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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store.


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About Finally@45

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  1. Can You Just Ask To Be Tested?

    I have 2 close relatives who, after my diagnosis, wanted to get tested and their doctors refused. Though in my opinion they have Celiac symptoms, especially long histories of complaining about upset stomachs, constipation, thyroid problems, etc., their doctors felt they don't have the symptoms. It boils down to the health plan actually. In each of their cases I think they may have had symptoms and didn't voice concerns about them in a manner that would sound an alarm, the symptoms seem minor, and/or they don't "look" sick. Some doctors think a person with Celiac will look emaciated because that's what they're taught. As I've said in other posts, in our society a thin female may not be seen as "sick" even though she may talk about a whole range of symptoms that adds up to illness. People are often blinded by a thin body image, and frankly, there are a LOT of people tempted to undermine the impact of food sensitivities. These family members are seeking low-cost testing through local universities with nutrition and/or Celiac research centers. So far it looks like it'll work.
  2. I agree with the comment about genetically modifed corn, but as one of the Celiacs with a corn issue, I kinda think everyone should treat corn the same as oats. My doctor said to avoid wheat, barley, rye, and oats for one year and then try oats to see if it caused problems since about a third of Celiacs have reactions to oats and others don't. (I'm in the third.) Though she thinks my corn intolerance is actually an IBS symptom, I think it's too great of a coincidence and far far too many people complain about it. We need to look at the research that says there may be a Celiac link to corn and determine if newbies should be warned about the potential reaction to corn in the same manner as oats. Even if the cause is related to genetic modification, it doesn't matter, we can't turn back now. On the other hand I found it interesting to look in the history of this forum and see that numerous people had the same awakening I had. It seemed as if everything was going fine and then one day I just got sick again out of the blue. One person suggested that as you go gluten free, you naturally increase rice and corn to higher levels than you ever had before. If you keep ignoring the enemy, eventually he'll find a way to build his army while you're not looking. I think that's the deal with corn.
  3. Correct, Cluck U Chicken, just like pizza joints and bakeries, aren't worth the effort. You're sure to get a joke to share within 30 seconds of trying to order. On the other hand, I went to a nice hot wing bar once that doesn't bread their wings and doesn't use corn products in their sauce. I must have seemed so happy and giddy that I bet the employees joked about ME. They could have put me in an ad and quadrupled their business.
  4. Gelatin! Funny! No matter how hard you annunciate, someone will still think you're saying "glucose." Me: I tried a gluten-free diet for a few weeks and then ate a cookie.... threw up and had horrible diarrhea....sick for days. I think I need a celiac test. Nurse: What? Me: You know, when people have to be on a gluten-free diet... Nurse: Oh you want your blood sugar tested?! Me: [Trying REALLY hard not be frustrated because at that point I was positive I had it, but needed an understanding ear from the doctor's office; I was absolutely miserable.] No, no, I'm saying, "gluten" not "glucose." If you tell the doctor I need a Celiac test, she'll know what I'm talking about. Nurse: How do you spell that? Me: C-E-L-I-A-C Nurse: Spell that again. Me: C-E-L-I-A-C Nurse: Ok, I'll tell the doctor. In the end, I did get a test and was officially diagnosed,and referred to a gastroenterologist, but that first interaction with the nurse always stayed with me. Glad I can laugh about it NOW.
  5. Which Food Made Me Sick?

    I vote for the rice cakes. I stopped buying them too. (It would be nice to know if some companies take the time to read our discussions!)
  6. My gastro said that fructose intolerance can be different for each person.... I have the worst IBS reaction from corn, but it's mild for other fructose sources. I hope you feel better soon.
  7. Gluten-Free Dating?

    I agree that Chipotle is a great compromise to eat with a mixed group or with someone for the first time. Be sure to visit the restaurant forum.
  8. The carmel color reaction is to corn. I also can't tolerate most vinegars; red wine is ok, but I tend to avoid all of them. Corn vinegar is just as bad on my reactions as gluten-contaminated vinegars. Check out your reaction to corn.
  9. You may have multiple problems, try reading the posts on the forums for people with other food sensitivities. (If it's true, try not to scream as loud as I did! You can scare people like that.)
  10. I grew up with so much joint pain (and no real cause other than an occasional doctor who would suggest arthritis) that I only recently realized just how often I thought being uncomfortable was normal. Joint pain is the only Celiac symptom I'm positive I had since earliest childhood, since it's the identical joint pain I still get if I have even the slightest crosscontamination. (I was also extremely thin, but I think people over-excuse that in girls.... the thinness may have been caused by celiac disease.) My mother took me to numerous doctors, none could figure out what was wrong. No swelling either. Healthy x-rays. The serious gastrointestinal symptoms and everything else came much later in my 20s and during/after having troubled pregnancies. So if you're wondering whether the joint pain could be a stand-alone symptom from gluten, I'm a witness that it can be. It's worth it to try and stick to the diet, good luck!
  11. Gluten-Free Dating?

    You may find that hanging around people (dating or not) who are open to health food/vegetarian restaurants are easier to eat with. Most places that cater to people who really think about what they eat are also great places for gluten-free eating.
  12. Thank you VERY much for posting this. I suspect that just as doctors suggest that SOME celiacs have to avoid oats, they need to start saying, SOME celiacs have to avoid oats and/or corn. I'm sure there is more research to be done.
  13. Frequent urinary tract infections and cystitis are problems for women with Celiac.
  14. Mcflurries?

    More from me... Getting on a strict regimen to completely eliminate corn (which is much, much, much harder than gluten because it's not regulated) made me feel the healthiest I've ever felt in my life. It's worth your effort if you have the same problem, even if you have to give away $50 worth of vitamins and eat really plain, "whole" food at restaurants. I am not lactose intolerant (though I do primarily use Lactaid or rice milk because I was told to keep lactose under control), so if I need a dairy fix, I now go to the frozen yogurt or gelatto places that don't use corn syrup and are gluten and dextrin free. I tend to avoid the toppings since the gastro told me to be as paranoid as possible about cross contamination since really minute amounts of corn are setting off my anapyhlaxis. A little more expensive than McDonald's, but worth it. I think yogurt and kefir are low in lactose anyway? Costco's Kirkland brand ice cream is corn syrup and gluten free, I just don't like having a gallon of ice cream in the house! Otherwise, you'll find it hard to get corn/gluten-free ice cream in an avg. grocery store. Healthfood stores will work out. Just get your vanilla ice cream, a blender, and make your own flurries! Besides corn syrup, you could also try watching your response to carmel color, corn vinegar, corn starch, and corn dextrin. It used to be mild responses for me, but one day in June, it was if all hell broke loose and I now can't tolerate any of them.