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33 in Ca Celiacs and DH's Activity
33 in Ca Celiacs and DH added a topic in Gluten-Free Foods, Products, Shopping & MedicationsMakeup?Do we really have to use gluten free makeup, lotions, soaps, detergents, etc?
If so, do you know of any gluten free Makeup lines? I am an esthetician, so my hands are ALWAYS in different cleansers, peels, makeup, etc!
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33 in Ca Celiacs and DH added a topic in Dermatitis HerpetiformisDapsone? 100 Mg For 20 Years?Does anyone else take Dapsone for DH? I haven't found much research on the risk/harm that Dapsone causes after long periods of time. Any insight on this would be great!
I take 100 mg daily. When/if I miss a dose, I get blisters within 30 minutes. The blisters did not subside when I was on the gluten-free diet for 6 months. Is that common?
Thank you so much!!
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33 in Ca Celiacs and DH added a post in a topic New Diagnosis: Dh Without Celiacs, After Being Diagnosed With Both For 20 Years
33 in Ca Celiacs and DH added a topic in Dermatitis HerpetiformisNew Diagnosis: Dh Without Celiacs, After Being Diagnosed With Both For 20 YearsDoes anyone else have DH and negative for Celiacs? I was diagnosed With Celiacs and DH for the last 20 years.. Although I do have the bloating, constipation, achy joints, iron deficient.. I am not/have not been gluten-free since 2000 (for 6 months).
A new Dr recently suggested that I have the blood work to see if I truly do have Celiacs, and to our suprise, the test came back negative.
I do, however, absolutely have DH. I take 100 mg of Dapsone daily and if I miss a dose by just a few hours, I get blisters on my face, shoulders and under my butt.
I am having a gastro-intestinal biopsy Monday.
Does anyone else have DH but not Celiacs? My Dr said it is possible but that goes against everything any other Dr. Has told me?!?!
Please help clarify... Deeply confused!
- 8 replies
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