize that DH was as serious as Celiacs. I look forward to reading additional doc's when you have the time to send them. . I will research Dapsone and DH. I have tried a few different Dieticians and have been so disappointed with their lack of knowledge. Iodine too! Geez, shellfish is my all time favorite food with the second being Chineese food. I am trying to quit smoking... Now I am going to add the gluten-free diet... But in return- I'm adding LIFE!! Thank you so much!! The info I have received from my only 2 post is more than I have received in total- for the last 20 years!
  3. Does anyone else take Dapsone for DH? I haven't found much research on the risk/harm that Dapsone causes after long periods of time. Any insight on this would be great! I take 100 mg daily. When/if I miss a dose, I get blisters within 30 minutes. The blisters did not subside when I was on the gluten-free diet for 6 months. Is that common? Thank you so much!!
  4. Thank you for all of the insight.. I was hopeful that I didn't have Celiacs as I have never been very good about sticking to the diet and more importantly, it seems there is so much more at risk with Celiacs (specifically Cancer, miscarriages (I've had 1) and/or fertility). I am not symptomatic other than bloated belly/gas and constipation. I do get blisters within 30 minutes of not taking Dapsone at my normal time... So it seems it's a no- brainer that I have DH. I was thinking (probably not smart), that there was a possibility that I wouldn't have to watch what I eat as long as I continue to take the dapsone. On another note, does anyone else take Dapsone for DH? I haven't found much research on the risk/harm that Dapsone causes after long periods of time. Any insight on this would be great!
  5. Does anyone else have DH and negative for Celiacs? I was diagnosed With Celiacs and DH for the last 20 years.. Although I do have the bloating, constipation, achy joints, iron deficient.. I am not/have not been gluten-free since 2000 (for 6 months). A new Dr recently suggested that I have the blood work to see if I truly do have Celiacs, and to our suprise, the test came back negative. I do, however, absolutely have DH. I take 100 mg of Dapsone daily and if I miss a dose by just a few hours, I get blisters on my face, shoulders and under my butt. I am having a gastro-intestinal biopsy Monday. Does anyone else have DH but not Celiacs? My Dr said it is possible but that goes against everything any other Dr. Has told me?!?! Please help clarify... Deeply confused!